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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Parkinson's Disease
Sub-Domain: Other Non-Motor
CRF: Quality of Life in Swallowing Disorders (SWAL-QOL)
Item count: 66 (66 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C10275
Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem indicator
SWALQOLSwllwProbInd
Scale assessing how true the following statement has been for the participant during the last month: Dealing with my swallowing problem is very difficult, as part of Quality of Life in Swallowing Disorders (SWAL-QOL).
Dealing with my swallowing problem is very difficult.
1;2;3;4;5;
Very much true;Quite a bit true;Somewhat true;A little true;Not at all true;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q1a
 
Single Pre-Defined Value Selected
       
C10276
Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem distraction indicator
SWALQOLSwllwProbDistrctnInd
Scale assessing how true the following statement has been for the participant during the last month: My swallowing problem is a major distraction in my life, as part of Quality of Life in Swallowing Disorders (SWAL-QOL).
My swallowing problem is a major distraction in my life.
1;2;3;4;5;
Very much true;Quite a bit true;Somewhat true;A little true;Not at all true;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q1b
 
Single Pre-Defined Value Selected
       
C10277
Quality of Life in Swallowing Disorders (SWAL-QOL) - eating importance indicator
SWALQOLEatngImprtncInd
Scale assessing how true the following statement has been for the participant during the last month: Most days, I don't care if I eat or not, as part of Quality of Life in Swallowing Disorders (SWAL-QOL).
Most days, I don't care if I eat or not.
1;2;3;4;5;
Very much true;Quite a bit true;Somewhat true;A little true;Not at all true;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q2a
 
Single Pre-Defined Value Selected
       
C10278
Quality of Life in Swallowing Disorders (SWAL-QOL) - eating longer indicator
SWALQOLEatngLngrInd
Scale assessing how true the following statement has been for the participant during the last month: It takes me longer to eat than other people, as part of Quality of Life in Swallowing Disorders (SWAL-QOL).
It takes me longer to eat than other people.
1;2;3;4;5;
Very much true;Quite a bit true;Somewhat true;A little true;Not at all true;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q2b
 
Single Pre-Defined Value Selected
       
C10279
Quality of Life in Swallowing Disorders (SWAL-QOL) - rare realization hunger indicator
SWALQOLRarRealztnHugrInd
Scale assessing how true the following statement has been for the participant during the last month: I'm rarely hungry anymore, as part of Quality of Life in Swallowing Disorders (SWAL-QOL).
I'm rarely hungry anymore.
1;2;3;4;5;
Very much true;Quite a bit true;Somewhat true;A little true;Not at all true;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q2c
 
Single Pre-Defined Value Selected
       
C10280
Quality of Life in Swallowing Disorders (SWAL-QOL) - long eating period indicator
SWALQOLLngEatngPerdInd
Scale assessing how true the following statement has been for the participant during the last month: It takes me forever to eat a meal. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
It takes me forever to eat a meal.
1;2;3;4;5;
Very much true;Quite a bit true;Somewhat true;A little true;Not at all true;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q2d
 
Single Pre-Defined Value Selected
       
C10281
Quality of Life in Swallowing Disorders (SWAL-QOL) - eating enjoyment indicator
SWALQOLEatngEnjmntInd
Scale assessing how true the following statement has been for the participant during the last month: I don't enjoy eating anymore. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
I don't enjoy eating anymore.
1;2;3;4;5;
Very much true;Quite a bit true;Somewhat true;A little true;Not at all true;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q2e
 
Single Pre-Defined Value Selected
       
C10282
Quality of Life in Swallowing Disorders (SWAL-QOL) - coughing problem indicator
SWALQOLCoughngProbInd
Scale assessing how true the following statement has been for the participant during the last month: Coughing. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
Coughing
1;2;3;4;5;
Almost always;Often;Sometimes;Hardly ever;Never;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q3a
 
