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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Sub-Domain: Sleep
CRF: Sleep Questions For All Studies
Item count: 19 (19 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C17402
Site name
SiteName
The name of the site for the study
Site Name
  
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Core
3.0
6/21/2013
Aliases for variable name not defined
Sleep Questions For All Studies
Sleep
Outcomes and End Points
Site name
255
Free-Form Entry
       
C19247
Subject ID
SubIDNam
Subject identification ID
Subject ID
  
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Core
1.0
6/5/2014
Aliases for variable name not defined
Sleep Questions For All Studies
Sleep
Outcomes and End Points
 
255
Free-Form Entry
       
C57072
Sleep issue treatment indicator
SlpIssTrtmntInd
Indicator of whether study participant has received any treatment for sleep issues
Is the study participant receiving any treatment for sleep issues? (e.g., supplements, medication, behavioral measures, etc.)
Yes;No;Not sure;
Yes;No;Not sure;
Alphanumeric
No instructions available
1. https://www.cdc.gov/nchs/nhanes/about_nhanes.htm
2. http://condor.depaul.edu/ljason/cfs/
3. Zhang J, Lamers F, Hickie IB, He J-P, Feig E, Merikangas KR. Differentiating Nonrestorative Sleep from
Nocturnal Insomnia Symptoms: Demographic, Clinical, Inflammatory, and Functional Correlates. Sleep. 2013;36(5):671-679. doi:10.5665/sleep.2624. (LINK)
4. Ohayon MM. Prevalence and Correlates of Nonrestorative Sleep Complaints. Arch Intern Med.
2005;165(1):35–41. doi:10.1001/archinte.165.1.35 (LINK)
Adult;Pediatric
Core
1.0
12/27/2017
Aliases for variable name not defined
Sleep Questions For All Studies
Sleep
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C57079
DePaul Symptom Questionnaire (DSQ) - Feeling unrefresh after wake-up frequency scale
DSQFlngUnrfrAfWkUpFreqScl
Frequency of how often the individual are feeling unrefreshed after waking-up in the morning, as part of the DePaul Symptom Questionnaire (DSQ)
Feeling unrefreshed after you wake up in the morning (Frequency code)
0;1;2;3;4;
None of the time;A little of the time;About half the time;Most of the time;All of the time;
Numeric Values
No instructions available
1. https://www.cdc.gov/nchs/nhanes/about_nhanes.htm
2. http://condor.depaul.edu/ljason/cfs/
3. Zhang J, Lamers F, Hickie IB, He J-P, Feig E, Merikangas KR. Differentiating Nonrestorative Sleep from
Nocturnal Insomnia Symptoms: Demographic, Clinical, Inflammatory, and Functional Correlates. Sleep. 2013;36(5):671-679. doi:10.5665/sleep.2624. (LINK)
4. Ohayon MM. Prevalence and Correlates of Nonrestorative Sleep Complaints. Arch Intern Med.
2005;165(1):35–41. doi:10.1001/archinte.165.1.35 (LINK)
Adult;Pediatric
Core
1.0
12/27/2017
Aliases for variable name not defined
Sleep Questions For All Studies
Sleep
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C57080
DePaul Symptom Questionnaire (DSQ) - Feel unrefresh after wake-up severity scale
DSQFlUnrfAftWkUpSvrScl
Scale related to the severity of the individual feeling unrefreshed after waking-up in the morning, as part of the DePaul Symptom Questionnaire (DSQ)
Feeling unrefreshed after you wake up in the morning (severity)
1;2;3;4;
Mild;Moderate;Severe;Very severe;
Numeric Values
No instructions available
1. https://www.cdc.gov/nchs/nhanes/about_nhanes.htm
2. http://condor.depaul.edu/ljason/cfs/
3. Zhang J, Lamers F, Hickie IB, He J-P, Feig E, Merikangas KR. Differentiating Nonrestorative Sleep from
Nocturnal Insomnia Symptoms: Demographic, Clinical, Inflammatory, and Functional Correlates. Sleep. 2013;36(5):671-679. doi:10.5665/sleep.2624. (LINK)
