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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Sport Related Concussion
SubDisease: Comprehensive
Sub-Domain: Quality of Life/Patient Reported Outcomes
CRF: Neuro-QOL Adult Bank - Satisfaction with SRA
Item count: 45 (45 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C21264
Quality of Life - Family regular activity limitation bother past week scale
QoLFamRegActvtyLimtnBotherScl
The scale which represents the extent to which the participant was bothered by their limitations in regular family activities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA.
In the past 7 days I am bothered by my limitations in regular family activities.
5;4;3;2;1;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21265
Quality of Life - Friend need ability disappointment past week scale
QoLFriendNeedAbilityDisappScl
The scale which represents the extent to which the participant was disappointed in their ability to meet the needs of their friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA.
In the past 7 days I am disappointed in my ability to meet the needs of my friends.
5;4;3;2;1;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21266
Quality of Life - Family socialize ability disappointment past week scale
QoLFamSoclizAbltyDisppntmntScl
The scale which represents the extent to which the participant was disappointed in their ability to socialize with their family in the past 7 days, as part of Neuro-QOL Satisfaction with SRA.
In the past 7 days I am disappointed in my ability to socialize with my family.
5;4;3;2;1;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21267
Quality of Life - Friend regular activity limitation bother past week scale
QoLFriendRegActivtyLimBothrScl
The scale which represents the extent to which the participant was bothered by limitations in their regular activities with friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA.
In the past 7 days I am bothered by limitations in my regular activities with friends.
5;4;3;2;1;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C20747
Patient-Reported Outcome Measurement Information System (PROMIS) - Outside home fun ability satisfaction past week scale
PROMISSatsfyDoFunOutHomeScale
The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun outside of the home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
In the past 7 days I am satisfied with my ability to do things for fun outside my home.
1;2;3;4;5;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP171
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C20741
Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity time amount satisfaction past week scale
PROMISSatsfyLeisureTimeScale
The scale which represents the extent of the participant's satisfaction with the amount of time he spent doing leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
In the past 7 days I am satisfied with the amount of time I spend doing leisure activities
1;2;3;4;5;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP159
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C20754
Patient-Reported Outcome Measurement Information System (PROMIS) - Work amount satisfaction past week scale
PROMISSatsfyHowMuchWorkScale
The scale which represents how often the participant's satisfaction with how much work he/she could do in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
In the past 7 days I am satisfied with how much work I can do (include work at home).
1;2;3;4;5;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP185
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21268
Quality of Life - Household chore satisfaction ability past week scale
QoLHoushldChoreStsfctnAbltyScl
The scale which represents the extent to which the participant was satisfied with their ability to do household chores and tasks in the past 7 days, as part of Neuro-QOL Satisfaction with SRA.
In the past 7 days I am satsified with my ability to do household chores and tasks.
1;2;3;4;5;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21269
Quality of Life - Socialize ability family disappointment past week scale
QoLScialzeAbltyFamDsppntmntScl
The scale which represents the extent to which the participant felt that their family was disappointed in their ability to socialize with them in the past 7 days, as part of Neuro-QOL Satisfaction with SRA.
In the past 7 days I feel that my family is disappointed in my ability to socialize with them.
5;4;3;2;1;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21270
Quality of Life - Family need disappointment past week scale
QoLFamilyNeedDisappointmentScl
The scale which represents the extent to which the participant was disappointed in their ability to meet the needs of their family in the past 7 days, as part of Neuro-QOL Satisfaction with SRA.
In the past 7 days I am disappointed in my ability to meet the needs of my family.
5;4;3;2;1;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C20755
Patient-Reported Outcome Measurement Information System (PROMIS) - Family relationship ability good satisfaction past week scale
PROMISFltGoodAbiDoForFamScale
The scale which represents the extent to which the participant felt good about his ability to do things for his/her family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
In the past 7 days I feel good about my ability to do things for my family.
1;2;3;4;5;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP187
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C20769
Patient-Reported Outcome Measurement Information System (PROMIS) - Dependability assistance ability satisfaction past week scale
PROMISSatsfyAbiMeetNeedsScale
The scale which represents the extent of the participant's satisfaction with his/her ability to meet the needs of those who depend on him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
In the past 7 days I am satisfied with my ability to meet the needs of those who depend on me.
