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CDE ID | CDE Name | Variable Name | Definition / Description | Question Text | Permissible Value | Description | Data Type | Instructions | References | Population | Classification (e.g., Core) | Version # | Version Date | Aliases for Variable Name | CRF Module / Guideline | © or TM | Sub-Domain | Domain | Previous Title | Size | Input Restrictions | Min Value | Max Value | Measurement Type | LOINC ID | SNOMED | caDSR ID | CDISC ID |
C19704 | Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Stiffness prior day assessment indicator | NDMIVRStiffnsPrDayAssInd | Indicator of stiffness felt within the last 24 hours | Have you had stiffness within the last 24 hours? | Yes;No; | Yes;No; | Alphanumeric | Choose only one. Indicate if stiffness was felt within the last 24 hours | Statland JM, Wang Y, Richesson R, Bundy B, Herbelin L, Gomes J, Trivedi J et al. An interactive voice response diary for patients with non-dystrophic myotonia. Muscle & Nerve, Jul;44 (1): 30-5, 2011. | Adult;Pediatric | Exploratory | 1.0 | 2/2/2015 | Aliases for variable name not defined | Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary | | Other Clinical Data | Assessments and Examinations | | | Single Pre-Defined Value Selected | | | | | | | |
C19705 | Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Stiffness prior day assessment scale | NDMIVRStiffnsPrDayAssScl | Scale of amount of stiffness within the last 24 hours | If YES, on average, please rate your amount of stiffness from 1-9 with 1 being minimal and 9 being the worst stiffness you ever have. | 1;2;3;4;5;6;7;8;9; | 1=minimal amount of stiffness;2;3;4;5;6;7;8;9=worst stiffness felt; | Alphanumeric | Choose only one. Record the amount of stiffness felt in the last 24 hours using a scale from 1-9. | Statland JM, Wang Y, Richesson R, Bundy B, Herbelin L, Gomes J, Trivedi J et al. An interactive voice response diary for patients with non-dystrophic myotonia. Muscle & Nerve, Jul;44 (1): 30-5, 2011. | Adult;Pediatric | Exploratory | 1.0 | 2/2/2015 | Aliases for variable name not defined | Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary | | Other Clinical Data | Assessments and Examinations | | | Single Pre-Defined Value Selected | | | | | | | |
C19706 | Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Pain prior day assessment indicator | NDMIVRPainPrDayAssInd | Indicator of pain felt within the last 24 hours | Have you had pain within the last 24 hours? | Yes;No; | Yes;No; | Alphanumeric | Choose only one. Indicate if pain was felt within the last 24 hours | Statland JM, Wang Y, Richesson R, Bundy B, Herbelin L, Gomes J, Trivedi J et al. An interactive voice response diary for patients with non-dystrophic myotonia. Muscle & Nerve, Jul;44 (1): 30-5, 2011. | Adult;Pediatric | Exploratory | 1.0 | 2/2/2015 | Aliases for variable name not defined | Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary | | Other Clinical Data | Assessments and Examinations | | | Single Pre-Defined Value Selected | | | | | | | |
C19707 | Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Pain prior day assessment scale | NDMIVRPainPrDayAssScl | Scale of amount of pain within the last 24 hours | If YES, on average, please rate your amount of pain from 1-9 with 1 being minimal and 9 being the worst pain you ever have | 1;2;3;4;5;6;7;8;9; | 1=minimal amount of pain;2;3;4;5;6;7;8;9=worst pain felt; | Alphanumeric | Choose only one. Record the amount of pain felt in the last 24 hours using a scale from 1-9. | Statland JM, Wang Y, Richesson R, Bundy B, Herbelin L, Gomes J, Trivedi J et al. An interactive voice response diary for patients with non-dystrophic myotonia. Muscle & Nerve, Jul;44 (1): 30-5, 2011. | Adult;Pediatric | Exploratory | 1.0 | 2/2/2015 | Aliases for variable name not defined | Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary | | Other Clinical Data | Assessments and Examinations | | | Single Pre-Defined Value Selected | | | | | | | |
