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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Huntington's Disease
Sub-Domain: Epidemiology/Environmental History
CRF: Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Item count: 40 (20 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C16611
Risk Factor Questionnaire (RFQ) - significant injury treatment indicator
RFQSignfcntInjTreatmtInd
The indicator whether a participant has had any significant injury to cause him/her to seek treatment as part of the risk factor questionnaire (RFQ).
Have you ever had any significant injury that caused you to seek treatment?
Yes;No;Don't know;
Yes;No;Don't know;
Alphanumeric
Include any type of injury, such as sprains/strains, fractures, contusions or severe bruises, burns, lacerations, or whiplash for which you sought treatment.
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Epidemiology/Environmental History
Participant History and Family History
RFQ Epidemiology of Dystonia Q1
 
Single Pre-Defined Value Selected
       
C16612
Risk Factor Questionnaire (RFQ) - significant injury name
RFQSignfcntInjName
Name of injury sustained by participant/subject as part of the risk factor questionnaire (RFQ)
Type of Injury
  
Alphanumeric
Type of Injury and Body Part(s) Involved
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Epidemiology/Environmental History
Participant History and Family History
RFQ Epidemiology of Dystonia injury type
255
Free-Form Entry
       
C16613
Risk Factor Questionnaire (RFQ) - significant injury anatomic site
RFQSignfcntInjAntmicSite
Anatomic site of injury sustained by participant/subject as part of the risk factor questionnaire (RFQ)
Body Part(s)
  
Alphanumeric
Type of Injury and Body Part(s) Involved
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Epidemiology/Environmental History
Participant History and Family History
RFQ Epidemiology of Dystonia injured anatomic site
255
Free-Form Entry
       
C16614
Risk Factor Questionnaire (RFQ) - significant injury age value
RFQSignfcntInjAgeVal
Age in years of the participant/subject at the time of the injury as part of the risk factor questionnaire (RFQ)
Age at injury
  
Numeric Values
(first/next)
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Epidemiology/Environmental History
Participant History and Family History
RFQ Epidemiology of Dystonia injury age value
 
Free-Form Entry
       
C16615
Risk Factor Questionnaire (RFQ) - significant injury school work missed indicator
RFQSignfcntInjSchoolWrkMissInd
Indication of whether the participant/subject missed school or work because of the injury as part of the risk factor questionnaire (RFQ)
School or Work missed?
Yes;No;Don't know;
Yes;No;Don't know;
Alphanumeric
No instructions available
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Epidemiology/Environmental History
Participant History and Family History
RFQ Epidemiology of Dystonia missed school or work indicator
 
Single Pre-Defined Value Selected
       
C16616
Risk Factor Questionnaire (RFQ) - significant injury school work missed duration
RFQSignfcntInjSchoolWrkMissDur
Unit of measure for length of time the participant/subject missed school or work because of the injury as part of the risk factor questionnaire (RFQ)
If Yes, how long?
  
Numeric Values
If School or Work missed?
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Epidemiology/Environmental History
Participant History and Family History
RFQ Epidemiology of Dystonia missed school or work duration
 
Free-Form Entry
       
C16617
Risk Factor Questionnaire (RFQ) - significant injury school work missed duration unit of measure
RFQSignfcntInjSchlWrkMssDurUOM
Length of time the participant/subject missed school or work because of the injury as part of the risk factor questionnaire (RFQ)
If Yes, how long?
Day;Week;Month;
Day;Week;Month;
Alphanumeric
If School or Work missed?
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Epidemiology/Environmental History
Participant History and Family History
RFQ Epidemiology of Dystonia missed school or work time units
 
Single Pre-Defined Value Selected
       
C16618
Risk Factor Questionnaire (RFQ) - significant injury treatment administered indicator
RFQSignfcntInjTreatmtAdmInd
The indicator whether a participant had treatment administered for any significant injury as part of the risk factor questionnaire (RFQ).
Seek Treatment for Injury?
Yes;No;Don't know;
Yes;No;Don't know;
Alphanumeric
Seek Treatment for Injury?
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Epidemiology/Environmental History
Participant History and Family History
RFQ Epidemiology of Dystonia injury treatment indicator
 
Single Pre-Defined Value Selected
       
C16619
Risk Factor Questionnaire (RFQ) - significant injury treatment administered text
RFQSignfcntInjTreatmtAdmTxt
The free text field to specify the treatment administered for any significant injury as part of the risk factor questionnaire (RFQ).
Yes,
  
Alphanumeric
Seek Treatment for Injury?
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Exploratory
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Epidemiology/Environmental History
Participant History and Family History
RFQ Epidemiology of Dystonia injury treatment type
255
Free-Form Entry
       
C16620
Risk Factor Questionnaire (RFQ) - significant injury treatment hospitalization indicator
RFQSignfcntInjTreatmtHospInd
The indicator of whether the participant/subject was hospitalized for injury as part of the risk factor questionnaire (RFQ).
Hospitalized for this Injury?
Yes;No;Don't know;
Yes;No;Don't know;
Alphanumeric
Only complete if Yes was answered for "Has the participant/ subject ever had any significant injury that caused them to seek treatment"
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Exploratory
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Epidemiology/Environmental History
Participant History and Family History
RFQ Epidemiology of Dystonia hospitalization indicator
 
