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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Spinal Cord Injury
SubDisease: Spinal Cord Injury
Sub-Domain: Sleep
CRF: Fatigue Severity Scale (FSS)
Item count: 10 (10 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C09639
Fatigue Severity Scale (FSS) - low motivation scale
FSSLowMotvtnScale
Scale used to describe the extent to which the patient's motivation was lower in the past week, as part of the Fatigue Severity Scale (FSS)
My motivation is lower when I am fatigued
1;2;3;4;5;6;7;
1 - strong disagreement;;;;;;7 - strong agreement;
Numeric Values
Read each statement and circle a number from 1 to 7, based on how accurately it reflects your condition during the past week and the extent to which you agree or disagree that the statement applies to you. • A low value (e.g., 1) indicates strong disagreement with the statement, whereas a high value (e.g., 7) indicates strong agreement. • It is important that you circle a number (1 to 7) for every question.
Lauren B. Krupp; Nicholas G. LaRocca; Joanne Muir-Nash; Alfred D. Steinberg The Fatigue Severity Scale: Application to Patients With Multiple Sclerosis and Systemic Lupus Erythematosus. Arch Neurol. 1989;46(10):1121-1123. Friedman, JH (Friedman, Joseph H.); Alves, G (Alves, Guido); Hagell, P (Hagell, Peter); Marinus, J (Marinus, Johan); Marsh, L (Marsh, Laura); Martinez-Martin, P (Martinez-Martin, Pablo); Goetz, CG (Goetz, Christopher G.); Poewe, W (Poewe, Werner); Rascol, O (Rascol, Olivier); Sampaio, C (Sampaio, Cristina); Stebbins, G (Stebbins, Glenn); Schrag, A (Schrag, Anette) Fatigue Rating Scales Critique and Recommendations by the Movement Disorders Society Task Force on Rating Scales for Parkinson's Disease MOVEMENT DISORDERS, 25 (7): 805-822 MAY 15 2010
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Fatigue Severity Scale (FSS)
Sleep
Outcomes and End Points
FSS Q1
 
Single Pre-Defined Value Selected
       
C09640
Fatigue Severity Scale (FSS) - exercise fatigue scale
FSSExrcsFatgScale
Scale used to describe the extent to which exercise brought on the patient's fatigue in the past week, as part of the Fatigue Severity Scale (FSS)
Exercise brings on my fatigue
1;2;3;4;5;6;7;
1 - strong disagreement;;;;;;7 - strong agreement;
Numeric Values
Read each statement and circle a number from 1 to 7, based on how accurately it reflects your condition during the past week and the extent to which you agree or disagree that the statement applies to you. • A low value (e.g., 1) indicates strong disagreement with the statement, whereas a high value (e.g., 7) indicates strong agreement. • It is important that you circle a number (1 to 7) for every question.
Lauren B. Krupp; Nicholas G. LaRocca; Joanne Muir-Nash; Alfred D. Steinberg The Fatigue Severity Scale: Application to Patients With Multiple Sclerosis and Systemic Lupus Erythematosus. Arch Neurol. 1989;46(10):1121-1123. Friedman, JH (Friedman, Joseph H.); Alves, G (Alves, Guido); Hagell, P (Hagell, Peter); Marinus, J (Marinus, Johan); Marsh, L (Marsh, Laura); Martinez-Martin, P (Martinez-Martin, Pablo); Goetz, CG (Goetz, Christopher G.); Poewe, W (Poewe, Werner); Rascol, O (Rascol, Olivier); Sampaio, C (Sampaio, Cristina); Stebbins, G (Stebbins, Glenn); Schrag, A (Schrag, Anette) Fatigue Rating Scales Critique and Recommendations by the Movement Disorders Society Task Force on Rating Scales for Parkinson's Disease MOVEMENT DISORDERS, 25 (7): 805-822 MAY 15 2010
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Fatigue Severity Scale (FSS)
Sleep
Outcomes and End Points
FSS Q2
 