Single Pre-Defined Value Selected
       
C10283
Quality of Life in Swallowing Disorders (SWAL-QOL) - choking food problem indicator
SWALQOLChokngFdProbInd
Scale assessing how true the following statement has been for the participant during the last month: Choking when you eat food. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
Choking when you eat food
1;2;3;4;5;
Almost always;Often;Sometimes;Hardly ever;Never;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q3b
 
Single Pre-Defined Value Selected
       
C10284
Quality of Life in Swallowing Disorders (SWAL-QOL) - choking liquid problem indicator
SWALQOLChockngLiqProbInd
Scale assessing how true the following statement has been for the participant during the last month: Choking when you take liquids. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
Choking when you take liquids
1;2;3;4;5;
Almost always;Often;Sometimes;Hardly ever;Never;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q3c
 
Single Pre-Defined Value Selected
       
C10285
Quality of Life in Swallowing Disorders (SWAL-QOL) - thick saliva phlegm problem indicator
SWALQOLThicSalvPhlgmProbInd
Scale assessing how true the following statement has been for the participant during the last month: Having thick saliva or phlegm. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
Having thick saliva or phlegm
1;2;3;4;5;
Almost always;Often;Sometimes;Hardly ever;Never;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q3d
 
Single Pre-Defined Value Selected
       
C10286
Quality of Life in Swallowing Disorders (SWAL-QOL) - gagging problem indicator
SWALQOLGagngProbInd
Scale assessing how true the following statement has been for the participant during the last month: Gagging. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
Gagging
1;2;3;4;5;
Almost always;Often;Sometimes;Hardly ever;Never;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q3e
 
Single Pre-Defined Value Selected
       
C10287
Quality of Life in Swallowing Disorders (SWAL-QOL) - drooling problem indicator
SWALQOLDrlngProbInd
Scale assessing how true the following statement has been for the participant during the last month: Drooling. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
Drooling
1;2;3;4;5;
Almost always;Often;Sometimes;Hardly ever;Never;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q3f
 
Single Pre-Defined Value Selected
       
C10288
Quality of Life in Swallowing Disorders (SWAL-QOL) - chewing problem indicator
SWALQOLChewngProbInd
Scale assessing how true the following statement has been for the participant during the last month: Problems Chewing. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
Problems Chewing
1;2;3;4;5;
Almost always;Often;Sometimes;Hardly ever;Never;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q3g
 
Single Pre-Defined Value Selected
       
C10289
Quality of Life in Swallowing Disorders (SWAL-QOL) - excess saliva phlegm problem indicator
SWALQOLExcsSalvPhlgmProbInd
Scale assessing how true the following statement has been for the participant during the last month: Having excess saliva or phlegm. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
Having excess saliva or phlegm
1;2;3;4;5;
Almost always;Often;Sometimes;Hardly ever;Never;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q3h
 
Single Pre-Defined Value Selected
       
C10290
Quality of Life in Swallowing Disorders (SWAL-QOL) - clear throat problem indicator
SWALQOLClrThrtProbInd
Scale assessing how true the following statement has been for the participant during the last month: Having to clear your throat. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
Having to clear your throat
1;2;3;4;5;
Almost always;Often;Sometimes;Hardly ever;Never;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q3i
 
Single Pre-Defined Value Selected
       
C10291
Quality of Life in Swallowing Disorders (SWAL-QOL) - food sticking throat problem indicator
SWALQOLFdStckngThrtProbInd
Scale assessing how true the following statement has been for the participant during the last month: Food sticking in your throat. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
Food sticking in your throat
1;2;3;4;5;
Almost always;Often;Sometimes;Hardly ever;Never;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q3j
 
Single Pre-Defined Value Selected
       
C10292
Quality of Life in Swallowing Disorders (SWAL-QOL) - food sticking mouth problem indicator
SWALQOLFdStckngMthProbInd
Scale assessing how true the following statement has been for the participant during the last month: Food sticking in your mouth. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
Food sticking in your mouth
1;2;3;4;5;
Almost always;Often;Sometimes;Hardly ever;Never;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q3k
 