Single Pre-Defined Value Selected
       
C16621
Risk Factor Questionnaire (RFQ) - significant injury treatment immobilized cast indicator
RFQSignfcntInjTxImmobCstInd
The indicator of whether any body part(s) were immobilized or needed a cast as a result of the injury as part of the risk factor questionnaire (RFQ).
Body Part(s) Immobolized or Need Cast?
Yes;No;Don't know;
Yes;No;Don't know;
Alphanumeric
Only answer if Yes was answered for "Has the participant/ subject ever had any significant injury that caused them to seek treatment"
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Exploratory
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Epidemiology/Environmental History
Participant History and Family History
RFQ Epidemiology of Dystonia immobilized indicator
 
Single Pre-Defined Value Selected
       
C16622
Risk Factor Questionnaire (RFQ) - significant injury lasting effects indicator
RFQSignfcntInjLastEffectInd
The indicator of whether the participant/subject had lasting effects from the injury as part of the risk factor questionnaire (RFQ).
Lasting Effects from this Injury?
Yes;No;Don't know;
Yes;No;Don't know;
Alphanumeric
No instructions available
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Exploratory
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Epidemiology/Environmental History
Participant History and Family History
RFQ Epidemiology of Dystonia injury effects indicator
 
Single Pre-Defined Value Selected
       
C16623
Risk Factor Questionnaire (RFQ) - significant injury lasting effects text
RFQSignfcntInjLastEffectTxt
The free text field to specify the lasting effects from the injury as part of the risk factor questionnaire (RFQ).
Yes,
  
Alphanumeric
Lasting Effects from this Injury?
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Exploratory
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Epidemiology/Environmental History
Participant History and Family History
RFQ Epidemiology of Dystonia injury effects description
255
Free-Form Entry
       
C17696
Risk Factor Questionnaire (RFQ) - significant injury surgery administered indicator
RFQSignfcntInjSxAdmInd
The indicator of whether surgery was performed as part of the Risk Factor Questionnaire (RFQ).
Have you ever had surgery for any reason?
Yes;No;Don't know;
Yes;No;Don't know;
Alphanumeric
Please include any outpatient surgical procedures and any oral/dental surgeries you may have had.
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
8/30/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Epidemiology/Environmental History
Participant History and Family History
  
Single Pre-Defined Value Selected
       
C16624
Risk Factor Questionnaire (RFQ) - significant injury surgery administered name
RFQSignfcntInjSxAdmName
Anatomic site of the surgery performed as part of the risk factor questionnaire (RFQ).
Body Part(s) Involved
  
Alphanumeric
No instructions available
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Exploratory
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Epidemiology/Environmental History
Participant History and Family History
RFQ Epidemiology of Dystonia surgery type
255
Free-Form Entry
       
C16625
Risk Factor Questionnaire (RFQ) - significant injury surgery administered anatomic site
RFQSignfcntInjSxAdmAntmicSite
The name of the surgery performed as part of the risk factor questionnaire (RFQ).
Type of Surgery
  
Alphanumeric
No instructions available
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Exploratory
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Epidemiology/Environmental History
Participant History and Family History
RFQ Epidemiology of Dystonia surgery anatomic site
255
Free-Form Entry
       
C16626
Risk Factor Questionnaire (RFQ) - significant injury surgery administered year age value
RFQSignfcntInjSxAdmYrAgeVal
Year or Age of participant/subject at time of surgery as part of the risk factor questionnaire (RFQ).
Year or Age of Surgery
  
Numeric Values
Answer should be recorded as an integer. Only answered if Yes was answered for "Have you ever had surgery for any reason?"
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Exploratory
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Epidemiology/Environmental History
Participant History and Family History
Surgery age value
 
Free-Form Entry
       
C16627
Risk Factor Questionnaire (RFQ) - significant injury surgery administered year age unit of measure
RFQSignfcntInjSxAdmYrAgeUOM
Year or Age unit of measure of participant/subject at time of surgery as part of the risk factor questionnaire (RFQ).
Year or Age of Surgery
Year;Age;
Year;Age;
Alphanumeric
No instructions available
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Exploratory
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Epidemiology/Environmental History
Participant History and Family History
Surgery ageunit
 
Single Pre-Defined Value Selected
       
C08032
Risk Factor Questionnaire (RFQ) - significant injury surgery anesthesia administered type
RFQSignfcntInjSxAnesthAdmType
Type of anesthesia given to participant/subject as part of the Risk Factor Questionnaire (RFQ).
Type of Anesthesia Used
General;Local;Spinal block;Other, specify;
General;Local;Spinal block;Other, specify;
Alphanumeric
No instructions available
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult;Pediatric
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Epidemiology/Environmental History
Participant History and Family History
Anesthesia type
 
Single Pre-Defined Value Selected
       
C18750
Risk Factor Questionnaire (RFQ) - significant injury surgery anesthesia administered other text
RFQSignfcntInjSxAnesthAdmOTH
The free-text field related to 'Risk Factor Questionnaire (RFQ) - significant injury surgery anesthesia administered type' specifying other text. Type of anesthesia given to participant/subject as part of the Risk Factor Questionnaire (RFQ).
Other, specify
  
Alphanumeric
No instructions available
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult;Pediatric
Supplemental
1.0
5/27/2014
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia
Epidemiology/Environmental History
Participant History and Family History
 
4000
Free-Form Entry
       
03-22-2017
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