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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Parkinson's Disease
Sub-Domain: Quality of Life/Patient Reported Outcomes
CRF: Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS)
Item count: 11 (11 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C10389
Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - difficulty work household scale
SCOPAPSDiffcltyWrkHshldScale
Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS)
During the past month, have you had difficulty with work, household or other chores?
Not at all;A little;quite a bit;very much;
Not at all;A little;quite a bit;very much;
Alphanumeric
When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.
Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. Virués-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SCOPA-PS Q1
 
Single Pre-Defined Value Selected
       
C10390
Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - difficulty hobbies sport scale
SCOPAPSDiffcltyHobbSprtScale
Scale assessing whether the participant had difficulty with hobbies, sport or leisure activities in the past month
During the past month, have you had difficulty with hobbies, sport or leisure activities?
Not at all;A little;quite a bit;very much;
Not at all;A little;quite a bit;very much;
Alphanumeric
When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.
Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. Virués-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SCOPA-PS Q2
 
Single Pre-Defined Value Selected
       
C10391
Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - uncertain contact other scale
SCOPAPSUncrtnContctOthScale
Scale assessing whether the participant felt uncertain around others in the past month
During the past month, have you felt uncertain in your contact with others?
Not at all;A little;quite a bit;very much;
Not at all;A little;quite a bit;very much;
Alphanumeric
When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.
Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. Virués-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SCOPA-PS Q3
 
Single Pre-Defined Value Selected
       
C10392
Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - problem partner family scale
SCOPAPSProbPrtnrFmlyScale
Scale assessing whether the participant had problems getting along with his partner, family or good friends during the past month
During the past month, have you had problems getting along with your partner, family or good friends?
Not at all;A little;quite a bit;very much;
Not at all;A little;quite a bit;very much;
Alphanumeric
When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.
Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. Virués-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SCOPA-PS Q4
 
Single Pre-Defined Value Selected
       
C10393
Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - sexual problem scale
SCOPAPSSexProbScale
Scale assessing whether the participant had problems in the area of sexuality in the past month
During the past month, have you had problems in the area of sexuality?
Not at all;A little;quite a bit;very much;
Not at all;A little;quite a bit;very much;
Alphanumeric
When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.
Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. Virués-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SCOPA-PS Q5
 
Single Pre-Defined Value Selected
       
C10394
Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - housebound scale
SCOPAPSHousebndScale
Scale assessing whether the participant felt more house-bound than he wanted to be in the past month
During the past month, have you felt more house-bound than you would wish to be?
Not at all;A little;quite a bit;very much;
Not at all;A little;quite a bit;very much;
Alphanumeric
When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.
Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. Virués-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SCOPA-PS Q6
 
Single Pre-Defined Value Selected
       
C10395
Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - other help scale
SCOPAPSthHelpScale
Scale assessing to what extent the participant felt he had to ask others for help during the last month
To what extent have you had the feeling that you have had to ask others for help too often during the past month?
Not at all;A little;quite a bit;very much;
Not at all;A little;quite a bit;very much;
Alphanumeric
When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.
Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. Virués-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SCOPA-PS Q7
 
Single Pre-Defined Value Selected
       
C10396
Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - isolate lonely scale
SCOPAPSIsolteLonlyScale
Scale assessing to what extent the participant felt lonely during the past month
To what extent have you felt isolated and lonely during the past month?
Not at all;A little;quite a bit;very much;
Not at all;A little;quite a bit;very much;
Alphanumeric
When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.
Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. Virués-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SCOPA-PS Q8
 
Single Pre-Defined Value Selected
       
C10397
Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - difficult conversation scale
SCOPAPSDiffcltConvoScale
Scale assessing whether the participant had difficulty when having a conversation during the past month
During the past month, have you had difficulty when having a conversation?
Not at all;A little;quite a bit;very much;
Not at all;A little;quite a bit;very much;
Alphanumeric
When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.
Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. Virués-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SCOPA-PS Q9
 
Single Pre-Defined Value Selected
       
C10398
Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - disease ashamed scale
SCOPAPSDiseaseAshamScale
Scale assessing the extent of which the participant felt ashamed of his disease during the past month
To what extent have you felt ashamed of your disease during the past month?
Not at all;A little;quite a bit;very much;
Not at all;A little;quite a bit;very much;
Alphanumeric
When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.
Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. Virués-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SCOPA-PS Q10
 
Single Pre-Defined Value Selected
       
C10399
Scales for Outcomes in Parkinson's Disease-Psychological (SCOPA-PS) - future concern scale
SCOPAPSFutreConcrnScale
Scale assessing participant's concern for the future
During the past month, have you been concerned about the future?
Not at all;A little;quite a bit;very much;
Not at all;A little;quite a bit;very much;
Alphanumeric
When answering this question, please think carefully about your personal situation during the past month, and consider to what extent the situation described actually posed a problem for you.
Marinus J, Visser M, Martinez-Martin P, et al. A short psychosocial Questionnaire for patients with Parkinson's disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-7. Martínez-Martin P, Carod-Artal FJ, da Silveira Ribeiro L, Ziomkowski S, Vargas AP, Kummer W, Mesquita HM. Longitudinal psychometric attributes, responsiveness, and importance of change: An approach using the SCOPA-Psychosocial questionnaire. Mov Disord. 2008;23:1516-23. Carod-Artal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord. 2007;22:91-8. Virués-Ortega J, Carod-Artal FJ, Serrano-Dueñas M, Ruiz-Galeano G, Meza-Rojas G, Velázquez C, Micheli F, Martínez-Martín P.Cross-Cultural Validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial Questionnaire (SCOPA-PS) in Four Latin American Countries. Value Health. 2009;12:385-391.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Scales for Outcomes in Parkinson's Disease-Psychosocial (SCOPA-PS)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SCOPA-PS Q11
 
Single Pre-Defined Value Selected
       
07-20-2019
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