4. Ohayon MM. Prevalence and Correlates of Nonrestorative Sleep Complaints. Arch Intern Med.
2005;165(1):35–41. doi:10.1001/archinte.165.1.35 (LINK)
Adult;Pediatric
Core
1.0
12/27/2017
Aliases for variable name not defined
Sleep Questions For All Studies
Sleep
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C57081
DePaul Symptom Questionnaire (DSQ) - Need nap daily frequency scale
DSQNdNpDlyFreqScl
Frequency of how often the individual needs to nap daily, as part of the DePaul Symptom Questionnaire (DSQ)
Need to nap daily (Frequency code)
0;1;2;3;4;
None of the time;A little of the time;About half the time;Most of the time;All of the time;
Numeric Values
No instructions available
1. https://www.cdc.gov/nchs/nhanes/about_nhanes.htm
2. http://condor.depaul.edu/ljason/cfs/
3. Zhang J, Lamers F, Hickie IB, He J-P, Feig E, Merikangas KR. Differentiating Nonrestorative Sleep from
Nocturnal Insomnia Symptoms: Demographic, Clinical, Inflammatory, and Functional Correlates. Sleep. 2013;36(5):671-679. doi:10.5665/sleep.2624. (LINK)
4. Ohayon MM. Prevalence and Correlates of Nonrestorative Sleep Complaints. Arch Intern Med.
2005;165(1):35–41. doi:10.1001/archinte.165.1.35 (LINK)
Adult;Pediatric
Core
1.0
12/27/2017
Aliases for variable name not defined
Sleep Questions For All Studies
Sleep
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C57082
DePaul Symptom Questionnaire (DSQ) - Need nap daily severity scale
DSQNdNapDlySvrScl
Scale related to the severity of the individual needing to nap daily, as part of the DePaul Symptom Questionnaire (DSQ)
Need to nap daily (Severity)
1;2;3;4;
Mild;Moderate;Severe;Very severe;
Numeric Values
No instructions available
1. https://www.cdc.gov/nchs/nhanes/about_nhanes.htm
2. http://condor.depaul.edu/ljason/cfs/
3. Zhang J, Lamers F, Hickie IB, He J-P, Feig E, Merikangas KR. Differentiating Nonrestorative Sleep from
Nocturnal Insomnia Symptoms: Demographic, Clinical, Inflammatory, and Functional Correlates. Sleep. 2013;36(5):671-679. doi:10.5665/sleep.2624. (LINK)
4. Ohayon MM. Prevalence and Correlates of Nonrestorative Sleep Complaints. Arch Intern Med.
2005;165(1):35–41. doi:10.1001/archinte.165.1.35 (LINK)
Adult;Pediatric
Core
1.0
12/27/2017
Aliases for variable name not defined
Sleep Questions For All Studies
Sleep
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C57083
DePaul Symptom Questionnaire (DSQ) - Problem fall asleep frequency scale
DSQPrblFllAslpFreqScl
Frequency related to the individual having problems falling asleep, as part of the DePaul Symptom Questionnaire (DSQ)
Problems falling asleep (Frequency code)
0;1;2;3;4;
None of the time;A little of the time;About half the time;Most of the time;All of the time;
Numeric Values
No instructions available
1. https://www.cdc.gov/nchs/nhanes/about_nhanes.htm
2. http://condor.depaul.edu/ljason/cfs/
3. Zhang J, Lamers F, Hickie IB, He J-P, Feig E, Merikangas KR. Differentiating Nonrestorative Sleep from
Nocturnal Insomnia Symptoms: Demographic, Clinical, Inflammatory, and Functional Correlates. Sleep. 2013;36(5):671-679. doi:10.5665/sleep.2624. (LINK)
4. Ohayon MM. Prevalence and Correlates of Nonrestorative Sleep Complaints. Arch Intern Med.
2005;165(1):35–41. doi:10.1001/archinte.165.1.35 (LINK)
Adult;Pediatric
Core
1.0
12/27/2017
Aliases for variable name not defined
Sleep Questions For All Studies
Sleep
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C57084
DePaul Symptom Questionnaire (DSQ) - problem fall asleep severity scale
DSQPrbFllAslpSvrScl
Scale related to the severity of the individual having problems falling asleep, as part of the DePaul Symptom Questionnaire (DSQ)
Problems falling asleep (Severity)
1;2;3;4;
Mild;Moderate;Severe;Very severe;
Numeric Values
No instructions available
1. https://www.cdc.gov/nchs/nhanes/about_nhanes.htm
2. http://condor.depaul.edu/ljason/cfs/
3. Zhang J, Lamers F, Hickie IB, He J-P, Feig E, Merikangas KR. Differentiating Nonrestorative Sleep from
Nocturnal Insomnia Symptoms: Demographic, Clinical, Inflammatory, and Functional Correlates. Sleep. 2013;36(5):671-679. doi:10.5665/sleep.2624.