Single Pre-Defined Value Selected
       
C10293
Quality of Life in Swallowing Disorders (SWAL-QOL) - food liquid dribble out problem indicator
SWALQOLFdLiqDrblOtProbInd
Scale assessing how true the following statement has been for the participant during the last month: Food or liquid dribbling out of your mouth. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
Food or liquid dribbling out of your mouth
1;2;3;4;5;
Almost always;Often;Sometimes;Hardly ever;Never;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q3l
 
Single Pre-Defined Value Selected
       
C10294
Quality of Life in Swallowing Disorders (SWAL-QOL) - food liquid fall out nose problem indicator
SWALQOLFdLiqFllOtNsProbInd
Scale assessing how true the following statement has been for the participant during the last month: Food or liquid coming out of your nose. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
Food or liquid coming out of your nose
1;2;3;4;5;
Almost always;Often;Sometimes;Hardly ever;Never;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q3m
 
Single Pre-Defined Value Selected
       
C10295
Quality of Life in Swallowing Disorders (SWAL-QOL) - coughing stuck food liquid out mouth problem indicator
SWALQOLCghStkFdLiqOtMthProbInd
Scale assessing how true the following statement has been for the participant during the last month: Coughing food or liquid out of your mouth when it gets stuck. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
Coughing food or liquid out of your mouth when it gets stuck
1;2;3;4;5;
Almost always;Often;Sometimes;Hardly ever;Never;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q3n
 
Single Pre-Defined Value Selected
       
C10296
Quality of Life in Swallowing Disorders (SWAL-QOL) - figuring out eating problem indicator
SWALQOLFigrngOtEatngProbInd
Scale assessing how true the following statement has been for the participant during the last month: Figuring out what I can and can't eat is a problem for me. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
Figuring out what I can and can't eat is a problem for me
1;2;3;4;5;
Strongly agree;Agree;Uncertain;Disagree;Strongly disagree;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q4a
 
Single Pre-Defined Value Selected
       
C10297
Quality of Life in Swallowing Disorders (SWAL-QOL) - difficult find food indicator
SWALQOLDifcltFndFdInd
Scale assessing how true the following statement has been for the participant during the last month: It is difficult to find foods that I both like and can eat. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
It is difficult to find foods that I both like and can eat.
1;2;3;4;5;
Strongly agree;Agree;Uncertain;Disagree;Strongly disagree;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q4b
 
Single Pre-Defined Value Selected
       
C10298
Quality of Life in Swallowing Disorders (SWAL-QOL) - people hard understanding problem indicator
SWALQOLPplHrdUndstndProbInd
Scale assessing how true the following statement has been for the participant during the last month: People have a hard time understanding me. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
People have a hard time understanding me.
1;2;3;4;5;
All of the time;Most of the time;Some of the time;A little of the time;None of the time;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q5a
 
Single Pre-Defined Value Selected
       
C10299
Quality of Life in Swallowing Disorders (SWAL-QOL) - difficult speak clear problem indicator
SWALQOLDifcltSpkClrProbInd
Scale assessing how true the following statement has been for the participant during the last month: It's been difficult for me to speak clearly. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
It's been difficult for me to speak clearly.
1;2;3;4;5;
All of the time;Most of the time;Some of the time;A little of the time;None of the time;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q5b
 
Single Pre-Defined Value Selected
       
C10300
Quality of Life in Swallowing Disorders (SWAL-QOL) - fear choke food problem indicator
SWALQOLFrChokFdProbInd
Scale assessing how true the following statement has been for the participant during the last month: I fear I may start choking when I eat food. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).
I fear I amy start choking when I eat food.
1;2;3;4;5;
Almost always;Often;Sometimes;Hardly ever;Never;
Numeric Values
Circle one number on each line
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Quality of Life in Swallowing Disorders (SWAL-QOL)
Other Non-Motor
Outcomes and End Points
SWAL-QOL Q6a
 
Single Pre-Defined Value Selected
       
07-21-2019
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