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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Spinal Cord Injury
SubDisease: Spinal Cord Injury
Sub-Domain: Quality of Life/Patient Reported Outcomes
CRF: World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Item count: 28 (28 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C09930
World Health Organization Quality of Life (WHOQOL-BREF) - rate quality life scale
WHOQOLBREFRateQualLfeScale
Scale used to assess quality of life, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
How would you rate your quality of life?
1;2;3;4;5;
very poor;Poor;neither poor nor good;Good;very good;
Numeric Values
No instructions available
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q1
 
Single Pre-Defined Value Selected
       
C09931
World Health Organization Quality of Life (WHOQOL-BREF) - health satisfaction scale
WHOQOLBREFHlthSatisfScale
Scale used to assess health satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
How satisfied are you with your health?
1;2;3;4;5;
very dissatisfied;dissatisfied;neither satisfied nor dissatisfied;satisfied;very satisfied;
Numeric Values
No instructions available
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q2
 
Single Pre-Defined Value Selected
       
C09932
World Health Organization Quality of Life (WHOQOL-BREF) - physical pain prevent work scale
WHOQOLBREFPhysPnPrvWrkScale
Scale used to assess the extent to which pain prevents the participant from doing what needs to be done, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
To what extent do you feel that physical pain prevents you from doing what you need to do?
1;2;3;4;5;
Not at all;a little;a moderate amount;very much;an extreme amount;
Numeric Values
The following questions ask about how much you have experienced certain things in the last two weeks
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q3
 
Single Pre-Defined Value Selected
       
C09933
World Health Organization Quality of Life (WHOQOL-BREF) - medical treatment to function scale
WHOQOLBREFMedTreatFunctScale
Scale used to assess how much medical treatment is needed to function in daily life, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
How much do you need any medical treatment to function in your daily life?
1;2;3;4;5;
Not at all;a little;a moderate amount;very much;an extreme amount;
Numeric Values
The following questions ask about how much you have experienced certain things in the last two weeks
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q4
 
Single Pre-Defined Value Selected
       
C09934
World Health Organization Quality of Life (WHOQOL-BREF) - enjoy life scale
WHOQOLBREFEnjyLfeScale
Scale used to assess life enjoyment, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
How much do you enjoy life?
1;2;3;4;5;
Not at all;a little;a moderate amount;very much;an extreme amount;
Numeric Values
The following questions ask about how much you have experienced certain things in the last two weeks
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q5
 
Single Pre-Defined Value Selected
       
C09935
World Health Organization Quality of Life (WHOQOL-BREF) - life meaningful scale
WHOQOLBREFLfeMeaningflScale
Scale used to assess the extent to which the participant feels life is meaningful, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
To what extent do you feel your life to be meaningful?
1;2;3;4;5;
Not at all;a little;a moderate amount;very much;an extreme amount;
Numeric Values
The following questions ask about how much you have experienced certain things in the last two weeks
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q6
 
Single Pre-Defined Value Selected
       
C09936
World Health Organization Quality of Life (WHOQOL-BREF) - concentration scale
WHOQOLBREFConcntratnScale
Scale used to assess concentration ability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
How well are you able to concentrate?
1;2;3;4;5;
Not at all;Slightly;a moderate amount;very much;Extremely;
Numeric Values
The following questions ask about how much you have experienced certain things in the last two weeks
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q7
 
Single Pre-Defined Value Selected
       
C09937
World Health Organization Quality of Life (WHOQOL-BREF) - safe feel daily scale
WHOQOLBREFSfeFeelDlyScale
Scale used to assess how safe the participant feels on a daily basis, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
How safe do you feel in your daily life?
1;2;3;4;5;
Not at all;Slightly;a moderate amount;very much;Extremely;
Numeric Values
The following questions ask about how much you have experienced certain things in the last two weeks
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q8
 
Single Pre-Defined Value Selected
       
C09938
World Health Organization Quality of Life (WHOQOL-BREF) - physical enviornment health scale
WHOQOLBREFPhysEnviorHlthScale
Scale used to assess the health of the participant's physical environment, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
How healthy is your physical environment?
1;2;3;4;5;
Not at all;Slightly;a moderate amount;very much;Extremely;
Numeric Values
The following questions ask about how much you have experienced certain things in the last two weeks
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q9
 
