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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Spinal Cord Injury
SubDisease: Spinal Cord Injury
Sub-Domain: Functional Outcomes
CRF: International SCI Upper Extremity Basic Data Set
Item count: 15 (15 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C06000
Site identifier number
SiteIDNum
Unique identification number given to the study site to distinguish the location where data is recorded.
Site
  
Alphanumeric
No instructions available
http://www.nature.com/sc/journal/v52/n9/full/sc201487a.html
Adult;Pediatric
Supplemental–Highly Recommended
3.0
7/17/2013
SITE
International SCI Upper Extremity Basic Data Set
Functional Outcomes
Outcomes and End Points
Site identifier
255
Free-Form Entry
       
C19247
Subject ID
SubIDNam
Subject identification ID
Subject
  
Alphanumeric
No instructions available
http://www.nature.com/sc/journal/v52/n9/full/sc201487a.html
Adult;Pediatric
Supplemental–Highly Recommended
1.0
6/5/2014
Aliases for variable name not defined
International SCI Upper Extremity Basic Data Set
Functional Outcomes
Outcomes and End Points
 
255
Free-Form Entry
       
C19500
Assessment performed date
AssessmentPerformedDate
The date of assessment of the examination being performed.
Date performed
  
Date or Date & Time
UPEXTRDT
http://www.nature.com/sc/journal/v52/n9/full/sc201487a.html
Adult;Pediatric
Supplemental–Highly Recommended
1.0
6/18/2014
Aliases for variable name not defined
International SCI Upper Extremity Basic Data Set
Functional Outcomes
Outcomes and End Points
  
Free-Form Entry
       
C02411
Laterality type
LatTyp
Laterality type relative to the anatomic site of the body examined or affected
Laterality
Right;Left;
Right;Left;
Alphanumeric
HANDBASR, HANDBASL, UPEXFXNR, UPEXFXNL Related to evaluation of the right and left extremity to give best description of the hand and upper extremity function
http://www.nature.com/sc/journal/v52/n9/full/sc201487a.html
Adult;Pediatric
Supplemental–Highly Recommended
3.0
8/28/2013
Aliases for variable name not defined
International SCI Upper Extremity Basic Data Set
Functional Outcomes
Outcomes and End Points
Laterality type
 
