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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Sport Related Concussion
SubDisease: Comprehensive
Sub-Domain: Family and Environment
CRF: Family Burden of Injury Interview (FBII)
Item count: 82 (41 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C53953
Language form administration ISO code
LangFormAdministratISOCode
Code (ISO 639-2) for the language that was used for CRF/instrument/scale/etc. administration
What is the ISO 639 code for the language the form/instrument has been administrated?
chi;cze;dan;dut;eng;fin;fre;ger;gre;heb;hin;hun;ira;ita;jpn;nor;por;rus;sgn;spa;vie;Other, specify;
Chinese;Czech;Danish;Dutch;English;Finnish;French;German;Greek;Hebrew;Hindi;Hungarian;Iranian languages;Italian;Japanese;Norwegian;Portuguese;Russian;Sign language;Spanish;Vietnamese;Other specify;
Alphanumeric
Data Sharing Instructions: The language data should be coded using the ISO 639-2 codes ( (https://www.loc.gov/standards/iso639-2/php/code_list.php) prior to aggregation or sharing. Enter ISO 639-2 code for the language used to administer the CRF/instrument/scale/test/etc. If the language is not specified, the default value is 'eng'- English.
ISO 639-2 language codes (http://www.loc.gov/standards/iso639-2/php/code_list.php)
Adult;Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C53954
Language form administration ISO code other text
LangFormAdministratISOCodeOTH
The free-text field related to 'Language form administration ISO code' specifying other text.
Other, specify
  
Alphanumeric
Other text for form administration language ISO 639-2 code. Should be used only if 1) the ISO code is not available under LangCRFAdministratISOCode permissible values or 2) the ISO code is not available at all. If the language is not specified, the default value is 'eng'- English.
ISO 639-2 language codes (http: //www.loc.gov/standards/iso639-2/php/code_list.php)
Adult;Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
 
4000
Free-Form Entry
       
C53999
Family Burden of Injury Interview (FBII) -Injury presence indicator
FBIIInjuryPrsncInd
Injury presence indicator , as part of Family Burden of Injury Interview (FHII) (FHII)
 
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54000
Family Burden of Injury Interview (FBII) -Any change in childs reaction indicator
FBIIAnyChngChldReactnInd
Indicator for any change in child's reaction, as part of Family Burden of Injury Interview (FHII)
Has there been any change in how your child reacts or relates to you or your spouse/partner?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54001
Family Burden of Injury Interview (FBII) -Question description text
FBIIQuestionDescrpnTxt
Question description text , as part of Family Burden of Injury Interview (FHII)
   
Alphanumeric
The parents described the specific problem in more detail
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
 
4000
Free-Form Entry
       
C54002
Family Burden of Injury Interview (FBII) -Rate the level of stress scale
FBIIRateLevelStressScl
Rate the level of stress scale , as part of Family Burden of Injury Interview (FHII)
 
