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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Parkinson's Disease
Sub-Domain: Other Non-Motor
CRF: Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD)
Item count: 7 (7 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C10416
Sialorrhea Clinical Scale for PD (SCS-PD) - day saliva score
SCSPDSalivScore
During the day, when do you feel there is more saliva in your mouth? As part of SCS-PD questionnaire.
During the day, when do you feel there is more saliva in your mouth?
0;1;2;3;
0=Never;1=At meal times;2=Throughout the day, not related to meal;3=All the time, even when I am asleep;
Numeric Values
Please read the question and try to answer on the basis of how you felt during the past week.
Evatt ML, Chaudhuri KR, Chou KL, Cubo E, Hinson V, Kompoliti K, Yang C, Poewe W, Rascol O, Sampaio C, Stebbins GT, Goetz CG. Dysautonomia rating scales in Parkinson's disease: sialorrhea, dysphagia, and constipation--critique and recommendations by movement disorders task force on rating scales for Parkinson's disease. Mov Disord2009 Apr 15; 24(5):635-46. Perez Lloret S, Piran Arce G, Rossi M, Caivano Nemet ML, Salsamendi P, Merello M. Validation of a new scale for the evaluation of sialorrhea in patients with Parkinson's disease. Movement Disorders2007 Jan; 22(1):107-11.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD)
Other Non-Motor
Outcomes and End Points
SCS-PD QA
 
Single Pre-Defined Value Selected
       
C10417
Sialorrhea Clinical Scale for PD (SCS-PD) - sleep saliva score
SCSPDSlpSalivScore
When you are asleep, how much saliva is there in your mouth? As part of SCS-PD questionnaire.
When you are asleep, how much saliva is there in your mouth?
0;1;2;3;
0=I don’t notice an increase in saliva;1=I notice increased amounts of saliva in my mouth, but my pillow doesn’t get wet;2=My pillow gets wet;3=My pillow and other bedclothes get wet;
Numeric Values
Please read the question and try to answer on the basis of how you felt during the past week.
Evatt ML, Chaudhuri KR, Chou KL, Cubo E, Hinson V, Kompoliti K, Yang C, Poewe W, Rascol O, Sampaio C, Stebbins GT, Goetz CG. Dysautonomia rating scales in Parkinson's disease: sialorrhea, dysphagia, and constipation--critique and recommendations by movement disorders task force on rating scales for Parkinson's disease. Mov Disord2009 Apr 15; 24(5):635-46. Perez Lloret S, Piran Arce G, Rossi M, Caivano Nemet ML, Salsamendi P, Merello M. Validation of a new scale for the evaluation of sialorrhea in patients with Parkinson's disease. Movement Disorders2007 Jan; 22(1):107-11.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD)
Other Non-Motor
Outcomes and End Points
SCS-PD QB
 
Single Pre-Defined Value Selected
       
C10418
Sialorrhea Clinical Scale for PD (SCS-PD) - awake saliva score
SCSPDAwkSalivScore
While you are awake, as part of SCS-PD Questionnaire
While you are awake
0;1;2;3;
0=I don’t drool;1=Saliva wets my lips;2=Saliva accumulates on my lips, but I don’t drool;3=I drool;
Numeric Values
Please read the question and try to answer on the basis of how you felt during the past week.
Evatt ML, Chaudhuri KR, Chou KL, Cubo E, Hinson V, Kompoliti K, Yang C, Poewe W, Rascol O, Sampaio C, Stebbins GT, Goetz CG. Dysautonomia rating scales in Parkinson's disease: sialorrhea, dysphagia, and constipation--critique and recommendations by movement disorders task force on rating scales for Parkinson's disease. Mov Disord2009 Apr 15; 24(5):635-46. Perez Lloret S, Piran Arce G, Rossi M, Caivano Nemet ML, Salsamendi P, Merello M. Validation of a new scale for the evaluation of sialorrhea in patients with Parkinson's disease. Movement Disorders2007 Jan; 22(1):107-11.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD)
Other Non-Motor
Outcomes and End Points
SCS-PD QC
 
Single Pre-Defined Value Selected
       
C10419
Sialorrhea Clinical Scale for PD (SCS-PD) - speech impairment saliva score
SCSPDSpchImprmntSalivScore
Does accumulation of saliva in your mouth impair your speech? As part of SCS-PD questionnaire.
Does accumulation of saliva in your mouth impair your speech?
0;1;2;3;
0=No;1=I must swallow frequently to avoid difficulties;2=I have trouble speaking;3=I can’t speak at all;
Numeric Values
Please read the question and try to answer on the basis of how you felt during the past week.
Evatt ML, Chaudhuri KR, Chou KL, Cubo E, Hinson V, Kompoliti K, Yang C, Poewe W, Rascol O, Sampaio C, Stebbins GT, Goetz CG. Dysautonomia rating scales in Parkinson's disease: sialorrhea, dysphagia, and constipation--critique and recommendations by movement disorders task force on rating scales for Parkinson's disease. Mov Disord2009 Apr 15; 24(5):635-46. Perez Lloret S, Piran Arce G, Rossi M, Caivano Nemet ML, Salsamendi P, Merello M. Validation of a new scale for the evaluation of sialorrhea in patients with Parkinson's disease. Movement Disorders2007 Jan; 22(1):107-11.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD)
Other Non-Motor
Outcomes and End Points
SCS-PD QD
 
