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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Mitochondrial Disease
Sub-Domain: Emotional/Behavioral
CRF: Cambridge Behavioral Inventory - Revised
Item count: 47 (47 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C11524
Cambridge Behavioural Inventory Revised (CBI-R) - poor daily memory frequency score
CBIRPoorDlyMemryFreqScore
Score for frequency over past month of poor day-to-day memory as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Has poor day-to-day memory
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
e.g. about conversations, trips, etc.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q1
 
Single Pre-Defined Value Selected
       
C11525
Cambridge Behavioural Inventory Revised (CBI-R) - asks same question frequency score
CBIRAsksSameQuestFreqScore
Score for frequency over past month of ask the same questions over and over again as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Asks the same questions over and over again
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q2
 
Single Pre-Defined Value Selected
       
C11526
Cambridge Behavioural Inventory Revised (CBI-R) - loses misplaces things frequency score
CBIRLoseMisplaceThingFreqScore
Score for frequency over past month of losing or misplacing things as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Loses or misplaces things
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q3
 
Single Pre-Defined Value Selected
       
C11527
Cambridge Behavioural Inventory Revised (CBI-R) - forgets names familiar people frequency score
CBIRFrgtNameFamilPeopFreqScore
Score for frequency over past month of forgetting names of familiar people as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Forgets the names of familiar people
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q4
 
Single Pre-Defined Value Selected
       
C11528
Cambridge Behavioural Inventory Revised (CBI-R) - forgets object names frequency score
CBIRFrgtObjectNameFreqScore
Score for frequency over past month of forgetting names of objects and things as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Forgets the names of objects and things
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q5
 
Single Pre-Defined Value Selected
       
C11529
Cambridge Behavioural Inventory Revised (CBI-R) - poor read TV concentration frequency score
CBIRPoorReadTVCncntratnFreqScr
Score for frequency over past month of showing poor concentration while reading or watching television as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Shows poor concentration when reading or watching television
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q6
 
Single Pre-Defined Value Selected
       
C11530
Cambridge Behavioural Inventory Revised (CBI-R) - forget day frequency score
CBIRForgetDayFreqScore
Score for frequency over past month of forgetting what day it is as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Forgets what day it is
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q7
 
Single Pre-Defined Value Selected
       
C11531
Cambridge Behavioural Inventory Revised (CBI-R) - confused unusual surroundings frequency score
CBIRCnfsdUnuslSrrndngsFreqScr
Score for frequency over past month of becoming confused or muddled in unusual surroundings as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Becomes confused or muddled in unusual surroundings
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q8
 
Single Pre-Defined Value Selected
       
C11532
Cambridge Behavioural Inventory Revised (CBI-R) - difficulty using electrical appliance frequency score
CBIRDffcltUsngElecAppliFreqScr
Score for frequency over past month of difficulty using electrical appliances as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Has difficulties using electrical appliances
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
e.g. TV, radio, cooker, washing machine
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q9
 
Single Pre-Defined Value Selected
       
C11533
Cambridge Behavioural Inventory Revised (CBI-R) - difficulty writing frequency score
CBIRDifficultyWritingFreqScore
Score for frequency over past month of having difficulties writing as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Has difficulties writing
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
letters, Christmas cards, lists, etc.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q10
 
Single Pre-Defined Value Selected
       
C11534
Cambridge Behavioural Inventory Revised (CBI-R) - difficulty using telephone frequency score
CBIRDifficultyUsingTeleFreqScr
Score for frequency over past month of having difficulties using the telephone as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Has difficulties using the telephone
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q11
 
Single Pre-Defined Value Selected
       
C11535
Cambridge Behavioural Inventory Revised (CBI-R) - difficulty making hot drink frequency score
CBIRDifficltyMakHotDrnkFreqScr
Score for frequency over past month of having difficulties making a hot drink as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Has difficulties making a hot drink
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
e.g. tea/coffee
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q12
 
Single Pre-Defined Value Selected
       
C11536
Cambridge Behavioural Inventory Revised (CBI-R) - problem handle money pay bills frequency score
CBIRProbHndlMonPayBillsFreqScr
Score for frequency over past month of having problems handling money or paying bills as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Has problems handling money or paying bills
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q13
 
Single Pre-Defined Value Selected
       
C11537
Cambridge Behavioural Inventory Revised (CBI-R) - difficulty groom self frequency score
CBIRDifficultyGroomSelfFreqScr
Score for frequency over past month of having difficulties grooming self as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Has difficulties grooming self
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
e.g. shaving or putting on make-up
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q14
 