Single Pre-Defined Value Selected
       
C09641
Fatigue Severity Scale (FSS) - easy fatigue scale
FSSEasyFatgScale
Scale used to describe the extent to which the patient was easily fatigued in the past week, as part of the Fatigue Severity Scale (FSS)
I am easily fatigued
1;2;3;4;5;6;7;
1 - strong disagreement;;;;;;7 - strong agreement;
Numeric Values
Read each statement and circle a number from 1 to 7, based on how accurately it reflects your condition during the past week and the extent to which you agree or disagree that the statement applies to you. • A low value (e.g., 1) indicates strong disagreement with the statement, whereas a high value (e.g., 7) indicates strong agreement. • It is important that you circle a number (1 to 7) for every question.
Lauren B. Krupp; Nicholas G. LaRocca; Joanne Muir-Nash; Alfred D. Steinberg The Fatigue Severity Scale: Application to Patients With Multiple Sclerosis and Systemic Lupus Erythematosus. Arch Neurol. 1989;46(10):1121-1123. Friedman, JH (Friedman, Joseph H.); Alves, G (Alves, Guido); Hagell, P (Hagell, Peter); Marinus, J (Marinus, Johan); Marsh, L (Marsh, Laura); Martinez-Martin, P (Martinez-Martin, Pablo); Goetz, CG (Goetz, Christopher G.); Poewe, W (Poewe, Werner); Rascol, O (Rascol, Olivier); Sampaio, C (Sampaio, Cristina); Stebbins, G (Stebbins, Glenn); Schrag, A (Schrag, Anette) Fatigue Rating Scales Critique and Recommendations by the Movement Disorders Society Task Force on Rating Scales for Parkinson's Disease MOVEMENT DISORDERS, 25 (7): 805-822 MAY 15 2010
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Fatigue Severity Scale (FSS)
Sleep
Outcomes and End Points
FSS Q3
 
Single Pre-Defined Value Selected
       
C09642
Fatigue Severity Scale (FSS) - interfere physical function scale
FSSIntrfrePhysclFunctScale
Scale used to describe the extent to which fatigue interfered with the patient's physical functioning in the past week, as part of the Fatigue Severity Scale (FSS)
Fatigue interferes with my physical functioning
1;2;3;4;5;6;7;
1 - strong disagreement;;;;;;7 - strong agreement;
Numeric Values
Read each statement and circle a number from 1 to 7, based on how accurately it reflects your condition during the past week and the extent to which you agree or disagree that the statement applies to you. • A low value (e.g., 1) indicates strong disagreement with the statement, whereas a high value (e.g., 7) indicates strong agreement. • It is important that you circle a number (1 to 7) for every question.
Lauren B. Krupp; Nicholas G. LaRocca; Joanne Muir-Nash; Alfred D. Steinberg The Fatigue Severity Scale: Application to Patients With Multiple Sclerosis and Systemic Lupus Erythematosus. Arch Neurol. 1989;46(10):1121-1123. Friedman, JH (Friedman, Joseph H.); Alves, G (Alves, Guido); Hagell, P (Hagell, Peter); Marinus, J (Marinus, Johan); Marsh, L (Marsh, Laura); Martinez-Martin, P (Martinez-Martin, Pablo); Goetz, CG (Goetz, Christopher G.); Poewe, W (Poewe, Werner); Rascol, O (Rascol, Olivier); Sampaio, C (Sampaio, Cristina); Stebbins, G (Stebbins, Glenn); Schrag, A (Schrag, Anette) Fatigue Rating Scales Critique and Recommendations by the Movement Disorders Society Task Force on Rating Scales for Parkinson's Disease MOVEMENT DISORDERS, 25 (7): 805-822 MAY 15 2010
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Fatigue Severity Scale (FSS)
Sleep
Outcomes and End Points
FSS Q4
 
