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CDE ID | CDE Name | Variable Name | Definition / Description | Question Text | Permissible Value | Description | Data Type | Instructions | References | Population | Classification (e.g., Core) | Version # | Version Date | Aliases for Variable Name | CRF Module / Guideline | © or TM | Sub-Domain | Domain | Previous Title | Size | Input Restrictions | Min Value | Max Value | Measurement Type | LOINC ID | SNOMED | caDSR ID | CDISC ID |
C19127 | Facility name | FacilityName | Name of facility | Facility name | | | Alphanumeric | No instructions available | No references available | Adult;Pediatric | Supplemental | 1.0 | 5/28/2014 | Aliases for variable name not defined | Rehabilitation Admission/Discharge | | Hospital/Care Management | Assessments and Examinations | | 4000 | Free-Form Entry | | | | | | | |
C19128 | Facility arrival date | FacilityArrivalDate | Date when patient arrived at facility | Facility arrival Date | | | Date or Date & Time | Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.). | No references available | Adult;Pediatric | Supplemental | 1.0 | 5/28/2014 | Aliases for variable name not defined | Rehabilitation Admission/Discharge | | Hospital/Care Management | Assessments and Examinations | | | Free-Form Entry | | | | | | | |
C19129 | Facility arrival time | FacilityArrivalTime | Time at which patient arrived at facility | Facility arrival time | | | Date or Date & Time | Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).
Record the earliest document time. If participant transferred from acute at the same facility, please enter time of transfer to rehab. | No references available | Adult;Pediatric | Supplemental | 1.0 | 5/28/2014 | Aliases for variable name not defined | Rehabilitation Admission/Discharge | | Hospital/Care Management | Assessments and Examinations | | | Free-Form Entry | | | | | | | |
C19130 | Facility discharge date | FacilityDischargeDate | Date when patient was discharged from facility | Facility discharge date | | | Date or Date & Time | Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.). | No references available | Adult;Pediatric | Supplemental | 1.0 | 5/28/2014 | Aliases for variable name not defined | Rehabilitation Admission/Discharge | | Hospital/Care Management | Assessments and Examinations | | | Free-Form Entry | | | | | | | |
C19131 | Facility discharge time | FacilityDischargeTime | The time at which the patient was discharged from the facility | Facility discharge time | | | Date or Date & Time | Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.). | No references available | Adult;Pediatric | Supplemental | 1.0 | 5/28/2014 | Aliases for variable name not defined | Rehabilitation Admission/Discharge | | Hospital/Care Management | Assessments and Examinations | | | Free-Form Entry | | | | | | | |
C18153 | Data unknown text | DataUnknwnTxt | The free-text field to Mark an "X" in to record if data are unknown or not available. | If no details available, check unknown | | | Alphanumeric | No instructions available | No references available | Adult;Pediatric | Supplemental | 3.0 | 7/17/2013 | Aliases for variable name not defined | Rehabilitation Admission/Discharge | | Hospital/Care Management | Assessments and Examinations | | 20 | Free-Form Entry | | | | | | | |
C19132 | Ventilator assistance utilization indicator | VentilatorAssistanceUtilznInd | Indicator for the utilization of ventilator assistance on discharge | Utilization of ventilator assistance on discharge | No;Unknown;Yes, 24 hours per day at discharge;Yes, less than 24 hours per day at discharge;Yes, unknown number of hours per day at discharge; | No;Unknown;Yes, 24 hours per day at discharge;Yes, less than 24 hours per day at discharge;Yes, unknown number of hours per day at discharge; | Alphanumeric | Ventilatory assistance includes but is not limited to mechanical ventilators, phrenic nerve stimulators, external negative pressure devices, and BiPAP. Do not include routine administration of oxygen; periodic IPPB administration; or CPAP. | DeVivo M, Biering-Sørensen F, Charlifue S, Noonan V, Post M, Stripling T, Wing P; Executive Committee for the International SCI Data Sets Committees. International Spinal Cord Injury Core Data Set. Spinal Cord. 2006 Sep;44(9):535-40. | Adult;Pediatric | Supplemental | 1.0 | 5/28/2014 | Aliases for variable name not defined | Rehabilitation Admission/Discharge | | Hospital/Care Management | Assessments and Examinations | | | Single Pre-Defined Value Selected | | | | | | | |
C19133 | Vital status type | VitalStatusTyp | The type of vital status held by the patient on discharge | Vital status (on discharge) | Alive;Dead; | Alive;Dead; | Alphanumeric | choose one | No references available | Adult;Pediatric | Supplemental | 1.0 | 5/28/2014 | Aliases for variable name not defined | Rehabilitation Admission/Discharge | | Hospital/Care Management | Assessments and Examinations | | | Single Pre-Defined Value Selected | | | | | | | |
C19160 | Discharge facility type | DischargeFacilityTyp | The type of facility to which the participant was discharged | Place of discharge | Assisted living residence;Correctional institution;Deceased;Group living situation;Homeless;Hospital;Hotel or motel;Nursing home;Other unclassified;Private residence;Rehabilitation hospital;Unknown; | Assisted living residence;Correctional institution;Deceased;Group living situation;Homeless;Hospital;Hotel or motel;Nursing home;Other unclassified;Private residence;Rehabilitation hospital;Unknown; | Alphanumeric | Private residence: includes house, condominium, mobile home, apartment, or houseboat.