0;1;2;3;4;
0;1;2;3;4;
Numeric Values
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54003
Family Burden of Injury Interview (FBII) -Difficulty in discplining child behavior indicator
FBIIDffctDscplChldBehInd
Indicator for difficulty in discplining child behavior , as part of Family Burden of Injury Interview (FHII)
Have you or your spouse/partner had difficulties in disciplining or managing your child's behavior since the accident?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54004
Family Burden of Injury Interview (FBII) -Noticed change in behavior of your other children indicator
FBIINotcChngBehYrOthrChldrnInd
Indicator for noticed change in behavior of your other children , as part of Family Burden of Injury Interview (FHII)
Have you noticed any changes in the behavior of your other children?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54005
Family Burden of Injury Interview (FBII) -Difficulty in discplining your other child behavior indicator
FBIIDffctDscplOthrYrChldBehInd
Indicator for difficulty in discplining your other child behavior , as part of Family Burden of Injury Interview (FHII)
Have you or your spouse/partner had difficulties in disciplining or managing your other children's behavior since the accident?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54006
Family Burden of Injury Interview (FBII) - Concerned about your other children react or accept indicator
FBIIConYrOthrChldrnReactAccInd
Indicator for concern about your other children reaction or acceptance , as part of Family Burden of Injury Interview (FHII)
If you have any other children, are you concerned about how they are reacting to or accepting your child's injury?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54007
Family Burden of Injury Interview (BHII) -Concerned about your childs recovery or possible problems in future indicator
FBIIConYrChldRcvryPssPrbFutInd
Indicator for concern about your child's recovery or possible problems in future , as part of Family Burden of Injury Interview (FHII)
Are you concerned about your child's recovery or possible problems in the future?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54008
Family Burden of Injury Interview (FBII) -Day to day life changed for family indicator
FBIIDyDyLfChngFamlytInd
Indicator for day to day life change for family , as part of Family Burden of Injury Interview (FHII)
Has day to day life changed for you and your family since we last saw you?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54009
Family Burden of Injury Interview (FBII) -Either parent miss work or school indicator
FBIIEthrPrntMssWrkSchlInd
Indicator for if either parent missed work or school , as part of Family Burden of Injury Interview (FHII)
Is either parent missing work or school?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54010
Family Burden of Injury Interview (FBII) -Job school schedules affected in any way indicator
FBIIJbSchlSchdlAffctAnyWyInd
Indicator if job or school schedules are affected in any way , as part of Family Burden of Injury Interview (FHII)
Have job or school schedules been affected in any way?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54011
Family Burden of Injury Interview (FBII) -Difficult to take care of your other children indicator
FBIIDffctTkeCreYrOthrChldrnInd
Indicator for difficulty to take care of your other children , as part of Family Burden of Injury Interview (FHII)
If you have any other children, has your child's injury made it difficult for you to take care of them?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54012
Family Burden of Injury Interview (FBII) -Difficulty keeping up with daily chores indicator
FBIIDffctTKeepUpDailyChoresInd
Indicator for difficulty in keeping up with daily chores , as part of Family Burden of Injury Interview (FHII)
Are you having difficulty keeping up with daily chores, such as shopping or household tasks?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54013
Family Burden of Injury Interview (FBII) -Any family routine changed or affected indicator
FBIIAnyFmlyRoutnChngAffctInd
Indicator if any family routine changed or affected , as part of Family Burden of Injury Interview (FHII)
Have any family routines been affected or changed as a result of your child's injury?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54014
Family Burden of Injury Interview (FBII) -Any long term goals affected indicator
FBIIAnyLngTrmGoalAffctedInd
Indicator for any long term goals affected , as part of Family Burden of Injury Interview (FHII)
Have any long-term goals been affected by your child' s injury, i.e., career, financial, or educational goals?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54015
Family Burden of Injury Interview (FBII) -Difficult to accept and deal with your childs injury indicator
FBIIDffctAccptDealYrChldInjInd
Indicator for difficulty to accept and deal with your child's injury , as part of Family Burden of Injury Interview (FHII)
Has it been difficult for you to accept and deal with your child's injury?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54016
Family Burden of Injury Interview (FBII) -Concerned about spouse/partner reaction to your childs injury indicator
FBIIConSpsPrtnRctnYrChldInjInd
Indicator for concern about spouse/partner's reaction to your child's injury , as part of Family Burden of Injury Interview (FHII)
If you have a spouse/partner, are you concerned about their reaction to your child's injury?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54017
Family Burden of Injury Interview (FBII) -Difficult for spouse/partner to accept your childs injury indicator
FBIIDffSpsPrtnAccYrChldInjInd
Indicator for difficulty for spouse/partner to accept your child's injury , as part of Family Burden of Injury Interview (FHII)
Has it been difficult for you spouse/partner to accept and deal with your child' s injury?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54018
Family Burden of Injury Interview (FBII) -Concerned your child being accepted by peers indicator
FBIIConYrChldBngAccptPeersInd
Indicator for concern about your child being accepted by peers , as part of Family Burden of Injury Interview (FHII)
Are you concerned about how your child is being accepted by his/her peers?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54019
Family Burden of Injury Interview (FBII) - Disagree with spouse/partner on taking care of problem with family indicator
FBIIDisAgSpsPrtnTkCrePrbFmyInd
Indicator for disagreeing with spouse/partner on taking care of problem with family, as part of Family Burden of Injury Interview (FHII)
If you have a spouse/partner, do you disagree about how to take care of problems with your child and family that have resulted from the injury?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54020
Family Burden of Injury Interview (FBII) -Difficult to talk about your childs injury indicator
FBIIDffTlkYrChldInjInd
Indicator for difficulty to talk about your child's injury, as part of Family Burden of Injury Interview (FHII)
Has it been difficult in any way for you and your spouse/partner to talk about your child's injury?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C54021
Family Burden of Injury Interview (FBII) -Concerned about other person reaction to your childs injury indicator
FBIIConOthrPrsRctnYrChldInjInd
Indicator for concern about other person reaction to your child's injury, as part of Family Burden of Injury Interview (FHII)
Are you concerned about how other family members of persons outside the family are reacting to your child's injury?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
Copyright 1999 Lippincott Williams & Wilkins, Inc. Burgess, Erika Swift MA; Drotar, Dennis PhD; Taylor, Gerry H. PhD; Wade, Shari PhD; Stancin, Terry PhD; Yeates, Keith Owen PhDThe Family Burden of Injury Interview: Reliability and Validity Studies.Journa
Pediatric
Exploratory
1.0
2/10/2017
Aliases for variable name not defined
Family Burden of Injury Interview (FBII)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
12-15-2018
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