Single Pre-Defined Value Selected
       
C19491
Spinal cord injury upper extremity reach grasp basic assessment status
SCIUPReachGraspBasicAsseStatus
The status of the ability to reach and grasp as part of the test in spinal cord injury.
Ability to reach and grasp
No upper extremity function at or below the elbow;Passive tenodesis hand;Active tenodesis hand;Active extrinsic hand;Active extrinsic-intrinsic hand;
No voluntary control of elbow, wrist, or hand muscles- no grasping function- severely limited active placing or reaching of the arm.;Passive hand functions with neither voluntary control of extrinsic and intrinsic hand muscles nor ability to actively extend the wrist. Opening and closing of the hand is only possible by supination or pronation of the forearm (passive tenodesis effect) with no active grasping movements of hand. Bimanual grasping by stabilizing objects between two hands or passive tenodesis grasp is effective only in a limited workspace.;No voluntary control of extrinsic and intrinsic hand muscles but active wrist extension allowing for passive movements of fingers dependent on a tenodesis effect. Limited single-handed grasping function in a restricted workspace.;Voluntary control of wrist and some extrinsic hand muscles allowing for grasping with or without tenodesis enabling some active opening and closing of the hand but reduced dexterity and reduction of workspace.;Voluntary control of extrinsic and intrinsic hand muscles with full workspace and the ability to perform different grasp forms (e.g. power grip, precision grip, lateral power pinch, precision pinch) but potential limitations of muscle strength and dexterity.;
Alphanumeric
HANDBASR, HANDBASL- Basic (right or left) hand - upper extremity function
http://www.nature.com/sc/journal/v52/n9/full/sc201487a.html
Adult;Pediatric
Supplemental–Highly Recommended
1.0
6/17/2014
Aliases for variable name not defined
International SCI Upper Extremity Basic Data Set
Functional Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C19492
Spinal cord injury upper extremity shoulder function status
SCIUPShoulderFunctionStatus
The status of shoulder function as part of the test in spinal cord injury.
Shoulder function classification
Limited but able to reach mouth/head, with difficulty or altered movements, e.g. weak or absent pronation-supination or wrist flexion-extension.;Full range of movement (ROM) of shoulder and independent reaching forward and upward.;No active placing or reaching of the arm.;Severely limited but able to position hand on a desk, without assistance, but not able to reach to the mouth/head (gravity compromises the movements).;
Limited but able to reach mouth/head, with difficulty or altered movements, e.g. weak or absent pronation-supination or wrist flexion-extension.;Full range of movement (ROM) of shoulder and independent reaching forward and upward.;No active placing or reaching of the arm.;Severely limited but able to position hand on a desk, without assistance, but not able to reach to the mouth/head (gravity compromises the movements).;
Alphanumeric
UPEXFXNR, UPEXFXNL - Basic (right or left) hand - upper extremity function
http://www.nature.com/sc/journal/v52/n9/full/sc201487a.html
Adult;Pediatric
Supplemental–Highly Recommended
1.0
6/17/2014
Aliases for variable name not defined
International SCI Upper Extremity Basic Data Set
Functional Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C19493
Spinal cord injury upper extremity assistive device use frequency value
SCIUPAssistDevUseFreqVal
The frequency of use of assistive devices for upper extremity in spinal cord injury.
Use of assistive devices used to enhance upper extremity function
Never or less than monthly;Not daily, but one or more times weekly;Not weekly, but one or more times monthly;Used daily;
Never or less than monthly;Not daily, but one or more times weekly;Not weekly, but one or more times monthly;Used daily;
Alphanumeric
UEDEVICE- (all equipment like splints, adaptive equipment, surface functional electrical stimulation (FES), etc.)
http://www.nature.com/sc/journal/v52/n9/full/sc201487a.html
Adult;Pediatric
Supplemental–Highly Recommended
1.0
6/17/2014
Aliases for variable name not defined
International SCI Upper Extremity Basic Data Set
Functional Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C19494
Spinal cord injury upper extremity function complications status
SCIUPFunctionComplicationStat
The status of complications to upper extremity function like pain, spasms, contractures, edema, etc.
Complications to upper extremity function like pain, spasms, contractures, edema, etc
Extensive – complications have extensive impact on function;Minimal – no complications or complications have minimal impact on function;Moderate – complications have moderate impact on function;
Extensive – complications have extensive impact on function;Minimal – no complications or complications have minimal impact on function;Moderate – complications have moderate impact on function;
Alphanumeric
UECOMPLI
http://www.nature.com/sc/journal/v52/n9/full/sc201487a.html
Adult;Pediatric
Supplemental–Highly Recommended
1.0
6/18/2014
Aliases for variable name not defined
International SCI Upper Extremity Basic Data Set
Functional Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C19495
Spinal cord injury upper extremity hand reconstructive surgery status
SCIUPHandRecnSurgStat
Indicate whether upper extremity/hand reconstructive surgery was performed.
Upper Extremity/Hand Reconstructive Surgery
Yes;No;Unknown;
Yes;No;Unknown;
Alphanumeric
UERECNSG
http://www.nature.com/sc/journal/v52/n9/full/sc201487a.html
Adult;Pediatric
Supplemental–Highly Recommended
1.0
6/18/2014
Aliases for variable name not defined
International SCI Upper Extremity Basic Data Set
Functional Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C19496
Spinal cord injury upper extremity hand reconstructive surgery performed anatomic site
SCIUPHandRecnSurgPerAntmicSite
The anatomic site related to upper extremity or hand reconstructive surgery being performed due to spinal cord injury.
Type of surgery
Fingers/thumb;Humerus;Implantable FED specify;Other, specify;Radius;Restoration of pinch and or grasp;Soft tissue reconstruction other, specify;Tendon transfer for elbow extension;Tendon transfer for wrist extension;Tendon/muscle releases or lengthenings;Ulnar;Wrist;
Fingers/thumb;Humerus;Implantable FED specify;Other specify;Radius;Restoration of pinch and or grasp;Soft tissue reconstruction other, specify;Tendon transfer for elbow extension;Tendon transfer for wrist extension;Tendon/muscle releases or lengthenings;Ulnar;Wrist;
Alphanumeric
TTRELEXR
TTRELEXL
TTRWREXR
TTRWREXL
RESPIGRR
RESPIGRL
TDRELENR
TDRELENL
OSTHUMER
OSTHUMEL
OSTRADIR
OSTRADIL
OSTULNAR
OSTULNAL
OSTWRISR
OSTWRISL
OSTFINTR
OSTFINTL
http://www.nature.com/sc/journal/v52/n9/full/sc201487a.html
Adult;Pediatric
Supplemental–Highly Recommended
1.0
6/17/2014
Aliases for variable name not defined
International SCI Upper Extremity Basic Data Set
Functional Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C19501
Spinal cord injury upper extremity hand reconstructive soft tissue surgery performed other text
SCIUPHandRecnSfTsSurgPerOTH
The free-text field to specify other soft tissue anatomic site related to upper extremity or hand reconstructive surgery of being performed due to spinal cord injury.
Other, specify
  