Hospital: includes mental hospital or other acute care hospital for management of continuing medical issues after spinal cord injury-related care and/or rehabilitation is completed.
Nursing home: includes skilled nursing facilities and institutions providing essentially long-term, custodial, chronic disease care.
Assisted living residence: includes residential non-institutional locations in which some level of support for activities of daily living is provided.
Group living situation: includes transitional living facility or any residence shared by non-family members.
Correctional institution: includes prison, penitentiary, jail, correctional center, etc.
Homeless: includes cave, car, tent, etc.
Note: If the patient’s place of residence does not fit into any of the above classifications, document it as “other, unclassified”. | DeVivo M, Biering-Sørensen F, Charlifue S, Noonan V, Post M, Stripling T, Wing P; Executive Committee for the International SCI Data Sets Committees. International Spinal Cord Injury Core Data Set. Spinal Cord. 2006 Sep;44(9):535-40.
Note: an additional option was added to the ISCOS International SCI Core Data Set (rehabilitation unit) as it may be applicable for SCI studies. | Adult;Pediatric | Supplemental | 1.0 | 5/29/2014 | Aliases for variable name not defined | Rehabilitation Admission/Discharge | | Hospital/Care Management | Assessments and Examinations | | | Single Pre-Defined Value Selected | | | | | | | |
C21657 | Rehabilitation facility type | RehabFacilityTyp | The type of rehabilitation facility to which the participant was discharged | Rehabilitation facility type | General adult rehabilitation;General pediatric rehabilitation;SCI adult rehabilitation;SCI pediatric rehabilitation;Other;Unknown; | General adult rehabilitation;General pediatric rehabilitation;SCI adult rehabilitation;SCI pediatric rehabilitation;Other;Unknown; | Alphanumeric | No instructions available | No references available | Adult;Pediatric | Supplemental | 1.0 | 5/29/2014 | Aliases for variable name not defined | Rehabilitation Admission/Discharge | | Hospital/Care Management | Assessments and Examinations | | | Single Pre-Defined Value Selected | | | | | | | |
C19135 | Days hospitalized count | DaysHospitalizedCt | Total number of days hospitalized | Total days hospitalized | | | Numeric Values | If the patient/subject is transferred to rehabilitation then this data element would be completed on the Rehab Admission/Discharge form (i.e. only needs to filled one time). Because patients may be discharged home between phases of care, or their initial care may have been delayed, it may not be possible to subtract the final date of discharge from the initial admission date to determine overall hospital length of stay. Therefore, the length of stay should be recorded separately by adding together the number of days spent in each hospital. This information should be obtained by examining the admission and discharge forms from each hospital. | DeVivo M, Biering-Sørensen F, Charlifue S, Noonan V, Post M, Stripling T, Wing P; Executive Committee for the International SCI Data Sets Committees. International Spinal Cord Injury Core Data Set. Spinal Cord. 2006 Sep;44(9):535-40. | Adult;Pediatric | Supplemental | 1.0 | 5/29/2014 | Aliases for variable name not defined | Rehabilitation Admission/Discharge | | Hospital/Care Management | Assessments and Examinations | | | Free-Form Entry | | | | | | | |