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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Parkinson's Disease
Sub-Domain: Motor Function
CRF: Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Item count: 83 (83 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C09958
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - primary source information type
MDSUPDRSPrimrySrcInfoTyp
The type as related to the primary source of information for the participant's/subject's information, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
Primary source of information
Patient;Caregiver;Patient and Caregiver in Equal Proportion;
Patient;Caregiver;Patient and Caregiver in Equal Proportion;
Alphanumeric
To be read to the patient: I am going to ask you six questions about behaviors that you may or may not experience. Some questions concern common problems and some concern uncommon ones. If you have a problem in one of the areas, please choose the best response that deScoreibes how you have felt MOST OF THE TIME during the PAST WEEK. If you are not bothered by a problem, you can simply respond NO. I am trying to be thorough, so I may ask questions that have nothing to do with you.
URL: http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q1a
 
Single Pre-Defined Value Selected
       
C09959
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - recent cognitive impairment score
MDSUPDRSRcntCogImprmntScore
Score for the participant's/subject's cognitive impairment including the cognitive slowing, impaired reasoning, memory loss, deficits in attention and orientation and how it impacts the activities of daily living, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
COGNITIVE IMPAIRMENT
0;1;2;3;4;
Normal: No cognitive impairment;Slight: Impairment appreciated by patient or caregiver with no concrete interference with the patient’s ability to carry out normal activities and social interactions;Mild: Clinically evident cognitive dysfunction, but only minimal interference with the patient’s ability to carry out normal activities and social interactions;Moderate: Cognitive deficits interfere with but do not preclude the patient’s ability to carry out normal activities and social interactions;Severe: Cognitive dysfunction precludes the patient’s ability to carry out normal activities and social interactions.;
Numeric Values
Instructions to examiner: Consider all types of altered level of cognitive function including cognitive slowing, impaired reasoning, memory loss, deficits in attention and orientation. Rate their impact on activities of daily living as perceived by the patient and/or caregiver. Instructions to patients [and caregiver]: Over the past week have you had problems remembering things, following conversations, paying attention, thinking clearly, or finding your way around the house or in town? [If yes, examiner asks patient or caregiver to elaborate and probes for information]
URL: http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q1.1
 
Single Pre-Defined Value Selected
       
C09960
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - hallucination psychosis score
MDSUPDRSHallucPsychosScore
Score of the participant's/subject's hallucination and psychosis considering both illusions and hallucinations, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
HALLUCINATIONS AND PSYCHOSIS
0;1;2;3;4;
Normal: No hallucinations or psychotic behavior;Slight: Illusions or non-formed hallucinations, but patient recognizes them without loss of insight;Mild: Formed hallucinations independent of environmental stimuli. No loss of insight;Moderate: Formed hallucinations with loss of insight;Severe: Patient has delusions or paranoia.;
Numeric Values
Instructions to examiner: Consider both illusions (misinterpretations of real stimuli) and hallucinations (spontaneous false sensations). Consider all major sensory domains (visual, auditory, tactile, olfactory and gustatory). Determine presence of unformed (for example sense of presence or fleeting false impressions) as well as formed (fully developed and detailed) sensations. Rate the patients insight into hallucinations and identify delusions and psychotic thinking. Instructions to patients [and caregiver]: Over the past week have you seen, heard, smelled or felt things that were not really there? [If yes, examiner asks patient or caregiver to elaborate and probes for information]
URL: http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q1.2
 