Single Pre-Defined Value Selected
       
C09939
World Health Organization Quality of Life (WHOQOL-BREF) - energy daily scale
WHOQOLBREFEnrgyDlyScale
Scale used to assess whether the participant has enough energy for daily life, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
Do you have enough energy for everyday life?
1;2;3;4;5;
Not at all;a little;Moderately;mostly;completely;
Numeric Values
The following questions ask about how completely you experience or were able to do certain things in the last two weeks.
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q10
 
Single Pre-Defined Value Selected
       
C09940
World Health Organization Quality of Life (WHOQOL-BREF) - body appearance acceptance scale
WHOQOLBREFBdyApprAccptScale
Scale used to assess bodily appearance acceptance, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
Are you able to accept your bodily appearance?
1;2;3;4;5;
Not at all;a little;Moderately;mostly;completely;
Numeric Values
The following questions ask about how completely you experience or were able to do certain things in the last two weeks.
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q11
 
Single Pre-Defined Value Selected
       
C09941
World Health Organization Quality of Life (WHOQOL-BREF) - enough money scale
WHOQOLBREFEnghMneyScale
Scale used to assess financial stability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
Have you enough money to meet your needs?
1;2;3;4;5;
Not at all;a little;Moderately;mostly;completely;
Numeric Values
The following questions ask about how completely you experience or were able to do certain things in the last two weeks.
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q12
 
Single Pre-Defined Value Selected
       
C09942
World Health Organization Quality of Life (WHOQOL-BREF) - information available daily scale
WHOQOLBREFInfoAvailDailyScale
Scale used to assess the availability of information needed in the participant's daily life, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
How available to you is the information that you need in your day-to-day life?
1;2;3;4;5;
Not at all;a little;Moderately;mostly;completely;
Numeric Values
The following questions ask about how completely you experience or were able to do certain things in the last two weeks.
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q13
 
Single Pre-Defined Value Selected
       
C09943
World Health Organization Quality of Life (WHOQOL-BREF) - leisure activity opportunity scale
WHOQOLBREFLeisActvOppScale
Scale used to assess leisure activity opportunity, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
To what extent do you have the opportunity for leisure activities?
1;2;3;4;5;
Not at all;a little;Moderately;mostly;completely;
Numeric Values
The following questions ask about how completely you experience or were able to do certain things in the last two weeks.
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q14
 
Single Pre-Defined Value Selected
       
C09944
World Health Organization Quality of Life (WHOQOL-BREF) - get around scale
WHOQOLBREFGtArndScale
Scale used to assess the ability of the participant to get around, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
How well are you able to get around?
1;2;3;4;5;
very poor;Poor;neither poor nor well;well;very well;
Numeric Values
The following questions ask about how completely you experience or were able to do certain things in the last two weeks.
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q15
 
Single Pre-Defined Value Selected
       
C09945
World Health Organization Quality of Life (WHOQOL-BREF) - sleep satisfaction scale
WHOQOLBREFSlpSatisScale
Scale used to assess sleep satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
How satisfied are you with your sleep?
1;2;3;4;5;
very dissatisfied;dissatisfied;neither satisfied nor dissatisfied;satisfied;very satisfied;
Numeric Values
The following questions ask you to say how good or satisfied you have felt about various aspects of your life over the last two weeks.
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q16
 
Single Pre-Defined Value Selected
       
C09946
World Health Organization Quality of Life (WHOQOL-BREF) - ability perform daily scale
WHOQOLBREFAbltyPerfDlyScale
Scale used to assess how satisfied the participant is with his ability to perform daily living activities, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
How satisfied are you with your ability to perform daily living activities?
1;2;3;4;5;
very dissatisfied;dissatisfied;neither satisfied nor dissatisfied;satisfied;very satisfied;
Numeric Values
The following questions ask you to say how good or satisfied you have felt about various aspects of your life over the last two weeks.
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q17
 
Single Pre-Defined Value Selected
       
C09947
World Health Organization Quality of Life (WHOQOL-BREF) - work capacity scale
WHOQOLBREFWrkCpctyScale
Scale used to assess work capacity, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
How satisfied are you with your capacity for work?
1;2;3;4;5;
very dissatisfied;dissatisfied;neither satisfied nor dissatisfied;satisfied;very satisfied;
Numeric Values
The following questions ask you to say how good or satisfied you have felt about various aspects of your life over the last two weeks.
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q18
 
