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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Myotonic Muscular Dystrophy
Sub-Domain: Other Clinical Data
CRF: Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary
Item count: 8 (8 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C19704
Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Stiffness prior day assessment indicator
NDMIVRStiffnsPrDayAssInd
Indicator of stiffness felt within the last 24 hours
Have you had stiffness within the last 24 hours?
Yes;No;
Yes;No;
Alphanumeric
Choose only one. Indicate if stiffness was felt within the last 24 hours
Statland JM, Wang Y, Richesson R, Bundy B, Herbelin L, Gomes J, Trivedi J et al. An interactive voice response diary for patients with non-dystrophic myotonia. Muscle & Nerve, Jul;44 (1): 30-5, 2011.
Adult;Pediatric
Exploratory
1.0
2/2/2015
Aliases for variable name not defined
Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary
Other Clinical Data
Assessments and Examinations
  
Single Pre-Defined Value Selected
       
C19705
Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Stiffness prior day assessment scale
NDMIVRStiffnsPrDayAssScl
Scale of amount of stiffness within the last 24 hours
If YES, on average, please rate your amount of stiffness from 1-9 with 1 being minimal and 9 being the worst stiffness you ever have.
1;2;3;4;5;6;7;8;9;
1=minimal amount of stiffness;2;3;4;5;6;7;8;9=worst stiffness felt;
Alphanumeric
Choose only one. Record the amount of stiffness felt in the last 24 hours using a scale from 1-9.
Statland JM, Wang Y, Richesson R, Bundy B, Herbelin L, Gomes J, Trivedi J et al. An interactive voice response diary for patients with non-dystrophic myotonia. Muscle & Nerve, Jul;44 (1): 30-5, 2011.
Adult;Pediatric
Exploratory
1.0
2/2/2015
Aliases for variable name not defined
Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary
Other Clinical Data
Assessments and Examinations
  
Single Pre-Defined Value Selected
       
C19706
Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Pain prior day assessment indicator
NDMIVRPainPrDayAssInd
Indicator of pain felt within the last 24 hours
Have you had pain within the last 24 hours?
Yes;No;
Yes;No;
Alphanumeric
Choose only one. Indicate if pain was felt within the last 24 hours
Statland JM, Wang Y, Richesson R, Bundy B, Herbelin L, Gomes J, Trivedi J et al. An interactive voice response diary for patients with non-dystrophic myotonia. Muscle & Nerve, Jul;44 (1): 30-5, 2011.
Adult;Pediatric
Exploratory
1.0
2/2/2015
Aliases for variable name not defined
Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary
Other Clinical Data
Assessments and Examinations
  
Single Pre-Defined Value Selected
       
C19707
Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Pain prior day assessment scale
NDMIVRPainPrDayAssScl
Scale of amount of pain within the last 24 hours
If YES, on average, please rate your amount of pain from 1-9 with 1 being minimal and 9 being the worst pain you ever have
1;2;3;4;5;6;7;8;9;
1=minimal amount of pain;2;3;4;5;6;7;8;9=worst pain felt;
Alphanumeric
Choose only one. Record the amount of pain felt in the last 24 hours using a scale from 1-9.
Statland JM, Wang Y, Richesson R, Bundy B, Herbelin L, Gomes J, Trivedi J et al. An interactive voice response diary for patients with non-dystrophic myotonia. Muscle & Nerve, Jul;44 (1): 30-5, 2011.
Adult;Pediatric
Exploratory
1.0
2/2/2015
Aliases for variable name not defined
Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary
Other Clinical Data
Assessments and Examinations
  
Single Pre-Defined Value Selected
       
C19708
Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Weakness prior day assessment indicator
NDMIVRWeakPrDayAssInd
Indicator of weakness felt within the last 24 hours
Have you had weakness within the last 24 hours?
Yes;No;
Yes;No;
Alphanumeric
Choose only one. Indicate if weakness was felt within the last 24 hours
Statland JM, Wang Y, Richesson R, Bundy B, Herbelin L, Gomes J, Trivedi J et al. An interactive voice response diary for patients with non-dystrophic myotonia. Muscle & Nerve, Jul;44 (1): 30-5, 2011.
Adult;Pediatric
Exploratory
1.0
2/2/2015
Aliases for variable name not defined
Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary
Other Clinical Data
Assessments and Examinations
  
Single Pre-Defined Value Selected
       
C19709
Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Weakness prior day assessment scale
NDMIVRWeakPrDayAssScl
Scale of amount of weakness within the last 24 hours
If YES, on average, please rate your amount of weakness from 1-9 with 1 being minimal and 9 being the worst weakness you ever have
1;2;3;4;5;6;7;8;9;
1=minimal amount of weakness;2;3;4;5;6;7;8;9=worst weakness felt;
Alphanumeric
Choose only one. Record the amount of weakness felt in the last 24 hours using a scale from 1-9.
Statland JM, Wang Y, Richesson R, Bundy B, Herbelin L, Gomes J, Trivedi J et al. An interactive voice response diary for patients with non-dystrophic myotonia. Muscle & Nerve, Jul;44 (1): 30-5, 2011.
Adult;Pediatric
Exploratory
1.0
2/2/2015
Aliases for variable name not defined
Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary
Other Clinical Data
Assessments and Examinations
  
Single Pre-Defined Value Selected
       
C19710
Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Fatique prior day assessment indicator
NDMIVRFatiguePrDayAssInd
Indicator of tiredness or fatigue within the last 24 hours
Have you had tiredness/fatigue within the last 24 hours?
Yes;No;
Yes;No;
Alphanumeric
Choose only one. Indicate if tiredness/fatigue was felt within the last 24 hours
Statland JM, Wang Y, Richesson R, Bundy B, Herbelin L, Gomes J, Trivedi J et al. An interactive voice response diary for patients with non-dystrophic myotonia. Muscle & Nerve, Jul;44 (1): 30-5, 2011.
Adult;Pediatric
Exploratory
1.0
2/2/2015
Aliases for variable name not defined
Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary
Other Clinical Data
Assessments and Examinations
  
Single Pre-Defined Value Selected
       
C19711
Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary - Fatique prior day assessment scale
NDMIVRFatiguePrDayAssScl
Scale of amount of tiredness or fatigue within the last 24 hours
If YES, on average, please rate your amount of tiredness or fatigue from 1-9 with 1 being minimal and 9 being the worst tiredness/fatigue you ever have
1;2;3;4;5;6;7;8;9;
1=minimal amount of tiredness/fatigue;2;3;4;5;6;7;8;9=worst tiredness/fatigue felt;
Alphanumeric
Choose only one. Record the amount of tiredness or fatigue felt in the last 24 hours using a scale from 1-9.
Statland JM, Wang Y, Richesson R, Bundy B, Herbelin L, Gomes J, Trivedi J et al. An interactive voice response diary for patients with non-dystrophic myotonia. Muscle & Nerve, Jul;44 (1): 30-5, 2011.
Adult;Pediatric
Exploratory
1.0
2/2/2015
Aliases for variable name not defined
Non-Dystrophic Myotonia Interactive Voice Response (IVR) Diary
Other Clinical Data
Assessments and Examinations
  
Single Pre-Defined Value Selected
       
12-10-2018
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