Single Pre-Defined Value Selected
       
C11538
Cambridge Behavioural Inventory Revised (CBI-R) - difficulty dress self frequency score
CBIRDifficultyDressSelfFreqScr
Score for frequency over past month of having difficulties dressing self as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Has difficulties dressing self
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q15
 
Single Pre-Defined Value Selected
       
C11539
Cambridge Behavioural Inventory Revised (CBI-R) - problem feed self unassisted frequency score
CBIRProbFeedSelfUnassitFreqScr
Score for frequency over past month of having problems feeding self without assistance as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Has problems feeding self without assistance
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q16
 
Single Pre-Defined Value Selected
       
C11540
Cambridge Behavioural Inventory Revised (CBI-R) - problem bathe self frequency score
CBIRProbBatheSelfFreqScore
Score for frequency over past month of having problems bathing or showering self as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Has problems bathing or showering self
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q17
 
Single Pre-Defined Value Selected
       
C11541
Cambridge Behavioural Inventory Revised (CBI-R) - inappropriate humor laughter frequency score
CBIRInappropHumorLaughFrqScore
Score for frequency over past month of finding humor or laughing at things others do not find funny as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Finds humor or laughs at things others do not find funny
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q18
 
Single Pre-Defined Value Selected
       
C11542
Cambridge Behavioural Inventory Revised (CBI-R) - temper outburst frequency score
CBIRTemperOutburstFreqScore
Score for frequency over past month of having temper outbursts as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Has temper outbursts
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q19
 
Single Pre-Defined Value Selected
       
C11543
Cambridge Behavioural Inventory Revised (CBI-R) - uncooperative asked do something frequency score
CBIRUncoopAskdDoSomeFreqScore
Score for frequency over past month of being uncooperative when asked to do something as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Is uncooperative when asked to do something
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q20
 
Single Pre-Defined Value Selected
       
C11544
Cambridge Behavioural Inventory Revised (CBI-R) - socially embarrass behavior frequency score
CBIRSocalEmbarassBehavFreqScr
Score for frequency over past month of showing socially embarrassing behavior as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Shows socially embarrassing behavior
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q21
 
Single Pre-Defined Value Selected
       
C11545
Cambridge Behavioural Inventory Revised (CBI-R) - tactless suggestive remark frequency score
CBIRTactlesSugestRemrkFreqScr
Score for frequency over past month of making tactless or suggestive remarks as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Makes tactless or suggestive remarks
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q22
 
Single Pre-Defined Value Selected
       
C11546
Cambridge Behavioural Inventory Revised (CBI-R) - impulsive action frequency score
CBIRImpulsiveActionFreqScore
Score for frequency over past month of acting impulsively without thinking as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Acts impulsively without thinking
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q23
 
Single Pre-Defined Value Selected
       
C11547
Cambridge Behavioural Inventory Revised (CBI-R) - crying frequency score
CBIRCryingFreqScore
Score for frequency over past month of crying as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Cries
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q24
 
Single Pre-Defined Value Selected
       
C11548
Cambridge Behavioural Inventory Revised (CBI-R) - sad depressed frequency score
CBIRSadDepressedFreqScore
Score for frequency over past month of appearing sad or depressed as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Appears sad or depressed
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q25
 
Single Pre-Defined Value Selected
       
C11549
Cambridge Behavioural Inventory Revised (CBI-R) - restless agitated frequency score
CBIRRestlessAgitatedFreqScore
Score for frequency over past month of being very restless or agitated as part of the Cambridge Behavioural Inventory Revised (CBI-R).
Is very restless or agitated
0;1;2;3;4;
0 - Never;1 - A few times per month;2 - A few times per week;3 - Daily;4 - Constantly;
Numeric Values
Refer to instructions on form.
Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioral changes in amyotrophic lateral sclerosis? Amyotrophic Lateral Scler. 2011 Jan;12(1):45-51. Epub 2010 Sep 19. Wedderburn C, Wear H, Brown J, Mason SJ, Barker RA, Hodges J, Williams-Gray C. The utility of the Cambridge Behavioural Inventory in neurodegenerative disease. J Neurol Neurosurg Psychiatry. 2008 May;79(5):500-3.
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Cambridge Behavioral Inventory - Revised
Emotional/Behavioral
Outcomes and End Points
CBI-R Q26
 
Single Pre-Defined Value Selected
       
07-20-2019
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