4. Ohayon MM. Prevalence and Correlates of Nonrestorative Sleep Complaints. Arch Intern Med.
2005;165(1):35–41. doi:10.1001/archinte.165.1.35
Adult;Pediatric
Core
1.0
12/27/2017
Aliases for variable name not defined
Sleep Questions For All Studies
Sleep
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C57085
DePaul Symptom Questionnaire (DSQ) - Problem stay asleep frequency scale
DSQPrblStyAslpFreqScl
Frequency related to the individual having problems staying asleep, as part of the DePaul Symptom Questionnaire (DSQ)
Problems staying asleep (Frequency code)
0;1;2;3;4;
None of the time;A little of the time;About half the time;Most of the time;All of the time;
Numeric Values
No instructions available
1. https://www.cdc.gov/nchs/nhanes/about_nhanes.htm
2. http://condor.depaul.edu/ljason/cfs/
3. Zhang J, Lamers F, Hickie IB, He J-P, Feig E, Merikangas KR. Differentiating Nonrestorative Sleep from
Nocturnal Insomnia Symptoms: Demographic, Clinical, Inflammatory, and Functional Correlates. Sleep. 2013;36(5):671-679. doi:10.5665/sleep.2624. (LINK)
4. Ohayon MM. Prevalence and Correlates of Nonrestorative Sleep Complaints. Arch Intern Med.
2005;165(1):35–41. doi:10.1001/archinte.165.1.35 (LINK)
Adult;Pediatric
Core
1.0
12/27/2017
Aliases for variable name not defined
Sleep Questions For All Studies
Sleep
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C57086
DePaul Symptom Questionnaire (DSQ) - problem stay asleep severity scale
DSQPrbStyAslpSvrScl
Scale related to the severity of the individual having problems staying asleep, as part of the DePaul Symptom Questionnaire (DSQ)
Problems staying asleep (Severity)
1;2;3;4;
Mild;Moderate;Severe;Very severe;
Numeric Values
No instructions available
1. https://www.cdc.gov/nchs/nhanes/about_nhanes.htm
2. http://condor.depaul.edu/ljason/cfs/
3. Zhang J, Lamers F, Hickie IB, He J-P, Feig E, Merikangas KR. Differentiating Nonrestorative Sleep from
Nocturnal Insomnia Symptoms: Demographic, Clinical, Inflammatory, and Functional Correlates. Sleep. 2013;36(5):671-679. doi:10.5665/sleep.2624. (LINK)
4. Ohayon MM. Prevalence and Correlates of Nonrestorative Sleep Complaints. Arch Intern Med.
2005;165(1):35–41. doi:10.1001/archinte.165.1.35 (LINK)
Adult;Pediatric
Core
1.0
12/27/2017
Aliases for variable name not defined
Sleep Questions For All Studies
Sleep
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C57087
DePaul Symptom Questionnaire (DSQ) - Wake-up early frequency scale
DSQWkUpErlyFreqScl
Frequency related to the individual waking-up early in the morning (e.g. 3 am), as part of the DePaul Symptom Questionnaire (DSQ)
Waking up early in the morning (e.g. 3am) (Frequency)
0;1;2;3;4;
None of the time;A little of the time;About half the time;Most of the time;All of the time;
Numeric Values
No instructions available
1. https://www.cdc.gov/nchs/nhanes/about_nhanes.htm
2. http://condor.depaul.edu/ljason/cfs/
3. Zhang J, Lamers F, Hickie IB, He J-P, Feig E, Merikangas KR. Differentiating Nonrestorative Sleep from
Nocturnal Insomnia Symptoms: Demographic, Clinical, Inflammatory, and Functional Correlates. Sleep. 2013;36(5):671-679. doi:10.5665/sleep.2624. (LINK)
4. Ohayon MM. Prevalence and Correlates of Nonrestorative Sleep Complaints. Arch Intern Med.
2005;165(1):35–41. doi:10.1001/archinte.165.1.35 (LINK)
Adult;Pediatric
Core
1.0
12/27/2017
Aliases for variable name not defined
Sleep Questions For All Studies
Sleep
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C57088
DePaul Symptom Questionnaire (DSQ) - Wake-up early severity scale
DSQWkUpErlySvrScl
Scale related to the severity of the individual waking-up early in the morning (e.g. 3 am), as part of the DePaul Symptom Questionnaire (DSQ)
Waking up early in the morning (e.g. 3am)
1;2;3;4;
Mild;Moderate;Severe;Very severe;
Numeric Values
No instructions available
1. https://www.cdc.gov/nchs/nhanes/about_nhanes.htm
2. http://condor.depaul.edu/ljason/cfs/
3. Zhang J, Lamers F, Hickie IB, He J-P, Feig E, Merikangas KR. Differentiating Nonrestorative Sleep from
Nocturnal Insomnia Symptoms: Demographic, Clinical, Inflammatory, and Functional Correlates. Sleep. 2013;36(5):671-679. doi:10.5665/sleep.2624. (LINK)
