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CDE ID | CDE Name | Variable Name | Definition / Description | Question Text | Permissible Value | Description | Data Type | Instructions | References | Population | Classification (e.g., Core) | Version # | Version Date | Aliases for Variable Name | CRF Module / Guideline | © or TM | Sub-Domain | Domain | Previous Title | Size | Input Restrictions | Min Value | Max Value | Measurement Type | LOINC ID | SNOMED | caDSR ID | CDISC ID |
C53953 | Language form administration ISO code | LangFormAdministratISOCode | Code (ISO 639-2) for the language that was used for CRF/instrument/scale/etc. administration | What is the ISO 639 code for the language the form/instrument has been administrated? | chi;cze;dan;dut;eng;fin;fre;ger;gre;heb;hin;hun;ira;ita;jpn;nor;por;rus;sgn;spa;vie;Other, specify; | Chinese;Czech;Danish;Dutch;English;Finnish;French;German;Greek;Hebrew;Hindi;Hungarian;Iranian languages;Italian;Japanese;Norwegian;Portuguese;Russian;Sign language;Spanish;Vietnamese;Other specify; | Alphanumeric | Data Sharing Instructions: The language data should be coded using the ISO 639-2 codes ( (https://www.loc.gov/standards/iso639-2/php/code_list.php) prior to aggregation or sharing. Enter ISO 639-2 code for the language used to administer the CRF/instrument/scale/test/etc. If the language is not specified, the default value is 'eng'- English. | ISO 639-2 language codes (http://www.loc.gov/standards/iso639-2/php/code_list.php) | Adult;Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C53954 | Language form administration ISO code other text | LangFormAdministratISOCodeOTH | The free-text field related to 'Language form administration ISO code' specifying other text. | Other, specify | | | Alphanumeric | Other text for form administration language ISO 639-2 code. Should be used only if 1) the ISO code is not available under LangCRFAdministratISOCode permissible values or 2) the ISO code is not available at all. If the language is not specified, the default value is 'eng'- English.
| ISO 639-2 language codes (http: //www.loc.gov/standards/iso639-2/php/code_list.php)
| Adult;Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | 4000 | Free-Form Entry | | | | | | | |
C53999 | Family Burden of Injury Interview (FBII) -Injury presence indicator | FBIIInjuryPrsncInd | Injury presence indicator , as part of Family Burden of Injury Interview (FHII) (FHII) | | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54000 | Family Burden of Injury Interview (FBII) -Any change in childs reaction indicator | FBIIAnyChngChldReactnInd | Indicator for any change in child's reaction, as part of Family Burden of Injury Interview (FHII) | Has there been any change in how your child reacts or relates to you or your spouse/partner? | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54001 | Family Burden of Injury Interview (FBII) -Question description text | FBIIQuestionDescrpnTxt | Question description text , as part of Family Burden of Injury Interview (FHII) | | | | Alphanumeric | The parents described the specific problem in more detail | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | 4000 | Free-Form Entry | | | | | | | |
C54002 | Family Burden of Injury Interview (FBII) -Rate the level of stress scale | FBIIRateLevelStressScl | Rate the level of stress scale , as part of Family Burden of Injury Interview (FHII) | | 0;1;2;3;4; | 0;1;2;3;4; | Numeric Values | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54003 | Family Burden of Injury Interview (FBII) -Difficulty in discplining child behavior indicator | FBIIDffctDscplChldBehInd | Indicator for difficulty in discplining child behavior , as part of Family Burden of Injury Interview (FHII) | Have you or your spouse/partner had difficulties in disciplining or managing your child's behavior since the accident? | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54004 | Family Burden of Injury Interview (FBII) -Noticed change in behavior of your other children indicator | FBIINotcChngBehYrOthrChldrnInd | Indicator for noticed change in behavior of your other children , as part of Family Burden of Injury Interview (FHII) | Have you noticed any changes in the behavior of your other children? | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54005 | Family Burden of Injury Interview (FBII) -Difficulty in discplining your other child behavior indicator | FBIIDffctDscplOthrYrChldBehInd | Indicator for difficulty in discplining your other child behavior , as part of Family Burden of Injury Interview (FHII) | Have you or your spouse/partner had difficulties in disciplining or managing your other children's behavior since the accident? | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54006 | Family Burden of Injury Interview (FBII) - Concerned about your other children react or accept indicator | FBIIConYrOthrChldrnReactAccInd | Indicator for concern about your other children reaction or acceptance , as part of Family Burden of Injury Interview (FHII) | If you have any other children, are you concerned about how they are reacting to or accepting your child's injury? | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54007 | Family Burden of Injury Interview (BHII) -Concerned about your childs recovery or possible problems in future indicator | FBIIConYrChldRcvryPssPrbFutInd | Indicator for concern about your child's recovery or possible problems in future , as part of Family Burden of Injury Interview (FHII) | Are you concerned about your child's recovery or possible problems in the future? | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54008 | Family Burden of Injury Interview (FBII) -Day to day life changed for family indicator | FBIIDyDyLfChngFamlytInd | Indicator for day