Single Pre-Defined Value Selected
       
C10420
Sialorrhea Clinical Scale for PD (SCS-PD) - eating impairment saliva score
SCSPDEatngImprmntSalivScore
Does accumulation of saliva in your mouth impair your eating ability? As part of SCS-PD questionnaire.
Does accumulation of saliva in your mouth impair your eating ability?
0;1;2;3;
0=No;1=I must swallow frequently to avoid difficulties;2=I have trouble eating;3=I can’t eat at all;
Numeric Values
Please read the question and try to answer on the basis of how you felt during the past week.
Evatt ML, Chaudhuri KR, Chou KL, Cubo E, Hinson V, Kompoliti K, Yang C, Poewe W, Rascol O, Sampaio C, Stebbins GT, Goetz CG. Dysautonomia rating scales in Parkinson's disease: sialorrhea, dysphagia, and constipation--critique and recommendations by movement disorders task force on rating scales for Parkinson's disease. Mov Disord2009 Apr 15; 24(5):635-46. Perez Lloret S, Piran Arce G, Rossi M, Caivano Nemet ML, Salsamendi P, Merello M. Validation of a new scale for the evaluation of sialorrhea in patients with Parkinson's disease. Movement Disorders2007 Jan; 22(1):107-11.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD)
Other Non-Motor
Outcomes and End Points
SCS-PD QE
 
Single Pre-Defined Value Selected
       
C10421
Sialorrhea Clinical Scale for PD (SCS-PD) - drool day score
SCSPDDroolDayScore
How many times do you drool during the daytime? As part of SCS-PD questionnaire.
How many times do you drool during the daytime?
0;1;2;3;
0=Never;1=Not more than 3 times;2=Often. I have to carry a handkerchief with me all the time;3=Permanently;
Numeric Values
Please read the question and try to answer on the basis of how you felt during the past week.
Evatt ML, Chaudhuri KR, Chou KL, Cubo E, Hinson V, Kompoliti K, Yang C, Poewe W, Rascol O, Sampaio C, Stebbins GT, Goetz CG. Dysautonomia rating scales in Parkinson's disease: sialorrhea, dysphagia, and constipation--critique and recommendations by movement disorders task force on rating scales for Parkinson's disease. Mov Disord2009 Apr 15; 24(5):635-46. Perez Lloret S, Piran Arce G, Rossi M, Caivano Nemet ML, Salsamendi P, Merello M. Validation of a new scale for the evaluation of sialorrhea in patients with Parkinson's disease. Movement Disorders2007 Jan; 22(1):107-11.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD)
Other Non-Motor
Outcomes and End Points
SCS-PD QF
 
Single Pre-Defined Value Selected
       
C10422
Sialorrhea Clinical Scale for PD (SCS-PD) - social saliva score
SCSPDSocSalivScore
When you go out or on social occasions, does saliva accumulation bother you? As part of SCS-PD questionnaire.
When you go out or on social occasions, does saliva accumulation bother you?
0;1;2;3;
0=No;1=I notice an accumulation, but it does not bother me;2=I realize other people notice it, but I can control the situation (for example, with a handkerchief);3=I have stopped attending social meetings;
Numeric Values
Please read the question and try to answer on the basis of how you felt during the past week.
Evatt ML, Chaudhuri KR, Chou KL, Cubo E, Hinson V, Kompoliti K, Yang C, Poewe W, Rascol O, Sampaio C, Stebbins GT, Goetz CG. Dysautonomia rating scales in Parkinson's disease: sialorrhea, dysphagia, and constipation--critique and recommendations by movement disorders task force on rating scales for Parkinson's disease. Mov Disord2009 Apr 15; 24(5):635-46. Perez Lloret S, Piran Arce G, Rossi M, Caivano Nemet ML, Salsamendi P, Merello M. Validation of a new scale for the evaluation of sialorrhea in patients with Parkinson's disease. Movement Disorders2007 Jan; 22(1):107-11.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD)
Other Non-Motor
Outcomes and End Points
SCS-PD QG
 
Single Pre-Defined Value Selected
       
07-22-2019
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