Single Pre-Defined Value Selected
       
C09961
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - depress mood score
MDSUPDRSDrpssMoodScore
Score of the participant's/subject's depressed mood considering low mood, sadness, hopelessness, feelings of emptiness or loss of enjoyment, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
DEPRESSED MOOD
0;1;2;3;4;
0= Normal: No depressed mood;Slight: Episodes of depressed mood that are not sustained for more than one day at a time. No interference with patient’s ability to carry out normal activities;Mild: Depressed mood that is sustained over days, but without interference with normal activities and social interactions.;Moderate: Depressed mood that interferes with, but does not preclude, the patient’s ability to carry out normal activities and social interactions.;Severe: Depressed mood precludes patient’s ability to carry out normal activities and social interactions.;
Numeric Values
Instructions to examiner: Consider low mood, sadness, hopelessness, feelings of emptiness or loss of enjoyment. Determine their presence and duration over the past week and rate their interference with the patient’s ability to carry out daily routines and engage in social interactions. Instruction to the patient (and caregiver): Over the past week have you felt low, sad, hopeless or unable to enjoy things? If yes, was this feeling for longer than one day at a time? Did it make it difficult for you carry out your usual activities or to be with people? If yes, examiner asks patient or caregiver to elaborate and probes for information]
URL: http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q1.3
 
Single Pre-Defined Value Selected
       
C09962
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - anxious mood score
MDSUPDRSAnxsMoodScore
Score for the participant's/subject's anxious mood over the past week determining if he or she felt nervous, tense, worried or anxious, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
ANXIOUS MOOD
0;1;2;3;4;
Normal: No anxious feelings;Slight: Anxious feelings present but not sustained for more than one day at a time. No interference with patient’s ability to carry out normal activities and social interactions;Mild: Anxious feelings are sustained over more than one day at a time, but without interference with patient’s ability to carry out normal activities and social interactions;Moderate: Anxious feelings interfere with, but do not preclude, the patient’s ability to carry out normal activities and social interactions;Severe: Anxious feelings preclude patient’s ability to carry out normal activities and social interactions.;
Numeric Values
Instructions to examiner: Determine nervous, tense, worried or anxious feelings (including panic attacks) over the past week and rate their duration and interference with the patient’s ability to carry out daily routines and engage in social interactions. Instructions to patients [and caregiver]: Over the past week have you felt nervous, worried or tense? If yes, was this feeling for longer than one day at a time? Did it make it difficult for you to follow your usual activities or to be with other people? [If yes, examiner asks patient or caregiver to elaborate and probes for information.]
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q1.4
 
Single Pre-Defined Value Selected
       
C09963
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - apathy score
MDSUPDRSApathyScore
Score for the participant's/subject's apathy, considering the level of spontaneous activity, assertiveness, motivation and initiative and how it affects the performance of daily routines, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
APATHY
0;1;2;3;4;
Normal: No apathy;Slight: Apathy appreciated by patient and/or caregiver, but no interference with daily activities and social interactions;Mild: Apathy interferes with isolated activities and social interactions;Moderate: Apathy interferes with most activities and social interactions;Severe: Passive and withdrawn, complete loss of initiative.;
Numeric Values
Instructions to examiner: Consider level of spontaneous activity, assertiveness, motivation and initiative and rate the impact of reduced levels on performance of daily routines and social interactions. Here the examiner should attempt to distinguish between apathy and similar symptoms that are best explained by depression. Instructions to patients (and caregiver): Over the past week, have you felt indifferent to doing activities or being with people? If yes, examiner asks patient or caregiver to elaborate and probes for information.]
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q1.5
 
Single Pre-Defined Value Selected
       
C09964
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - dopamine dysregulation syndrome score
MDSUPDRSDopmnDysregSyndScore
Score for the participant's/subject's features of dopamine dysregulation syndrome considering involvement in a variety of activities including atypical or excessive gambling (e.g. casinos or lottery tickets), atypical or excessive sexual drive or interests (e.g., unusual interest in pornography, masturbation, sexual demands on partner), other repetitive activities (e.g. hobbies, dismantling objects, sorting or organizing), or taking extra non-prescribed medication for non-physical reasons (i.e., addictive behavior), as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS).
FEATURES OF DOPAMINE DYSREGULATION SYNDROME
0;1;2;3;4;
Normal: No problems present;Slight: Problems are present but usually do not cause any difficulties for the patient or family/caregiver;Mild: Problems are present and usually cause a few difficulties in the patient’s personal and family life;Moderate: Problems are present and usually cause a lot of difficulties in the patient’s personal and family life;Severe: Problems are present and preclude the patient’s ability to carry out normal activities or social interactions or to maintain previous standards in personal and family life.;
Numeric Values
Give patient examples such as gambling, cleaning, using the computer, taking extra medicine, obsessing about food or sex, all depending on the patients.
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q1.6
 