Single Pre-Defined Value Selected
       
C09643
Fatigue Severity Scale (FSS) - frequent problem scale
FSSFreqPrblmScale
Scale used to describe the extent to which fatigue caused frequent problems for the patient in the past week, as part of the Fatigue Severity Scale (FSS)
Fatigue causes frequent problems for me
1;2;3;4;5;6;7;
1 - strong disagreement;;;;;;7 - strong agreement;
Numeric Values
Read each statement and circle a number from 1 to 7, based on how accurately it reflects your condition during the past week and the extent to which you agree or disagree that the statement applies to you. • A low value (e.g., 1) indicates strong disagreement with the statement, whereas a high value (e.g., 7) indicates strong agreement. • It is important that you circle a number (1 to 7) for every question.
Lauren B. Krupp; Nicholas G. LaRocca; Joanne Muir-Nash; Alfred D. Steinberg The Fatigue Severity Scale: Application to Patients With Multiple Sclerosis and Systemic Lupus Erythematosus. Arch Neurol. 1989;46(10):1121-1123. Friedman, JH (Friedman, Joseph H.); Alves, G (Alves, Guido); Hagell, P (Hagell, Peter); Marinus, J (Marinus, Johan); Marsh, L (Marsh, Laura); Martinez-Martin, P (Martinez-Martin, Pablo); Goetz, CG (Goetz, Christopher G.); Poewe, W (Poewe, Werner); Rascol, O (Rascol, Olivier); Sampaio, C (Sampaio, Cristina); Stebbins, G (Stebbins, Glenn); Schrag, A (Schrag, Anette) Fatigue Rating Scales Critique and Recommendations by the Movement Disorders Society Task Force on Rating Scales for Parkinson's Disease MOVEMENT DISORDERS, 25 (7): 805-822 MAY 15 2010
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Fatigue Severity Scale (FSS)
Sleep
Outcomes and End Points
FSS Q5
 
Single Pre-Defined Value Selected
       
C09644
Fatigue Severity Scale (FSS) - prevent sustain physical function scale
FSSPrvntPhysclFunctScale
Scale used to describe the extent to which fatigue prevented the patient's sustained physical functioning in the past week, as part of the Fatigue Severity Scale (FSS)
Fatigue prevents sustained physical functioning
1;2;3;4;5;6;7;
1 - strong disagreement;;;;;;7 - strong agreement;
Numeric Values
Read each statement and circle a number from 1 to 7, based on how accurately it reflects your condition during the past week and the extent to which you agree or disagree that the statement applies to you. • A low value (e.g., 1) indicates strong disagreement with the statement, whereas a high value (e.g., 7) indicates strong agreement. • It is important that you circle a number (1 to 7) for every question.
Lauren B. Krupp; Nicholas G. LaRocca; Joanne Muir-Nash; Alfred D. Steinberg The Fatigue Severity Scale: Application to Patients With Multiple Sclerosis and Systemic Lupus Erythematosus. Arch Neurol. 1989;46(10):1121-1123. Friedman, JH (Friedman, Joseph H.); Alves, G (Alves, Guido); Hagell, P (Hagell, Peter); Marinus, J (Marinus, Johan); Marsh, L (Marsh, Laura); Martinez-Martin, P (Martinez-Martin, Pablo); Goetz, CG (Goetz, Christopher G.); Poewe, W (Poewe, Werner); Rascol, O (Rascol, Olivier); Sampaio, C (Sampaio, Cristina); Stebbins, G (Stebbins, Glenn); Schrag, A (Schrag, Anette) Fatigue Rating Scales Critique and Recommendations by the Movement Disorders Society Task Force on Rating Scales for Parkinson's Disease MOVEMENT DISORDERS, 25 (7): 805-822 MAY 15 2010
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Fatigue Severity Scale (FSS)
Sleep
Outcomes and End Points
FSS Q6
 
