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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Sport Related Concussion
SubDisease: Comprehensive
Sub-Domain: Quality of Life/Patient Reported Outcomes
CRF: Neuro-QOL Adult Bank - Ability to Participate in SRA
Item count: 45 (45 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C21147
Quality of Life - Family responsibility maintain past week scale
QoLFamlyResponsbltyMaintainScl
The scale representing how often the participant could keep up with their family responsibilities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
In the past 7 days I can keep up with my family responsibilities.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21148
Quality of Life - Regular family activity ability past week scale
QoLRegulrFamilyActvityAbltyScl
The scale representing how often the participant was able to do all of their regular family activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
In the past 7 days I am able to do all of my regular family activities.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21149
Quality of Life - Social interaction friend ability past week scale
QoLSocialInterctnFrndAbltyScl
The scale representing how often the participant was able to socialize with their friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
In the past 7 days I am able to socialize with my friends.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21150
Quality of Life - Regular friend activity ability complete past week scale
QoLRegFrndActvtyAbltyCmplteScl
The scale representing how often the participant was able to do all of their regular activities with friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
In the past 7 days I am able to do all of my regular activities with friends.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21151
Quality of Life - Social commitment maintain past week scale
QoLSocialCommitmentMaintainScl
The scale representing how often the participant was able to keep up with their social commitments in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
In the past 7 days I can keep up with my social commitments.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21152
Quality of Life - Activity leisure participate past week scale
QoLActvtyLeisurPartcptScl
The scale representing how often the participant was able to participate in leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
In the past 7 days I am able to participate in leisure activities.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21153
Quality of Life - Daily routine perform past week scale
QoLDailyRoutnPerformScl
The scale representing how often the participant was able to perform their daily routines in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
In the past 7 days I am able to perform my daily routines.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21154
Quality of Life - Work responsibility maintain ability past week scale
QoLWrkRspnsbltyMaintnAbltyScl
The scale representing how often the participant could keep up with their work responsibilities (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
In the past 7 days I can keep up with my work responsibilities (include work at home).
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21155
Quality of Life - Family need satisfaction problem past week scale
QoLFamNeedSatisfactnProblemScl
The scale representing how often the participant had trouble meeting the needs of their family in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
In the past 7 days I have trouble meeting the needs of my family.
5;3;2;1;4;
Never;Sometimes;Often;Always;Rarely;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21156
Quality of Life - Regular family activity limit ability past week scale
QoLRegFamActivtyLimitAblityScl
The scale representing how often the participant had to limit regular family activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
In the past 7 days I have to limit my regular family activities.
5;3;2;1;4;
Never;Sometimes;Often;Always;Rarely;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21157
Quality of Life - Family activity expectation complete past week scale
QoLFamActvtyExpctatnCompletScl
The scale representing how often the participant was able to do all of the family activities that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
In the past 7 days I am able to do all of the family activities that people expect me to do.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21158
Quality of Life - Family activity want complete past week scale
QoLFamilyActivtyWantComplScl
The scale representing how often the participant was able to do all of the family activities that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
In the past 7 days I am able to do all of the family activities that I want to do.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21159
Quality of Life - Friendship maintain past week scale
QoLFriendshipMaintainScl
The scale representing how often the participant was able to maintain friendships as much as they would like in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
In the past 7 days I am able to maintain my friendships as much as I would like.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21160
Quality of Life - Friend need satisfactory complete past week scale
QoLFriendNeedSatsfctryCmpltScl
The scale representing how often the participant could do everything for their friends that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
The scale representing how often the participant could do everything for their friends that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21161
Quality of Life - Friend satisfy expectation activity ability past week scale
QoLFriendSatisfExpecAbilityScl
The scale representing how often the participant was able to do all of the activities with friends that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
The scale representing how often the participant was able to do all of the activities with friends that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21162
Quality of Life - Friend visit limit ability past week scale
QoLFriendVisitLimtAbilityScl
The scale representing how often the participant felt limited in their ability to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
The scale representing how often the participant felt limited in their ability to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
5;3;2;1;4;
Never;Sometimes;Often;Always;Rarely;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21163
Quality of Life - Friend activity satisfactory past week scale
QoLFriendActivitySatisfactScl
The scale representing how often the participant was able to do all of the activities with friends that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
The scale representing how often the participant was able to do all of the activities with friends that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
5;3;2;1;4;
Never;Sometimes;Often;Always;Rarely;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21164
Quality of Life - Friend visit limit time past week scale
QoLFriendVisitLimitTimeScl
The scale representing how often the participant felt limited in the amount of time they had to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
The scale representing how often the participant felt limited in the amount of time they had to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
5;3;2;1;4;
Never;Sometimes;Often;Always;Rarely;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21165
Quality of Life - Home fun limit activity past week scale
QoLHomeFunLimitActivityScl
The scale representing how often the participant had to limit the things they do for fun at home (like reading, listening to music, etc) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
The scale representing how often the participant had to limit the things they do for fun at home (like reading, listening to music, etc) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
5;3;2;1;4;
Never;Sometimes;Often;Always;Rarely;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21166
Quality of Life - Regular leisure activity ability complete past week scale
QoLRegLesurActvtyAbltyCmpltScl
The scale representing how often the participant was able to do all of their regular leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
The scale representing how often the participant was able to do all of their regular leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21167
Quality of Life - Hobby leisure activity limit complete past week scale
QoLHobbyLeisrActvtyLmtCmpltScl
The scale representing how often the participant had to limit their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
The scale representing how often the participant had to limit their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
5;3;2;1;4;
Never;Sometimes;Often;Always;Rarely;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21168
Quality of Life - Hobby activity complete past week scale
QoLHobbyActivityCompleteScl
The scale representing how often the participant was able to do their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
The scale representing how often the participant was able to do their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21169
Quality of Life - Community activity want complete past week scale
QoLCommActivityWantCompletScl
The scale representing how often the participant was able to do all of the community activities that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
The scale representing how often the participant was able to do all of the community activities that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21170
Quality of Life - Leisure activity satisfactory complete past week scale
QoLExpLeisrActvStsfctCmpltScl
The scale representing how often the participant was able to do all of the leisure activities that people expect them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
The scale representing how often the participant was able to do all of the leisure activities that people expect them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21171
Quality of Life - Hobby leisure activity decrease time period past week scale
QoLHbbyLeisrActvtyDecrseTmeScl
The scale representing how often the participant had to do their hobbies or leisure activities for shorter periods of time than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
The scale representing how often the participant had to do their hobbies or leisure activities for shorter periods of time than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.
5;3;2;1;4;
Never;Sometimes;Often;Always;Rarely;
Numeric Values
Part of Neuro-QOL Adult Bank - Ability to Participate in SRA
No references available
Adult;Pediatric
Supplemental
1.0
7/15/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Ability to Participate in SRA
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
12-15-2018
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