Single Pre-Defined Value Selected
       
C09965
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - questionnaire information provider type
MDSUPDRSQstnnreInfoProvdrTyp
The type as related to the provider of the participant's/subject's information, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
Who is filling out this questionnaire
Patient;Caregiver;Patient and Caregiver in Equal Proportion;
Patient;Caregiver;Patient and Caregiver in Equal Proportion;
Alphanumeric
Refer to instrument for additional instructions
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Source of patient questionnaire
 
Single Pre-Defined Value Selected
       
C09966
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - sleep problem score
MDSUPDRSSleepProbScore
Score for the participant's/subject's ability to sleep considering how rested he or she felt waking up in the morning, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
SLEEP PROBLEMS
0;1;2;3;4;
Normal: No problems;Slight: Sleep problems are present but usually do not cause trouble getting a full night of sleep;Mild: Sleep problems usually cause some difficulties getting a full night of sleep;Moderate: Sleep problems cause a lot of difficulties getting a full night of sleep, but I still usually sleep for more than half the night;Severe: I usually do not sleep for most of the night.;
Numeric Values
Consider how rested you felt after waking up in the morning.
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q1.7
 
Single Pre-Defined Value Selected
       
C09967
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - daytime sleepiness score
MDSUPDRSDaytmSleepScore
Score for the participant's/subject's daytime sleepiness level , as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
DAYTIME SLEEPINESS
0;1;2;3;4;
Normal: No daytime sleepiness.;Slight: Daytime sleepiness occurs but I can resist and I stay awake;Mild: Sometimes I fall asleep when alone and relaxing. For example, while reading or watching TV;Moderate: I sometimes fall asleep when I should not. For example, while eating or talking with other people;Severe: I often fall asleep when I should not. For example, while eating or talking with other people.;
Numeric Values
Refer to instrument for additional instructions
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q1.8
 
Single Pre-Defined Value Selected
       
C09968
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - pain other sensations score
MDSUPDRSPainOthrSensScore
Score for the participant's/subject's level of pain and other sensations, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
PAIN AND OTHER SENSATIONS
0;1;2;3;4;
Normal: No uncomfortable feelings.;Slight: I have these feelings. However, I can do things and be with other people without difficulty;Mild: These feelings cause some problems when I do things or am with other people;Moderate: These feelings cause a lot of problems, but they do not stop me from doing things or being with other people;Severe: These feelings stop me from doing things or being with other people.;
Numeric Values
Refer to instrument for additional instructions
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q1.9
 
Single Pre-Defined Value Selected
       
C09969
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - urinary problem score
MDSUPDRSUrnryProbScore
Score for the participant's/subject's degree of urinary problems (e.g. urgent need to urinate, a need to urinate too often, or urine accidents), as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
URINARY PROBLEMS
0;1;2;3;4;
Normal: No urine control problems;Slight: I need to urinate often or urgently. However, these problems do not cause difficulties with my daily activities;Mild: Urine problems cause some difficulties with my daily activities. However, I do not have urine accidents;Moderate: Urine problems cause a lot of difficulties with my daily activities, including urine accidents;Severe: I cannot control my urine and use a protective garment or have a bladder tube.;
Numeric Values
Refer to instrument for additional instructions
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q1.10
 
Single Pre-Defined Value Selected
       
C09970
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - constipation problem score
MDSUPDRSConstipProbScore
Score for the participant's/subject's level of constipation, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
CONSTIPATION PROBLEMS
0;1;2;3;4;
Normal: No constipation;Slight: I have been constipated. I use extra effort to move my bowels. However, this problem does not disturb my activities or my being comfortable;Mild: Constipation causes me to have some troubles doing things or being comfortable;Moderate: Constipation causes me to have a lot of trouble doing things or being comfortable. However, it does not stop me from doing anything;Severe: I usually need physical help from someone else to empty my bowels.;
Numeric Values
Refer to instrument for additional instructions
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q1.11
 