4. Ohayon MM. Prevalence and Correlates of Nonrestorative Sleep Complaints. Arch Intern Med.
2005;165(1):35–41. doi:10.1001/archinte.165.1.35 (LINK)
Adult;Pediatric
Core
1.0
12/27/2017
Aliases for variable name not defined
Sleep Questions For All Studies
Sleep
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C57089
DePaul Symptom Questionnaire (DSQ) - Sleep during day awake night frequency scale
DSQSlpDrnDyAwkNghtFreqScl
Frequency related to the individual sleeping during the day and staying awake during the night, as part of the DePaul Symptom Questionnaire (DSQ)
Sleep during day and stay awake during night
0;1;2;3;4;
None of the time;A little of the time;About half the time;Most of the time;All of the time;
Numeric Values
No instructions available
1. https://www.cdc.gov/nchs/nhanes/about_nhanes.htm
2. http://condor.depaul.edu/ljason/cfs/
3. Zhang J, Lamers F, Hickie IB, He J-P, Feig E, Merikangas KR. Differentiating Nonrestorative Sleep from
Nocturnal Insomnia Symptoms: Demographic, Clinical, Inflammatory, and Functional Correlates. Sleep. 2013;36(5):671-679. doi:10.5665/sleep.2624. (LINK)
4. Ohayon MM. Prevalence and Correlates of Nonrestorative Sleep Complaints. Arch Intern Med.
2005;165(1):35–41. doi:10.1001/archinte.165.1.35 (LINK)
Adult;Pediatric
Core
1.0
12/27/2017
Aliases for variable name not defined
Sleep Questions For All Studies
Sleep
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C57090
DePaul Symptom Questionnaire (DSQ) - sleep during day awake night severity scale
DSQSlpDrnDyAwkNghtSvrScl
Scale related to the severity of the individual sleeping during the day and stay awake during the night, as part of the DePaul Symptom Questionnaire (DSQ)
Sleep during day and stay awake during night
1;2;3;4;
Mild;Moderate;Severe;Very severe;
Numeric Values
No instructions available
1. https://www.cdc.gov/nchs/nhanes/about_nhanes.htm
2. http://condor.depaul.edu/ljason/cfs/
3. Zhang J, Lamers F, Hickie IB, He J-P, Feig E, Merikangas KR. Differentiating Nonrestorative Sleep from
Nocturnal Insomnia Symptoms: Demographic, Clinical, Inflammatory, and Functional Correlates. Sleep. 2013;36(5):671-679. doi:10.5665/sleep.2624. (LINK)
4. Ohayon MM. Prevalence and Correlates of Nonrestorative Sleep Complaints. Arch Intern Med.
2005;165(1):35–41. doi:10.1001/archinte.165.1.35 (LINK)
Adult;Pediatric
Core
1.0
12/27/2017
Aliases for variable name not defined
Sleep Questions For All Studies
Sleep
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C57073
National Health and Nutrition Examination Survey (NHANES) - Falling asleep trouble frequency category
NHANESFllAslpTrblFreqCat
The frequency for individual having trouble falling asleep, as part of the National Health and Nutrition Examination Survey (NHANES)
Do you have trouble falling asleep?
Never;Rarely;Sometimes;Often;Almost always;
Never;Rarely (once a month);Sometimes (2-4 times a month);Often (5-15 times a month);Almost always (16-30 times a month);
Alphanumeric
No instructions available
1. https://www.cdc.gov/nchs/nhanes/about_nhanes.htm
2. http://condor.depaul.edu/ljason/cfs/
3. Zhang J, Lamers F, Hickie IB, He J-P, Feig E, Merikangas KR. Differentiating Nonrestorative Sleep from
Nocturnal Insomnia Symptoms: Demographic, Clinical, Inflammatory, and Functional Correlates. Sleep. 2013;36(5):671-679. doi:10.5665/sleep.2624. (LINK)
4. Ohayon MM. Prevalence and Correlates of Nonrestorative Sleep Complaints. Arch Intern Med.
2005;165(1):35–41. doi:10.1001/archinte.165.1.35 (LINK)
Adult;Pediatric
Exploratory
1.0
12/27/2017
Aliases for variable name not defined
Sleep Questions For All Studies
Sleep
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C57074
National Health and Nutrition Examination Survey (NHANES) - Wake up during night frequency category
NHANESWkUpDrngNghtFreqCat
Range of how often an individual wakes up during the night and has trouble getting back to sleep, as part of the National Health and Nutrition Examination Survey (NHANES)
Do you wake up during the night and have trouble getting back to sleep?
