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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Spinal Cord Injury
SubDisease: Spinal Cord Injury
Sub-Domain: The International SCI Data Sets
CRF: International SCI Activities and Participation Basic Data Set
Item count: 16 (16 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C06000
Site identifier number
SiteIDNum
Unique identification number given to the study site to distinguish the location where data is recorded.
Site
  
Alphanumeric
No instructions available
No references available
Adult
Supplemental
3.0
7/17/2013
SITE
International SCI Activities and Participation Basic Data Set
The International SCI Data Sets
The International SCI Data Sets
Site identifier
255
Free-Form Entry
       
C19247
Subject ID
SubIDNam
Subject identification ID
Subject
  
Alphanumeric
No instructions available
No references available
Adult
Supplemental
1.0
6/5/2014
Aliases for variable name not defined
International SCI Activities and Participation Basic Data Set
The International SCI Data Sets
The International SCI Data Sets
 
255
Free-Form Entry
       
C06005
Data collected date and time
DataCollDateTime
Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed.
Date of data collection
  
Date or Date & Time
DATACLDT
No references available
Adult
Supplemental
3.0
7/24/2013
Aliases for variable name not defined
International SCI Activities and Participation Basic Data Set
The International SCI Data Sets
The International SCI Data Sets
Data collected date and time
 
Free-Form Entry
       
C19478
Spinal cord injury performance rate scale
SCIPerformanceRateScl
The performance or satisfaction rating after spinal cord injuiry.
Performance rating
Not applicable;Somewhat satisfied;Not satisfied;Unknown;Very satisfied;
Not applicable;Somewhat satisfied;Not satisfied;Unknown;Very satisfied;
Alphanumeric
PERFRATE
No references available
Adult
Supplemental
1.0
6/17/2014
Aliases for variable name not defined
International SCI Activities and Participation Basic Data Set
The International SCI Data Sets
The International SCI Data Sets
  
Single Pre-Defined Value Selected
       
C19479
Spinal cord injury mobility moderate distance status
SCIMobilityModerDistanceStatus
The status related to mobility for moderate distances (10-100 meters) related to spinal cord injury.
Mobility moderate distances
Moves independently in manual wheelchair;Needs electric wheelchair or partial assistance to operate manual wheelchair;Needs leg orthosis only;Requires supervision while walking (with or without devices);Requires total assistance;Unknown;Walks with a walking frame or crutches (swing);Walks with crutches or two canes (reciprocal walking);Walks with one cane;Walks without walking aids;
Moves independently in manual wheelchair;Needs electric wheelchair or partial assistance to operate manual wheelchair;Needs leg orthosis only;Requires supervision while walking (with or without devices);Requires total assistance;Unknown;Walks with a walking frame or crutches (swing);Walks with crutches or two canes (reciprocal walking);Walks with one cane;Walks without walking aids;
Alphanumeric
MOBILMOD 10-100 meters
No references available
Adult
Supplemental
1.0
6/17/2014
Aliases for variable name not defined
International SCI Activities and Participation Basic Data Set
The International SCI Data Sets
The International SCI Data Sets
  
Single Pre-Defined Value Selected
       
C19480
Spinal cord injury dressing lower body status
SCIDressingLowerBodyStatus
The status related to spinal cord injur and dressing lower body.
Dressing lower body
Dresses (any clothes) independently - does not require adss;Independent with cwobzl - does not require adss - needs assistance or adss only for bzl;Independent with cwobzl - requires adaptive devices and/or specific settings (adss);Requires partial assistance with clothes without buttons, zippers and laces (cwobzl);Requires total assistance;Unknown;
Dresses (any clothes) independently - does not require adss;Independent with cwobzl - does not require adss - needs assistance or adss only for bzl;Independent with cwobzl - requires adaptive devices and/or specific settings (adss);Requires partial assistance with clothes without buttons, zippers and laces (cwobzl);Requires total assistance;Unknown;
Alphanumeric
DRESLBDY
No references available
Adult
Supplemental
1.0
6/17/2014
Aliases for variable name not defined
International SCI Activities and Participation Basic Data Set
The International SCI Data Sets
The International SCI Data Sets
  
Single Pre-Defined Value Selected
       
C19481
Spinal cord injury feeding ability status
SCIFeedingAbilityStatus
The status for feeding ability and spinal cord injury.
Feeding
Eats and drinks independently - does not require assistance or adaptive devices;Eats independently - needs adaptive devices or assistance only for cutting food and/or pouring and/or opening containers;Needs parenteral, gastrostomy or fully assisted oral feeding;Needs partial assistance with eating and/or drinking or for putting on/taking off adaptive device(s) needed for eating and/or drinking;Unknown;
Eats and drinks independently - does not require assistance or adaptive devices;Eats independently - needs adaptive devices or assistance only for cutting food and/or pouring and/or opening containers;Needs parenteral, gastrostomy or fully assisted oral feeding;Needs partial assistance with eating and/or drinking or for putting on/taking off adaptive device(s) needed for eating and/or drinking;Unknown;
Alphanumeric
FEEDING
No references available
Adult
Supplemental
1.0
6/17/2014
Aliases for variable name not defined
International SCI Activities and Participation Basic Data Set
The International SCI Data Sets
The International SCI Data Sets
  
