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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Sport Related Concussion
SubDisease: Comprehensive
Sub-Domain: Quality of Life/Patient Reported Outcomes
CRF: Neuro-QOL Adult Bank - Cognitive Function
Item count: 28 (28 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C21198
Quality of Life - Keep track time difficulty scale
QoLKeepTrackTimeDifficultyScl
The scale which represents the amount of difficulty the participant currently has in keeping track of time (e.g., using a clock), as part of Neuro-QOL Cognitive Function.
How much DIFFICULTY do you currently have keeping track of time (eg., using a clock)?
5;4;3;2;1;
None;A little;Somewhat;A lot;Cannot do;
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21199
Quality of Life - Check financial document accuracy difficulty scale
QoLCheckFinanclDocAccurcyScl
The scale which represents the amount of difficulty the participant currently has in checking the accuracy of financial documents (e.g., bills, checkbook, or bank statements), as part of Neuro-QOL Cognitive Function.
How much DIFFICULTY do you currently have checking the accuracy of financial documents, (e.g., bills, checkbook, or bank statements)?
5;4;3;2;1;
None;A little;Somewhat;A lot;Cannot do;
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21200
Quality of Life - Read follow complex instruction difficulty scale
QoLReadComplexInstrDifficltScl
The scale which represents the amount of difficulty the participant currently has in reading and following complex instructions (e.g., directions for a new medication), as part of Neuro-QOL Cognitive Function.
How much DIFFICULTY do you currently have reading and following complex instructions (e.g., directions for a new medication)?
5;4;3;2;1;
None;A little;Somewhat;A lot;Cannot do;
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21201
Quality of Life - Plan keep appointment not weekly routine difficulty scale
QoLPlanKeepAppmntNtWklyRtneScl
The scale which represents the amount of difficulty the participant currently has in planning for and keeping appointments that are not part of their weekly routine (e.g., a therapy or doctor appointment, or a social gathering with friends and family), as part of Neuro-QOL Cognitive Function.
How much DIFFICULTY do you currently have planning for and keeping appointments that are not part of your weekly routine, (e.g., a therapy or doctor appointment, or a social gathering with friends and family)?
5;4;3;2;1;
None;A little;Somewhat;A lot;Cannot do;
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21202
Quality of Life - Manage time daily activity difficulty scale
QoLManagTmeDlyActvityDiffScl
The scale which represents the amount of difficulty the participant currently has in managing their time to do most of their daily activities, as part of Neuro-QOL Cognitive Function.
How much DIFFICULTY do you currently have managing your time to do most of your daily activities?
5;4;3;2;1;
None;A little;Somewhat;A lot;Cannot do;
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21203
Quality of Life - Plan activity ahead time difficulty scale
QoLPlanActvityAheadTimeDiffScl
The scale which represents the amount of difficulty the participant currently has in planning an activity several days in advance (e.g., a meal, trip, or visit to friends), as part of Neuro-QOL Cognitive Function.
How much DIFFICULTY do you currently have planning an activity several days in advance (e.g., a meal, trip, or visit to friends)?
5;4;3;2;1;
None;A little;Somewhat;A lot;Cannot do;
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21204
Quality of Life - Organize difficulty scale
QoLOrganizeDiffScl
The scale which represents the amount of difficulty the participant currently has in getting things organized, as part of Neuro-QOL Cognitive Function.
How much DIFFICULTY do you currently have getting things organized?
5;4;3;2;1;
None;A little;Somewhat;A lot;Cannot do;
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21205
Quality of Life - Remember object location difficulty scale
QoLRemembrObjctLocationDiffScl
The scale which represents the amount of difficulty the participant currently has in remembering where things were placed or put away (e.g., keys), as part of Neuro-QOL Cognitive Function.
How much DIFFICULTY do you currently have remembering where things were placed or put away (e.g., keys)?
5;4;3;2;1;
None;A little;Somewhat;A lot;Cannot do;
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21206
Quality of Life - Remember errand not written difficulty scale
QoLRemembrErrndNotWrttnDiffScl
The scale which represents the amount of difficulty the participant currently has in remembering a list of 4 to 5 errands without writing it down, as part of Neuro-QOL Cognitive Function.
How much DIFFICULTY do you currently have remembering a list of 4 to 5 errands without writing it down?
5;4;3;2;1;
None;A little;Somewhat;A lot;Cannot do;
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21207
Quality of Life - Learn new task difficulty scale
QoLLearnNewTaskDiffScl
The scale which represents the amount of difficulty the participant currently has in learning new tasks or instructions, as part of Neuro-QOL Cognitive Function.
How much DIFFICULTY do you currently have learning new tasks or instructions?
5;4;3;2;1;
None;A little;Somewhat;A lot;Cannot do;
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21208
Quality of Life - Simple mistake more easily past week scale
QoLSimpleMistakeMoreEasilyScl
The scale representing how often the participant made simple mistakes more easily in the past 7 days, as part of Neuro-QOL Cognitive Function.
In the past 7 days I made simple mistakes more easily
5;4;3;2;1;
Never;Rarely (once);Sometimes (2-3 times);Often (once a day);Very often (several times a day);
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21209
Quality of Life - Almost remember word past week scale
QoLAlmostRememberWordScl
The scale representing how often words the participant wanted to use seemed to be on the "tip of their tongue" in the past 7 days, as part of Neuro-QOL Cognitive Function.
In the past 7 days words I wanted to use seemed to be on the "tip of my tongue"
5;4;3;2;1;
Never;Rarely (once);Sometimes (2-3 times);Often (once a day);Very often (several times a day);
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21210
Quality of Life - Several repeat read past week scale
QoLSeveralRptReadScl
The scale representing how often the participant had to read something serveral times to understand it in the past 7 days, as part of Neuro-QOL Cognitive Function.