Single Pre-Defined Value Selected
       
C09971
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - light headedness on stand score
MDSUPDRSLiteHeadStndngScore
Score for the participant's/subject's level of light headedness when standing, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
LIGHT HEADEDNESS ON STANDING
0;1;2;3;4;
Normal: No dizzy or foggy feelings;Slight: Dizzy or foggy feelings occur. However, they do not cause me troubles doing things;Mild: Dizzy or foggy feelings cause me to hold on to something, but I do not need to sit or lie back down;Moderate: Dizzy or foggy feelings cause me to sit or lie down to avoid fainting or falling;Severe: Dizzy or foggy feelings cause me to fall or faint.;
Numeric Values
Refer to instrument for additional instructions
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q1.12
 
Single Pre-Defined Value Selected
       
C09972
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - fatigue score
MDSUPDRSFatigueScore
Score for the participant's/subject's level of fatigue, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
FATIGUE
0;1;2;3;4;
Normal: No fatigue;Slight: Fatigue occurs. However it does not cause me troubles doing things or being with people;Mild: Fatigue causes me some troubles doing things or being with people;Moderate: Fatigue causes me a lot of troubles doing things or being with people. However, it does not stop me from doing anything;Severe: Fatigue stops me from doing things or being with people.;
Numeric Values
Refer to instrument for additional instructions
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q1.13
 
Single Pre-Defined Value Selected
       
C09973
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - speech score
MDSUPDRSSpeechScore
Score for the participant's/subject's level of speech, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
SPEECH
0;1;2;3;4;
Normal: Not at all (no problems);Slight: My speech is soft, slurred or uneven, but it does not cause others to ask me to repeat myself;Mild: My speech causes people to ask me to occasionally repeat myself, but not everyday;Moderate: My speech is unclear enough that others ask me to repeat myself every day even though most of my speech is understood;Severe: Most or all of my speech cannot be understood.;
Numeric Values
Refer to instrument for additional instructions
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q2.1
 
Single Pre-Defined Value Selected
       
C09974
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - saliva and drool score
MDSUPDRSSlivaDroolScore
Score for the participant's/subject's ability to control saliva and drool, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
SALIVA AND DROOLING
0;1;2;3;4;
Normal: Not at all (no problems);Slight: I have too much saliva, but do not drool;Mild: I have some drooling during sleep, but none when I am awake;Moderate: I have some drooling when I am awake, but I usually do not need tissues or a handkerchief;Severe: I have so much drooling that I regularly need to use tissues or a handkerchief to protect my clothes.;
Numeric Values
Refer to instrument for additional instructions
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q2.2
 
Single Pre-Defined Value Selected
       
C09975
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - chew swallow score
MDSUPDRSChwngSwllwngScore
Score for the participant's/subject's ability to chew and swallow food, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
CHEWING AND SWALLOWING
0;1;2;3;4;
Normal: No problems;Slight: I am aware of slowness in my chewing or increased effort at swallowing, but I do not choke or need to have my food specially prepared;Mild: I need to have my pills cut or my food specially prepared because of chewing or swallowing problems, but I have not choked over the past week;Moderate. I choked at least once in the past week;Severe: Because of chewing and swallowing problems, I need a feeding tube.;
Numeric Values
Refer to instrument for additional instructions
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q2.3
 
Single Pre-Defined Value Selected
       
C09976
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - eat task score
MDSUPDRSEatingTskScore
Score for the participant's/subject's ability to eat and handle food and utensils, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
EATING TASKS
0;1;2;3;4;
Normal: Not at all (no problems);Slight: I am slow, but I do not need any help handling my food and have not had food spills while eating;Mild: I am slow with my eating and have occasional food spills. I may need help with a few tasks such as cutting meat;Moderate: I need help with many eating tasks but can manage some alone;Severe: I need help for most or all eating tasks.;
Numeric Values
Refer to instrument for additional instructions
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q2.4
 