Single Pre-Defined Value Selected
       
C09645
Fatigue Severity Scale (FSS) - interfere duty responsibility scale
FSSIntrfreDutyRespnsbltyScale
Scale used to describe the extent to which fatigue interfered with the patient's ability to carry out certain duties and responsibilities, as part of the Fatigue Severity Scale (FSS)
Fatigue interferes with carrying out certain duties and responsibilities
1;2;3;4;5;6;7;
1 - strong disagreement;;;;;;7 - strong agreement;
Numeric Values
Read each statement and circle a number from 1 to 7, based on how accurately it reflects your condition during the past week and the extent to which you agree or disagree that the statement applies to you. • A low value (e.g., 1) indicates strong disagreement with the statement, whereas a high value (e.g., 7) indicates strong agreement. • It is important that you circle a number (1 to 7) for every question.
Lauren B. Krupp; Nicholas G. LaRocca; Joanne Muir-Nash; Alfred D. Steinberg The Fatigue Severity Scale: Application to Patients With Multiple Sclerosis and Systemic Lupus Erythematosus. Arch Neurol. 1989;46(10):1121-1123. Friedman, JH (Friedman, Joseph H.); Alves, G (Alves, Guido); Hagell, P (Hagell, Peter); Marinus, J (Marinus, Johan); Marsh, L (Marsh, Laura); Martinez-Martin, P (Martinez-Martin, Pablo); Goetz, CG (Goetz, Christopher G.); Poewe, W (Poewe, Werner); Rascol, O (Rascol, Olivier); Sampaio, C (Sampaio, Cristina); Stebbins, G (Stebbins, Glenn); Schrag, A (Schrag, Anette) Fatigue Rating Scales Critique and Recommendations by the Movement Disorders Society Task Force on Rating Scales for Parkinson's Disease MOVEMENT DISORDERS, 25 (7): 805-822 MAY 15 2010
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Fatigue Severity Scale (FSS)
Sleep
Outcomes and End Points
FSS Q7
 
Single Pre-Defined Value Selected
       
C09646
Fatigue Severity Scale (FSS) - top 3 disable symptom scale
FSSTop3DisblSympScale
Scale used to describe the extent to which fatigue is among the patient's three most disabling symptoms, as part of the Fatigue Severity Scale (FSS)
Fatigue is among my three most disabling symptoms
1;2;3;4;5;6;7;
1 - strong disagreement;;;;;;7 - strong agreement;
Numeric Values
Read each statement and circle a number from 1 to 7, based on how accurately it reflects your condition during the past week and the extent to which you agree or disagree that the statement applies to you. • A low value (e.g., 1) indicates strong disagreement with the statement, whereas a high value (e.g., 7) indicates strong agreement. • It is important that you circle a number (1 to 7) for every question.
Lauren B. Krupp; Nicholas G. LaRocca; Joanne Muir-Nash; Alfred D. Steinberg The Fatigue Severity Scale: Application to Patients With Multiple Sclerosis and Systemic Lupus Erythematosus. Arch Neurol. 1989;46(10):1121-1123. Friedman, JH (Friedman, Joseph H.); Alves, G (Alves, Guido); Hagell, P (Hagell, Peter); Marinus, J (Marinus, Johan); Marsh, L (Marsh, Laura); Martinez-Martin, P (Martinez-Martin, Pablo); Goetz, CG (Goetz, Christopher G.); Poewe, W (Poewe, Werner); Rascol, O (Rascol, Olivier); Sampaio, C (Sampaio, Cristina); Stebbins, G (Stebbins, Glenn); Schrag, A (Schrag, Anette) Fatigue Rating Scales Critique and Recommendations by the Movement Disorders Society Task Force on Rating Scales for Parkinson's Disease MOVEMENT DISORDERS, 25 (7): 805-822 MAY 15 2010
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Fatigue Severity Scale (FSS)
Sleep
Outcomes and End Points
FSS Q8
 