1;2;3;4;5;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP207
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C20753
Patient-Reported Outcome Measurement Information System (PROMIS) - Family relationship ability satisfaction past week scale
PROMISSatsfyAbiDoForFamlyScale
The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
In the past 7 days I am satisfied with my ability to do things for my family.
1;2;3;4;5;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP183
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21271
Quality of Life - Family member activity level satisfaction past week scale
QoLFamMembrActvtyLvlStsfctnScl
The scale which represents the extent to which the participant was satisfied with their current level of activity with family members in the past 7 days, as part of Neuro-QOL Satisfaction with SRA.
In the past 7 days I am satisfied with my current level of activity with family members.
1;2;3;4;5;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21272
Quality of Life - Socialize ability friend disappointment self-assessment past week scale
QoLSocialzAbltyFrndDsppntmtScl
The scale which represents the extent to which the participant felt that their friends were disappointed in their ability to socialize with them in the past 7 days, as part of Neuro-QOL Satisfaction with SRA.
In the past 7 days I feel that my friends are disappointed in my ability to socialize with them.
5;4;3;2;1;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21273
Quality of Life - Friendship action ability disappointment past week scale
QoLFrdshpActnAbltyDsppntmntScl
The scale which represents the extent to which the participant was disappointed in their ability to do things for their friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA.
In the past 7 days I am disappointed in my ability to do things for my friends.
5;4;3;2;1;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21274
Quality of Life - Friend socialize ability disappointment past week scale
QoLFriendSoclzAbilityDisappScl
The scale which represents the extent to which the participant was disappointed in their ability to socialize with their friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA.
In the past 7 days I am disappointed in my ability to socialize with my friends.
5;4;3;2;1;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21275
Quality of Life - Social communication maintain ability disappointment past week scale
QoLSoclCmmctnMaintDsppntmntScl
The scale which represents the extent to which the participant was disappointed in their ability to keep in touch with others in the past 7 days, as part of Neuro-QOL Satisfaction with SRA.
In the past 7 days I am disappointed in my ability to keep in touch with others.
5;4;3;2;1;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C20744
Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship ability satisfaction past week scale
PROMISSatsfyDoForFriendsScale
The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
In the past 7 days I am satisfied with my ability to do things for my friends.
1;2;3;4;5;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP165
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C20749
Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship participation happiness past week scale
PROMISHpyHowMuchDidFrndsScale
The scale which represents how often the participant was happy with how much he/she did for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
In the past 7 days I am happy with how much I do for my friends.
1;2;3;4;5;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP175
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C20746
Patient-Reported Outcome Measurement Information System (PROMIS) - Current level friend activity satisfaction past week scale
PROMISSatsfyLvlActWthFrndScale
The scale which represents the extent of the participant's satisfaction with his/her current level of activities with friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
In the past 7 days I am satisfied with my current level of activities with my friends.
1;2;3;4;5;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP169
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C20750
Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship time spent visit satisfaction past week scale
PROMISSatsfyTimeVisitFrndScale
The scale which represents the extent of the participant's satisfaction with the amount of time spent visiting his/her friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
In the past 7 days I am satisfied with the amount of time I spend visiting friends.
1;2;3;4;5;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Emotional Distress - Depression EDDEP177
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21276
Quality of Life - Community activity ability other people disappointment self-assessment past week scale
QoLCommActivityAbilityDisapScl
The scale which represents the extent to which the participant felt that others were disappointed in their ability to do community activities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA.
In the past 7 days I feel that others are disappointed in my ability to do community activities.
5;4;3;2;1;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21277
Quality of Life - Leisure activity ability disappointment past week scale
QoLLeisrActvtyAbltDsppntmntScl
The scale which represents the extent to which the participant was disappointed in their ability to do leisure activites in the past 7 days, as part of Neuro-QOL Satisfaction with SRA.
In the past 7 days I am disappointed in my ability to do leisure activities.
5;4;3;2;1;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21278
Quality of Life - Leisure activity limitation bother past week scale
QoLLeisureActivtyLimitnScl
The scale which represents the extent to which the participant was bothered by limitations in doing their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA.
In the past 7 days I am bothered by limitations in doing my hobbies or leisure activities.
5;4;3;2;1;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Satisfaction with SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Satisfaction with SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
12-15-2018
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