In the past 7 days I had to read something several times to understand it
5;4;3;2;1;
Never;Rarely (once);Sometimes (2-3 times);Often (once a day);Very often (several times a day);
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21211
Quality of Life - Trouble keep track interrupt past week scale
QoLTrbleKeepTrackInteruptScl
The scale representing how often the participant had trouble keeping track of what they were doing if they were interrupted in the past 7 days, as part of Neuro-QOL Cognitive Function.
In the past 7 days I had trouble keeping track of what I was doing if I was interrupted
5;4;3;2;1;
Never;Rarely (once);Sometimes (2-3 times);Often (once a day);Very often (several times a day);
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21212
Quality of Life - Multitask difficulty past week scale
QoLMultitaskDifficultyScl
The scale representing how often the participant had difficulty doing more than one thing at a time in the past 7 days, as part of Neuro-QOL Cognitive Function.
In the past 7 days I had difficulty doing more than one thing at a time
5;4;3;2;1;
Never;Rarely (once);Sometimes (2-3 times);Often (once a day);Very often (several times a day);
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21213
Quality of Life - Task memory trouble past week scale
QoLTaskMemoryTroubleScl
The scale representing how often the participant had trouble remembering whether they did things they were supposed to do, like taking a medicine or buying something they needed, in the past 7 days, as part of Neuro-QOL Cognitive Function.
In the past 7 days I had trouble remembering whether I did things I was supposed to do, like taking a medicine or buying something I needed
5;4;3;2;1;
Never;Rarely (once);Sometimes (2-3 times);Often (once a day);Very often (several times a day);
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21214
Quality of Life - Trouble remembering new information past week scale
QoLTrbleRememberingNewInfoScl
The scale representing how often the participant had trouble remembering new information, like phone numbers of simple instructions, in the past 7 days, as part of Neuro-QOL Cognitive Function.
In the past 7 days I had trouble remembering new information, like phone numbers or simple instructions
5;4;3;2;1;
Never;Rarely (once);Sometimes (2-3 times);Often (once a day);Very often (several times a day);
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21215
Quality of Life - Room Walked into room and forgot why past week scale
QoLWalkedIntoRoomForgotWhyScl
The scale representing how often the participant walked into a room and forgot what they meant to do or get there in the past 7 days, as part of Neuro-QOL Cognitive Function.
In the past 7 days I walked into a room and forgot what I meant to do or get there
5;4;3;2;1;
Never;Rarely (once);Sometimes (2-3 times);Often (once a day);Very often (several times a day);
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21216
Quality of Life - Familiar person name remember difficulty past week scale
QoLFamiliarNameRememberDiffScl
The scale representing how often the participant had trouble remembering the name of a familiar person in the past 7 days, as part of Neuro-QOL Cognitive Function.
In the past 7 days I had trouble remembering the name of a familiar person
5;4;3;2;1;
Never;Rarely (once);Sometimes (2-3 times);Often (once a day);Very often (several times a day);
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21217
Quality of Life - Clear thought difficulty past week scale
QoLClearThoughtDifficultyScl
The scale representing how often the participant had trouble thinking clearly in the past 7 days, as part of Neuro-QOL Cognitive Function.
In the past 7 days I had trouble thinking clearly
5;4;3;2;1;
Never;Rarely (once);Sometimes (2-3 times);Often (once a day);Very often (several times a day);
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21218
Quality of Life - Reaction slow past week scale
QoLReactionSlowScl
The scale representing how often the participant reacted slowly to things that were said and done in the past 7 days, as part of Neuro-QOL Cognitive Function.
In the past 7 days I reacted slowly to things that were said and done
5;4;3;2;1;
Never;Rarely (once);Sometimes (2-3 times);Often (once a day);Very often (several times a day);
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21219
Quality of Life - Thought formation trouble past week scale
QoLThoughtFormationTroubleScl
The scale representing how often the participant had trouble forming thoughts in the past 7 days, as part of Neuro-QOL Cognitive Function.
In the past 7 days I had trouble forming thoughts
5;4;3;2;1;
Never;Rarely (once);Sometimes (2-3 times);Often (once a day);Very often (several times a day);
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21220
Quality of Life - Thought process slow past week scale
QoLThoughtProcessSlowScl
The scale representing how often the participant's thinking was slow in the past 7 days, as part of Neuro-QOL Cognitive Function.
In the past 7 days my thinking was slow
5;4;3;2;1;
Never;Rarely (once);Sometimes (2-3 times);Often (once a day);Very often (several times a day);
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21221
Quality of Life - Attention difficulty past week scale
QoLAttentionDifficultyScl
The scale representing how often the participant had to work really hard to pay attention or they would make a mistake in the past 7 days, as part of Neuro-QOL Cognitive Function.
In the past 7 days I had to work really hard to pay attention or I would make a mistake
5;4;3;2;1;
Never;Rarely (once);Sometimes (2-3 times);Often (once a day);Very often (several times a day);
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21222
Quality of Life - Trouble concentrate past week scale
QoLTroubleConcentrateScl
The scale representing how often the participant had trouble concentrating in the past 7 days, as part of Neuro-QOL Cognitive Function.
In the past 7 days I had trouble concentrating
5;4;3;2;1;
Never;Rarely (once);Sometimes (2-3 times);Often (once a day);Very often (several times a day);
Numeric Values
Part of Neuro-QOL Adult Bank - Cognitive Function
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Cognitive Function
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
12-19-2018
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