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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Huntington's Disease
Sub-Domain: Epidemiology/Environmental History
CRF: Risk Factor Questionnaire (RFQ) - Female Health History
Item count: 18 (18 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C16629
Risk Factor Questionnaire (RFQ) - female health history-ever pregnant indicator
RFQFemHlthHxEverPregInd
Has the participant/subject ever been pregnant as part of the risk factor questionnaire female health history.
Have you ever been pregnant?
Yes;No;Don't know;
Yes;No;Don't know;
Alphanumeric
No instructions available
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Exploratory
3.0
7/14/2013
RP1
Risk Factor Questionnaire (RFQ) - Female Health History
Epidemiology/Environmental History
Participant History and Family History
RFQ - Female Health History Q1
 
Single Pre-Defined Value Selected
       
C16630
Risk Factor Questionnaire (RFQ) - female health history-pregnancy number
RFQFemHlthHxPregNum
If yes, how many pregnancies as part of the risk factor questionnaire female health history.
If Yes, how many pregnancies have you had?
  
Numeric Values
pregancies
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
RP1a
Risk Factor Questionnaire (RFQ) - Female Health History
Epidemiology/Environmental History
Participant History and Family History
RFQ - Female Health History Q1a
 
Free-Form Entry
       
C16631
Risk Factor Questionnaire (RFQ) - female health history-live birth number
RFQFemHlthHxLiveBirthNum
If yes, how many live births as part of the risk factor questionnaire female health history.
If Yes, how many live births have you had?
  
Numeric Values
live births
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
RP1b
Risk Factor Questionnaire (RFQ) - Female Health History
Epidemiology/Environmental History
Participant History and Family History
RFQ - Female Health History Q1b
 
Free-Form Entry
       
C16632
Risk Factor Questionnaire (RFQ) - female health history-first menstrual period age status
RFQFemHlthHxFrstMensPdStatus
The status related to participant's/subject's first menstrual period as part of the Risk Factor Questionnaire (RFQ) - Female Health History.
At what age did you have your first menstrual period?
Never had a menstrual period;Don't know;
Never had a menstrual period;Don't know;
Alphanumeric
If value is "Never had a menstrual period", then end questionnaire
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
RP2
Risk Factor Questionnaire (RFQ) - Female Health History
Epidemiology/Environmental History
Participant History and Family History
RFQ - Female Health History Q2
 
Single Pre-Defined Value Selected
       
C17695
Risk Factor Questionnaire (RFQ) - Female Health History-first menstrual period age value
RFQFHHFrstMenstrlPeriodAgeVal
Age of participant's/subject's first menstrual period as part of the Risk Factor Questionnaire (RFQ) - Female Health History.
At what age did you have your first menstrual period?
  
Numeric Values
No instructions available
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
8/30/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Female Health History
Epidemiology/Environmental History
Participant History and Family History
  
Free-Form Entry
       
C16633
Risk Factor Questionnaire (RFQ) - female health history-current menstrual status indicator
RFQFemHlthHxCrntMenstrlStatInd
Participant's/subject's current menstrual status as part of the risk factor questionnaire female health history.
What is your current menstrual status?
Pregnant or breastfeeding;Still having periods and not going through menopause;Still having periods and on hormone replacement therapy;Going through menopause;Periods stopped themselves or natural menopause;Periods stopped by surgery or surgical menopause;
Pregnant or breastfeeding;Still having periods and not going through menopause;Still having periods and on hormone replacement therapy;Going through menopause;Periods stopped themselves or natural menopause;Periods stopped by surgery or surgical menopause;
Alphanumeric
No instructions available
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
RP3
Risk Factor Questionnaire (RFQ) - Female Health History
Epidemiology/Environmental History
Participant History and Family History
RFQ - Female Health History Q3
 
Single Pre-Defined Value Selected
       
C16634
Risk Factor Questionnaire (RFQ) - female health history-age year menstrual period stopped natural value
RFQFemHlthHxAgYrMnstPdStpNtVal
The age (or year) the participant's/subject's periods stopped naturally or by menopause as part of the Risk factor questionnaire Female Health History.
Age or Year
  
Numeric Values
Answer only if "Periods stopped themselves or natural menopause" is answered. Answer for age OR year, NOT both.
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Female Health History
Epidemiology/Environmental History
Participant History and Family History
RFQ - Female Health History Q3a
 
Free-Form Entry
       
C16635
Risk Factor Questionnaire (RFQ) - female health history-age year menstrual period stop surgery surgical menopause value
RFQFemHlthHxPdStpSxSugMenpsVal
The age (or year) the participant's/subject's periods stopped by surgery or surgical menopause
Age or Year
  
Numeric Values
Answer only if "Periods stopped by surgery or surgical menopause" is answered. Answer for age OR year, NOT both.
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Female Health History
Epidemiology/Environmental History
Participant History and Family History
RFQ - Female Health History Q3b
 
Free-Form Entry
       
C19054
Risk Factor Questionnaire (RFQ) - female health history-surgery stop menopause other text
RFQFemHlthHxSxStpMenopsOTH
The free-text field related to 'Risk Factor Questionnaire (RFQ) - female health history-surgery stop menopause type' specifying other text. If periods stopped by surgery or surgical menopause, indicate type of surgery the participant/subject underwent as part of the risk factor questionnaire female health history.
Other, specify
  
Alphanumeric
Answered only if current menstrual status is "Periods stopped by surgery or surgical menopause"
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
PWG4
Risk Factor Questionnaire (RFQ) - Female Health History
Epidemiology/Environmental History
Participant History and Family History
 