Single Pre-Defined Value Selected
       
C09948
World Health Organization Quality of Life (WHOQOL-BREF) - ability satisfaction scale
WHOQOBREFAbltySatisScale
Scale used to assess ability satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
How satisfied are you with your abilities?
1;2;3;4;5;
very dissatisfied;dissatisfied;neither satisfied nor dissatisfied;satisfied;very satisfied;
Numeric Values
The following questions ask you to say how good or satisfied you have felt about various aspects of your life over the last two weeks.
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q19
 
Single Pre-Defined Value Selected
       
C09949
World Health Organization Quality of Life (WHOQOL-BREF) - personal relationship scale
WHOQOLBREFPersnReltnshpScale
Scale used to assess personal relationship satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
How satisfied are you with your personal relationships?
1;2;3;4;5;
very dissatisfied;dissatisfied;neither satisfied nor dissatisfied;satisfied;very satisfied;
Numeric Values
The following questions ask you to say how good or satisfied you have felt about various aspects of your life over the last two weeks.
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q20
 
Single Pre-Defined Value Selected
       
C09950
World Health Organization Quality of Life (WHOQOL-BREF) - sex life scale
WHOQOLBREFSexLfeScale
Scale used to assess sex life satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
How satisfied are you with your sex life?
1;2;3;4;5;
very dissatisfied;dissatisfied;neither satisfied nor dissatisfied;satisfied;very satisfied;
Numeric Values
The following questions ask you to say how good or satisfied you have felt about various aspects of your life over the last two weeks.
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q21
 
Single Pre-Defined Value Selected
       
C09951
World Health Organization Quality of Life (WHOQOL-BREF) - friend support scale
WHOQOBREFFrndSuppScale
Scale used to assess family support satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
How satisfied are you with the support you get from your friends?
1;2;3;4;5;
very dissatisfied;dissatisfied;neither satisfied nor dissatisfied;satisfied;very satisfied;
Numeric Values
The following questions ask you to say how good or satisfied you have felt about various aspects of your life over the last two weeks.
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q22
 
Single Pre-Defined Value Selected
       
C09952
World Health Organization Quality of Life (WHOQOL-BREF) - living place scale
WHOQOLBREFLivngPlcScale
Scale used to assess how satisfied the participant is with his living space, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
How satisfied are you with the conditions of your living place?
1;2;3;4;5;
very dissatisfied;dissatisfied;neither satisfied nor dissatisfied;satisfied;very satisfied;
Numeric Values
The following questions ask you to say how good or satisfied you have felt about various aspects of your life over the last two weeks.
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q23
 
Single Pre-Defined Value Selected
       
C09953
World Health Organization Quality of Life (WHOQOL-BREF) - health access scale
WHOQOLBREFHlthAccssScale
Scale used to assess satisfaction with health services access, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
How satisfied are you with your access to health services?
1;2;3;4;5;
very dissatisfied;dissatisfied;neither satisfied nor dissatisfied;satisfied;very satisfied;
Numeric Values
The following questions ask you to say how good or satisfied you have felt about various aspects of your life over the last two weeks.
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q24
 
Single Pre-Defined Value Selected
       
C09954
World Health Organization Quality of Life (WHOQOL-BREF) - mode transportation scale
WHOQOLBREFMdeTransportScale
Scale used to assess transportation mode satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire
How satisfied are you with your mode of transportation?
1;2;3;4;5;
very dissatisfied;dissatisfied;neither satisfied nor dissatisfied;satisfied;very satisfied;
Numeric Values
The following questions ask you to say how good or satisfied you have felt about various aspects of your life over the last two weeks.
The WHOQOL Group (1998). Development of the World Health Organization WHOQOL=Bref QoL Assessment. Psychological Medicine, 28, 551-559. The WHOQOL Group. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. Soc Sci Med 1998; 46: 1569-1585. Skevington SM, Lofty M, & O'Connell KA (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Quality of Life Research, 13, 299-310. Yao G and Wu C (2005). Factorial invariance of the WHOQOL-BREF among disease groups. Qual Life Res. 14, 1881-1888. Hirayama MS, Gobbi S, Gobbi LTB, Stella F, Quality of Life in relation to disease severity in Brazilian Parkinson's patients as measured using the WHOQOL-BREF, Archives of Gerontology and Geriatrics 46, (2008), 147-160.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
World Health Organization Quality of Life Assessment (WHOQOL-BREF)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
WHOQOL-BREF Q25
 
Single Pre-Defined Value Selected
       
12-16-2018
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