Single Pre-Defined Value Selected
       
C19490
Spinal cord injury toileting assessment status
SCIToiletingAssessmentStatus
The status related to toileting and spinal cord injury.
Toileting
Independent in all tasks, but needs adaptive equipment or special setting;Independent, does not need adaptive equipment or special setting;Requires partial assistance, cleans self independently;Requires partial assistance, does not clean self;Requires total assistance;
Independent in all tasks, but needs adaptive equipment or special setting (eg bars);Independent, does not need adaptive equipment or special setting;Requires partial assistance, cleans self independently;Requires partial assistance, does not clean self;Requires total assistance;
Alphanumeric
TOILETIN
No references available
Adult
Supplemental
1.0
6/17/2014
Aliases for variable name not defined
International SCI Activities and Participation Basic Data Set
The International SCI Data Sets
The International SCI Data Sets
  
Single Pre-Defined Value Selected
       
C19482
Paid work hour week count
PaidWorkHourWeekCt
The number of hours per week in paid work.
Paid work
  
Numeric Values
PWRKHRWK
No references available
Adult
Supplemental
1.0
6/17/2014
Aliases for variable name not defined
International SCI Activities and Participation Basic Data Set
The International SCI Data Sets
The International SCI Data Sets
  
Free-Form Entry
0
168
Hours per week
    
C19483
Volunteer work hour week count
VolunteerWorkHourWeekCt
The number of hours per week in volunteer work.
Volunteer work
  
Numeric Values
VWRKHRWK
No references available
Adult
Supplemental
1.0
6/17/2014
Aliases for variable name not defined
International SCI Activities and Participation Basic Data Set
The International SCI Data Sets
The International SCI Data Sets
  
Free-Form Entry
0
168
hours
    
C19485
Education study hour week count
EducationStudyHourWeekCt
The number of hours per week in educational study.
Education
  
Numeric Values
EDUCHRWK
No references available
Adult
Supplemental
1.0
6/17/2014
Aliases for variable name not defined
International SCI Activities and Participation Basic Data Set
The International SCI Data Sets
The International SCI Data Sets
  
Free-Form Entry
0
168
hours
    
C19484
Household work hour week count
HouseholdWorkHourWeekCt
The number of hours per week in household work.
Household
  
Numeric Values
HHOLHRWK
No references available
Adult
Supplemental
1.0
6/17/2014
Aliases for variable name not defined
International SCI Activities and Participation Basic Data Set
The International SCI Data Sets
The International SCI Data Sets
  
Free-Form Entry
0
168
hours
    
C19486
Leisure activity hour week count
LeisureActivityHourWeekCt
The number of hours per week of spare time activities.
Spare time activities
  
Numeric Values
ACTIHRWK
No references available
Adult
Supplemental
1.0
6/17/2014
Aliases for variable name not defined
International SCI Activities and Participation Basic Data Set
The International SCI Data Sets
The International SCI Data Sets
  
Free-Form Entry
0
168
hours
    
C19489
Relationship spouse status
RelationshipSpouseStatus
The status of spousal relationship.
Spousal relationship
Married/living together;No relationship;Romantic relationship, not living together;Unknown;
Married/living together;No relationship;Romantic relationship, not living together;Unknown;
Alphanumeric
SPOUSREL
No references available
Adult
Supplemental
1.0
6/17/2014
Aliases for variable name not defined
International SCI Activities and Participation Basic Data Set
The International SCI Data Sets
The International SCI Data Sets
  
Single Pre-Defined Value Selected
       
C19487
Relationship family contact count
RelationshipFamilyContactCt
The number of family members in contact with.
Family relationship
  
Numeric Values
FAMRELCT
No references available
Adult
Supplemental
1.0
6/17/2014
Aliases for variable name not defined
International SCI Activities and Participation Basic Data Set
The International SCI Data Sets
The International SCI Data Sets
  
Free-Form Entry
0
500
     
C19488
Relationship friend contact count
RelationshipFriendContactCt
The number of friends in contact with.
Friends relationships
  
Numeric Values
FRIRELCT
No references available
Adult
Supplemental
1.0
6/17/2014
Aliases for variable name not defined
International SCI Activities and Participation Basic Data Set
The International SCI Data Sets
The International SCI Data Sets
  
Free-Form Entry
0
500
     
12-19-2018
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