Single Pre-Defined Value Selected
       
C09647
Fatigue Severity Scale (FSS) - interfere work family social scale
FSSIntrfreWrkFmlySoclScale
Scale used to describe the extent to which fatigue interferes with the patient's work, family, or social life, as part of the Fatigue Severity Scale (FSS)
Fatigue interferes in my work, family, or social life
1;2;3;4;5;6;7;
1(Strong Disagreement);2;3;4;5;6;7(Strong Agreement);
Numeric Values
Read each statement and circle a number from 1 to 7, based on how accurately it reflects your condition during the past week and the extent to which you agree or disagree that the statement applies to you. • A low value (e.g., 1) indicates strong disagreement with the statement, whereas a high value (e.g., 7) indicates strong agreement. • It is important that you circle a number (1 to 7) for every question.
Lauren B. Krupp; Nicholas G. LaRocca; Joanne Muir-Nash; Alfred D. Steinberg The Fatigue Severity Scale: Application to Patients With Multiple Sclerosis and Systemic Lupus Erythematosus. Arch Neurol. 1989;46(10):1121-1123. Friedman, JH (Friedman, Joseph H.); Alves, G (Alves, Guido); Hagell, P (Hagell, Peter); Marinus, J (Marinus, Johan); Marsh, L (Marsh, Laura); Martinez-Martin, P (Martinez-Martin, Pablo); Goetz, CG (Goetz, Christopher G.); Poewe, W (Poewe, Werner); Rascol, O (Rascol, Olivier); Sampaio, C (Sampaio, Cristina); Stebbins, G (Stebbins, Glenn); Schrag, A (Schrag, Anette) Fatigue Rating Scales Critique and Recommendations by the Movement Disorders Society Task Force on Rating Scales for Parkinson's Disease MOVEMENT DISORDERS, 25 (7): 805-822 MAY 15 2010
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Fatigue Severity Scale (FSS)
Sleep
Outcomes and End Points
FSS Q9
 
Single Pre-Defined Value Selected
       
C10477
Fatigue Severity Scale (FSS) - total score
FSSTotlScore
Score calculated by adding all scale values, as part of the Fatigue Severity Scale (FSS)
Total Score
  
Numeric Values
Scoring your results Now that you have completed the questionnaire, it is time to score your results and evaluate your level of fatigue. It's simple: Add all the numbers you circled to get your total score. The Fatigue Severity Scale Key A total score of less than 36 suggests that you may not be suffering from fatigue. A total score of 36 or more suggests that you may need further evaluation by a physician. Your next steps This scale should not be used to make your own diagnosis. If your score is 36 or more, please share this information with your physician. Be sure to describe all your symptoms as clearly as possible to aid in your diagnosis and treatment.
Lauren B. Krupp; Nicholas G. LaRocca; Joanne Muir-Nash; Alfred D. Steinberg The Fatigue Severity Scale: Application to Patients With Multiple Sclerosis and Systemic Lupus Erythematosus. Arch Neurol. 1989;46(10):1121-1123. Friedman, JH (Friedman, Joseph H.); Alves, G (Alves, Guido); Hagell, P (Hagell, Peter); Marinus, J (Marinus, Johan); Marsh, L (Marsh, Laura); Martinez-Martin, P (Martinez-Martin, Pablo); Goetz, CG (Goetz, Christopher G.); Poewe, W (Poewe, Werner); Rascol, O (Rascol, Olivier); Sampaio, C (Sampaio, Cristina); Stebbins, G (Stebbins, Glenn); Schrag, A (Schrag, Anette) Fatigue Rating Scales Critique and Recommendations by the Movement Disorders Society Task Force on Rating Scales for Parkinson's Disease MOVEMENT DISORDERS, 25 (7): 805-822 MAY 15 2010
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Fatigue Severity Scale (FSS)
Sleep
Outcomes and End Points
FSS Total Score
 
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12-16-2018
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