Single Pre-Defined Value Selected
       
C09977
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - dress score
MDSUPDRSDressingScore
Score for the participant's/subject's ability to dress himself or herself, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
DRESSING
0;1;2;3;4;
Normal: Not at all (no problems);Slight: I am slow but I do not need help;Mild: I am slow and need help for a few dressing tasks (buttons, bracelets);Moderate: I need help for many dressing tasks;Severe: I need help for most or all dressing tasks;
Numeric Values
Refer to instrument for additional instructions
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q2.5
 
Single Pre-Defined Value Selected
       
C09978
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - hygiene score
MDSUPDRSHygieneScore
Score for the participant's/subject's level of hygiene, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
HYGIENE
0;1;2;3;4;
Normal: Not at all (no problems);Slight: I am slow but I do not need any help;Mild: I need someone else to help me with some hygiene tasks;Moderate: I need help for many hygiene tasks;Severe: I need help for most or all of my hygiene tasks;
Numeric Values
Refer to instrument for additional instructions
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q2.6
 
Single Pre-Defined Value Selected
       
C09979
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - handwrite score
MDSUPDRSHandwritingScore
Score for the participant's/subject's handwriting abilities, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
HANDWRITING
0;1;2;3;4;
Normal: Not at all (no problems);Slight: My writing is slow, clumsy or uneven, but all words are clear;Mild: Some words are unclear and difficult to read;Moderate: Many words are unclear and difficult to read;Severe: Most or all words cannot be read.;
Numeric Values
Refer to instrument for additional instructions
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q2.7
 
Single Pre-Defined Value Selected
       
C09980
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - hobby other activity score
MDSUPDRSHobbieOthrActScore
Score for the participant's/subject's ability to perform hobbies or other activities, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
DOING HOBBIES AND OTHER ACTIVITES
0;1;2;3;4;
Normal: Not at all (no problems);Slight: I am a bit slow but do these activities easily;Mild: I have some difficulty doing these activities;Moderate: I have major problems doing these activities, but still do most;Severe: I am unable to do most or all of these activities;
Numeric Values
Refer to instrument for additional instructions
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q2.8
 
Single Pre-Defined Value Selected
       
C09981
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - turn bed score
MDSUPDRSTurngBedScore
Score for the participant's/subject's ability to turn in bed, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
Turning in bed and adjusting bed clothes
0;1;2;3;4;
Normal: Not at all (no problems);Slight: I have a bit of trouble turning, but I do not need any help;Mild I have a lot of trouble turning and need occasional help from someone else;Moderate: To turn over I often need help from someone else;Severe: I am unable to turn over without help from someone else;
Numeric Values
Refer to instrument for additional instructions
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q2.9
 
Single Pre-Defined Value Selected
       
C09982
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - tremor score
MDSUPDRSTremorScore
Score for the participant's/subject's level of shaking or tremor, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
TREMOR
0;1;2;3;4;
Normal: Not at all. I have no shaking or tremor;Slight: Shaking or tremor occurs but does not cause problems with any activities;Mild: Shaking or tremor causes problems with only a few activities;Moderate: Shaking or tremor causes problems with many of my daily activities;Severe: Shaking or tremor causes problems with most or all activities;
Numeric Values
Refer to instrument for additional instructions
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q2.10
 
Single Pre-Defined Value Selected
       
C09983
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - get out bed car deep chair score
MDSUPDRSGttngOutBedScore
Score for the participant's/subject's ability to get out of bed, a car, or a deep chair, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)
GETTING OUT OF BED A CAR OR A DEEP CHAIR
0;1;2;3;4;
Normal: Not at all (no problems);Slight: I am slow or awkward, but I usually can do it on my first try;Mild: I need more than one try to get up or need occasional help;Moderate: I sometimes need help to get up, but most times I can still do it on my own;Severe: I need help most or all of the time;
Numeric Values
Refer to instrument for additional instructions
URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf
Adult
Core
3.0
7/22/2013
Aliases for variable name not defined
Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)
Motor Function
Outcomes and End Points
MDS UPDRS Q2.11
 
Single Pre-Defined Value Selected
       
07-21-2019
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