Never;Rarely;Sometimes;Often;Almost always;
Never;Rarely (once a month);Sometimes (2-4 times a month);Often (5-15 times a month);Almost always (16-30 times a month);
Alphanumeric
No instructions available
1. https://www.cdc.gov/nchs/nhanes/about_nhanes.htm
2. http://condor.depaul.edu/ljason/cfs/
3. Zhang J, Lamers F, Hickie IB, He J-P, Feig E, Merikangas KR. Differentiating Nonrestorative Sleep from
Nocturnal Insomnia Symptoms: Demographic, Clinical, Inflammatory, and Functional Correlates. Sleep. 2013;36(5):671-679. doi:10.5665/sleep.2624. (LINK)
4. Ohayon MM. Prevalence and Correlates of Nonrestorative Sleep Complaints. Arch Intern Med.
2005;165(1):35–41. doi:10.1001/archinte.165.1.35 (LINK)
Adult;Pediatric
Exploratory
1.0
12/27/2017
Aliases for variable name not defined
Sleep Questions For All Studies
Sleep
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C57075
National Health and Nutrition Examination Survey (NHANES) - Wake up early morning unable to sleep frequency category
NHANESWkUpErlMrnUnblToSlpFrCat
Range of how often an individual wakes up too early and is unable to get back to sleep, as part of the National Health and Nutrition Examination Survey (NHANES)
Do you wake up too early in the morning and are unable to get back to sleep (Early Morning Awakening- EMA)?
Never;Rarely;Sometimes;Often;Almost always;
Never;Rarely (once a month);Sometimes (2-4 times a month);Often (5-15 times a month);Almost always (16-30 times a month);
Alphanumeric
No instructions available
1. https://www.cdc.gov/nchs/nhanes/about_nhanes.htm
2. http://condor.depaul.edu/ljason/cfs/
3. Zhang J, Lamers F, Hickie IB, He J-P, Feig E, Merikangas KR. Differentiating Nonrestorative Sleep from
Nocturnal Insomnia Symptoms: Demographic, Clinical, Inflammatory, and Functional Correlates. Sleep. 2013;36(5):671-679. doi:10.5665/sleep.2624. (LINK)
4. Ohayon MM. Prevalence and Correlates of Nonrestorative Sleep Complaints. Arch Intern Med.
2005;165(1):35–41. doi:10.1001/archinte.165.1.35 (LINK)
Adult;Pediatric
Exploratory
1.0
12/27/2017
Aliases for variable name not defined
Sleep Questions For All Studies
Sleep
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C57076
National Health and Nutrition Examination Survey (NHANES) - Unrest feeling frequency category
NHANESUnrstFlngFreqCat
Range of how often an individual feels unrested during the day, no matter how many hours of sleep he/she had, as part of the National Health and Nutrition Examination Survey (NHANES)
In the past month, how often did you feel unrested during the day, no matter how many hours of sleep you have had?
Never;Rarely;Sometimes;Often;Almost always;
Never;Rarely (once a month);Sometimes (2-4 times a month);Often (5-15 times a month);Almost always (16-30 times a month);
Alphanumeric
No instructions available
1. https://www.cdc.gov/nchs/nhanes/about_nhanes.htm
2. http://condor.depaul.edu/ljason/cfs/
3. Zhang J, Lamers F, Hickie IB, He J-P, Feig E, Merikangas KR. Differentiating Nonrestorative Sleep from
Nocturnal Insomnia Symptoms: Demographic, Clinical, Inflammatory, and Functional Correlates. Sleep. 2013;36(5):671-679. doi:10.5665/sleep.2624. (LINK)
4. Ohayon MM. Prevalence and Correlates of Nonrestorative Sleep Complaints. Arch Intern Med.
2005;165(1):35–41. doi:10.1001/archinte.165.1.35 (LINK)
Adult;Pediatric
Exploratory
1.0
12/27/2017
Aliases for variable name not defined
Sleep Questions For All Studies
Sleep
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
12-14-2018
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