to day life change for family , as part of Family Burden of Injury Interview (FHII) | Has day to day life changed for you and your family since we last saw you? | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54009 | Family Burden of Injury Interview (FBII) -Either parent miss work or school indicator | FBIIEthrPrntMssWrkSchlInd | Indicator for if either parent missed work or school , as part of Family Burden of Injury Interview (FHII) | Is either parent missing work or school? | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54010 | Family Burden of Injury Interview (FBII) -Job school schedules affected in any way indicator | FBIIJbSchlSchdlAffctAnyWyInd | Indicator if job or school schedules are affected in any way , as part of Family Burden of Injury Interview (FHII) | Have job or school schedules been affected in any way? | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54011 | Family Burden of Injury Interview (FBII) -Difficult to take care of your other children indicator | FBIIDffctTkeCreYrOthrChldrnInd | Indicator for difficulty to take care of your other children , as part of Family Burden of Injury Interview (FHII) | If you have any other children, has your child's injury made it difficult for you to take care of them? | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54012 | Family Burden of Injury Interview (FBII) -Difficulty keeping up with daily chores indicator | FBIIDffctTKeepUpDailyChoresInd | Indicator for difficulty in keeping up with daily chores , as part of Family Burden of Injury Interview (FHII) | Are you having difficulty keeping up with daily chores, such as shopping or household tasks? | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54013 | Family Burden of Injury Interview (FBII) -Any family routine changed or affected indicator | FBIIAnyFmlyRoutnChngAffctInd | Indicator if any family routine changed or affected , as part of Family Burden of Injury Interview (FHII) | Have any family routines been affected or changed as a result of your child's injury? | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54014 | Family Burden of Injury Interview (FBII) -Any long term goals affected indicator | FBIIAnyLngTrmGoalAffctedInd | Indicator for any long term goals affected , as part of Family Burden of Injury Interview (FHII) | Have any long-term goals been affected by your child' s injury, i.e., career, financial, or educational goals? | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54015 | Family Burden of Injury Interview (FBII) -Difficult to accept and deal with your childs injury indicator | FBIIDffctAccptDealYrChldInjInd | Indicator for difficulty to accept and deal with your child's injury , as part of Family Burden of Injury Interview (FHII) | Has it been difficult for you to accept and deal with your child's injury? | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54016 | Family Burden of Injury Interview (FBII) -Concerned about spouse/partner reaction to your childs injury indicator | FBIIConSpsPrtnRctnYrChldInjInd | Indicator for concern about spouse/partner's reaction to your child's injury , as part of Family Burden of Injury Interview (FHII) | If you have a spouse/partner, are you concerned about their reaction to your child's injury? | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54017 | Family Burden of Injury Interview (FBII) -Difficult for spouse/partner to accept your childs injury indicator | FBIIDffSpsPrtnAccYrChldInjInd | Indicator for difficulty for spouse/partner to accept your child's injury , as part of Family Burden of Injury Interview (FHII) | Has it been difficult for you spouse/partner to accept and deal with your child' s injury? | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54018 | Family Burden of Injury Interview (FBII) -Concerned your child being accepted by peers indicator | FBIIConYrChldBngAccptPeersInd | Indicator for concern about your child being accepted by peers , as part of Family Burden of Injury Interview (FHII) | Are you concerned about how your child is being accepted by his/her peers? | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54019 | Family Burden of Injury Interview (FBII) - Disagree with spouse/partner on taking care of problem with family indicator | FBIIDisAgSpsPrtnTkCrePrbFmyInd | Indicator for disagreeing with spouse/partner on taking care of problem with family, as part of Family Burden of Injury Interview (FHII) | If you have a spouse/partner, do you disagree about how to take care of problems with your child and family that have resulted from the injury? | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54020 | Family Burden of Injury Interview (FBII) -Difficult to talk about your childs injury indicator | FBIIDffTlkYrChldInjInd | Indicator for difficulty to talk about your child's injury, as part of Family Burden of Injury Interview (FHII) | Has it been difficult in any way for you and your spouse/partner to talk about your child's injury? | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |
C54021 | Family Burden of Injury Interview (FBII) -Concerned about other person reaction to your childs injury indicator | FBIIConOthrPrsRctnYrChldInjInd | Indicator for concern about other person reaction to your child's injury, as part of Family Burden of Injury Interview (FHII) | Are you concerned about how other family members of persons outside the family are reacting to your child's injury? | Yes;No; | Yes;No; | Alphanumeric | No instructions available | Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa | Pediatric | Exploratory | 1.0 | 2/10/2017 | Aliases for variable name not defined | Family Burden of Injury Interview (FBII) | | Family and Environment | Outcomes and End Points | | | Single Pre-Defined Value Selected | | | | | | | |