C19708 | Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Weakness prior day assessment indicator | NDMIVRWeakPrDayAssInd | Indicator of weakness felt within the last 24 hours | Have you had weakness within the last 24 hours? | Yes;No; | Yes;No; | Alphanumeric | Choose only one. Indicate if weakness was felt within the last 24 hours | Statland JM, Wang Y, Richesson R, Bundy B, Herbelin L, Gomes J, Trivedi J et al. An interactive voice response diary for patients with non-dystrophic myotonia. Muscle & Nerve, Jul;44 (1): 30-5, 2011. | Adult;Pediatric | Exploratory | 1.0 | 2/2/2015 | Aliases for variable name not defined | Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary | | Other Clinical Data | Assessments and Examinations | | | Single Pre-Defined Value Selected | | | | | | | |
C19709 | Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Weakness prior day assessment scale | NDMIVRWeakPrDayAssScl | Scale of amount of weakness within the last 24 hours | If YES, on average, please rate your amount of weakness from 1-9 with 1 being minimal and 9 being the worst weakness you ever have | 1;2;3;4;5;6;7;8;9; | 1=minimal amount of weakness;2;3;4;5;6;7;8;9=worst weakness felt; | Alphanumeric | Choose only one. Record the amount of weakness felt in the last 24 hours using a scale from 1-9. | Statland JM, Wang Y, Richesson R, Bundy B, Herbelin L, Gomes J, Trivedi J et al. An interactive voice response diary for patients with non-dystrophic myotonia. Muscle & Nerve, Jul;44 (1): 30-5, 2011. | Adult;Pediatric | Exploratory | 1.0 | 2/2/2015 | Aliases for variable name not defined | Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary | | Other Clinical Data | Assessments and Examinations | | | Single Pre-Defined Value Selected | | | | | | | |
C19710 | Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Fatique prior day assessment indicator | NDMIVRFatiguePrDayAssInd | Indicator of tiredness or fatigue within the last 24 hours | Have you had tiredness/fatigue within the last 24 hours? | Yes;No; | Yes;No; | Alphanumeric | Choose only one. Indicate if tiredness/fatigue was felt within the last 24 hours | Statland JM, Wang Y, Richesson R, Bundy B, Herbelin L, Gomes J, Trivedi J et al. An interactive voice response diary for patients with non-dystrophic myotonia. Muscle & Nerve, Jul;44 (1): 30-5, 2011. | Adult;Pediatric | Exploratory | 1.0 | 2/2/2015 | Aliases for variable name not defined | Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary | | Other Clinical Data | Assessments and Examinations | | | Single Pre-Defined Value Selected | | | | | | | |
C19711 | Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Fatique prior day assessment scale | NDMIVRFatiguePrDayAssScl | Scale of amount of tiredness or fatigue within the last 24 hours | If YES, on average, please rate your amount of tiredness or fatigue from 1-9 with 1 being minimal and 9 being the worst tiredness/fatigue you ever have | 1;2;3;4;5;6;7;8;9; | 1=minimal amount of tiredness/fatigue;2;3;4;5;6;7;8;9=worst tiredness/fatigue felt; | Alphanumeric | Choose only one. Record the amount of tiredness or fatigue felt in the last 24 hours using a scale from 1-9. | Statland JM, Wang Y, Richesson R, Bundy B, Herbelin L, Gomes J, Trivedi J et al. An interactive voice response diary for patients with non-dystrophic myotonia. Muscle & Nerve, Jul;44 (1): 30-5, 2011. | Adult;Pediatric | Exploratory | 1.0 | 2/2/2015 | Aliases for variable name not defined | Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary | | Other Clinical Data | Assessments and Examinations | | | Single Pre-Defined Value Selected | | | | | | | |