Alphanumeric
STROTHSP
http://www.nature.com/sc/journal/v52/n9/full/sc201487a.html
Adult;Pediatric
Supplemental–Highly Recommended
1.0
6/17/2014
Aliases for variable name not defined
International SCI Upper Extremity Basic Data Set
Functional Outcomes
Outcomes and End Points
 
4000
Free-Form Entry
       
C19498
Spinal cord injury upper extremity hand reconstructive surgery performed other text
SCIUPHandRecnSurgPerOTH
The free-text field to specify other anatomic site related to upper extremity or hand reconstructive surgery being performed due to spinal cord injury.
Other, specify
  
Alphanumeric
OTHERSP
http://www.nature.com/sc/journal/v52/n9/full/sc201487a.html
Adult;Pediatric
Supplemental–Highly Recommended
1.0
6/17/2014
Aliases for variable name not defined
International SCI Upper Extremity Basic Data Set
Functional Outcomes
Outcomes and End Points
 
4000
Free-Form Entry
       
C19499
Spinal cord injury upper extremity hand reconstructive functional electrical stimulation surgery performed other text
SCIUPHandRecnFESSurgPerOTH
The free-text field to specify other anatomic site related to upper extremity or hand reconstructive surgery of implantable functional electrical stimulation (FES) being performed due to spinal cord injury.
Implantable FES specify
  
Alphanumeric
IMPFESSP
http://www.nature.com/sc/journal/v52/n9/full/sc201487a.html
Adult;Pediatric
Supplemental–Highly Recommended
1.0
6/17/2014
Aliases for variable name not defined
International SCI Upper Extremity Basic Data Set
Functional Outcomes
Outcomes and End Points
 
4000
Free-Form Entry
       
C19497
Spinal cord injury upper extremity hand reconstructive surgery performed indicator
SCIUPHandRecnSurgPerfrmInd
The indicator of whether upper extremity or hand reconstructive surgery was performed due to spinal cord injury.
Performed upper extremity/hand reconstructive surgery indicator
Yes;No;Unknown;
Yes;No;Unknown;
Alphanumeric
No instructions available
http://www.nature.com/sc/journal/v52/n9/full/sc201487a.html
Adult;Pediatric
Supplemental–Highly Recommended
1.0
6/17/2014
Aliases for variable name not defined
International SCI Upper Extremity Basic Data Set
Functional Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C19096
Surgery performed date
SurgPerformedDate
Date of last surgical intervention
Date of surgery
  
Date or Date & Time
TTRELRDT
TTRELLDT
TTRWRRDT
TTRWRLDT
RESPGRDT
RESPGLDT
TDRELRDT
TDRELLDT
STROTHDT
OSTHURDT
OSTHULDT
OSTRARDT
OSTRALDT
OSTULRDT
OSTULLDT
OSTWRRDT
OSTWRLDT
OSTFIRDT
OSTFILDT
IMPFESDT
OTHERDT
http://www.nature.com/sc/journal/v52/n9/full/sc201487a.html
Adult;Pediatric
Supplemental–Highly Recommended
1.0
5/27/2014
Aliases for variable name not defined
International SCI Upper Extremity Basic Data Set
Functional Outcomes
Outcomes and End Points
  
Free-Form Entry
       
12-16-2018
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