4000
Free-Form Entry
       
C16636
Risk Factor Questionnaire (RFQ) - female health history-surgery stop menopause type
RFQFemHlthHxSxStpMenopsTyp
If periods stopped by surgery or surgical menopause, indicate type of surgery the participant/subject underwent as part of the risk factor questionnaire female health history.
What type of surgery did you have?
Removal of uterus and both ovaries;Removal of one ovary;Removal of both ovaries;Removal of uterus but not both ovaries;Other, specify;Don't know;
Removal of uterus and both ovaries;Removal of one ovary;Removal of both ovaries;Removal of uterus but not both ovaries;Other, specify;Don't know;
Alphanumeric
Answered only if current menstrual status is "Periods stopped by surgery or surgical menopause"
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
PWG4
Risk Factor Questionnaire (RFQ) - Female Health History
Epidemiology/Environmental History
Participant History and Family History
RFQ - Female Health History Q3c
 
Single Pre-Defined Value Selected
       
C16637
Risk Factor Questionnaire (RFQ) - female health history-age year surgery stop menstrual value
RFQFemHlthHxAgYrSxStpMenopsVal
The age (or year) of the participant/subject in relation to current menstrual status as part of the risk factor questionnaire female health history.
Age or Year
  
Numeric Values
Answer for year OR age, not both. Answer only if current menstrual status is "Other specify".
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
RP3yrChoice7;
RP3ageChoice7
Risk Factor Questionnaire (RFQ) - Female Health History
Epidemiology/Environmental History
Participant History and Family History
RFQ - Female Health History Q3d
 
Free-Form Entry
       
C16638
Risk Factor Questionnaire (RFQ) - female health history-no menopause indicator
RFQFemHlthHxNoMenopsInd
If the participant/subject has not experienced menopause, check the box on the CRF as part of the risk factor questionnaire female health history.
If you have not experienced menopause, check this box
  
Alphanumeric
End questionnaire
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
RP3yrChoice7;
RP3ageChoice8
Risk Factor Questionnaire (RFQ) - Female Health History
Epidemiology/Environmental History
Participant History and Family History
RFQ - Female Health History Q3e
255
Free-Form Entry
       
C16639
Risk Factor Questionnaire (RFQ) - female health history-hormone replacement therapy use six month indicator
RFQFemHlthHxHRTUse6MnthInd
Participant/subject used hormone replacement therapy during or after menopause for a period of at least 6 months as part of the risk factor questionnaire female health history.
Have you ever used hormone replacement therapy during or after menopause for a period of at least 6 months?
Yes;No;Don't know;
Yes;No;Don't know;
Alphanumeric
Hormone replacement therapy includes pills, injections, vaginal creams, skin patches, and suppositories.
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
RP4
Risk Factor Questionnaire (RFQ) - Female Health History
Epidemiology/Environmental History
Participant History and Family History
RFQ - Female Health History Q4
 
Single Pre-Defined Value Selected
       
C16640
Risk Factor Questionnaire (RFQ) - female health history-hormone replacement therapy start age year value
RFQFemHlthHxHRTStartAgeYrVal
Age or year participant/subject started taking hormone replacement therapy as part of the risk factor questionnaire female health history.
If Yes, at what age did you start taking hormone replacement therapy?
  
Numeric Values
Age oe YeaR
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
RP4aAge;
RP4aYr
Risk Factor Questionnaire (RFQ) - Female Health History
Epidemiology/Environmental History
Participant History and Family History
RFQ - Female Health History Q4a
 
Free-Form Entry
       
C16641
Risk Factor Questionnaire (RFQ) - female health history-hormone replacement therapy start age year unknown indicator
RFQFemHlthHxHRTStrtAgeYrUnkInd
The indicator if the participant/subject does not know when she started taking hormone replacement therapy, indicate as "Don't Know" as part of the risk factor questionnaire female health history.
If Yes, at what age did you start taking hormone replacement therapy?
Don't know;
Don't know;
Alphanumeric
No instructions available
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Female Health History
Epidemiology/Environmental History
Participant History and Family History
RFQ - Female Health History Q4a don't know
 
Single Pre-Defined Value Selected
       
C16642
Risk Factor Questionnaire (RFQ) - female health history-hormone replacement therapy stop age or year value
RFQFemHlthHxHRTStopAgeYrVal
Age (or year) participant/subject stopped taking hormone replacement therapy as part of the risk factor questionnaire female health history.
If Yes, at what age did you stop taking hormone replacement therapy?
  
Numeric Values
Age oe YeaR
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
RP4bAge;
RP4bYr
Risk Factor Questionnaire (RFQ) - Female Health History
Epidemiology/Environmental History
Participant History and Family History
RFQ - Female Health History Q4b
 
Free-Form Entry
       
C16643
Risk Factor Questionnaire (RFQ) - female health history-hormone replacement therapy stop age year indicator
RFQFemHlthHxHRTStopAgeYrInd
If the participant/subject currently takes or does not know when she stopped taking hormone replacement therapy, indicate as Currently Take or Don't Know as part of the risk factor questionnaire female health history.
If Yes, at what age did you stop taking hormone replacement therapy?
Currently Take;Don’t know;
Currently Take;Don’t know;
Alphanumeric
If currently on hormone replacement therapy, leave blank and check "currently take".
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
Aliases for variable name not defined
Risk Factor Questionnaire (RFQ) - Female Health History
Epidemiology/Environmental History
Participant History and Family History
RFQ - Female Health History Q4b don't know
 
Single Pre-Defined Value Selected
       
C16644
Risk Factor Questionnaire (RFQ) - female health history-hormone replacement therapy total year value
RFQFemHlthHxHRTTtlYrVal
The total number of years participant/subject took hormone replacement therapy as part of the risk factor questionnaire female health history.
If Yes, during the above period, how many years in total did you take hormone replacement therapy?
  
Numeric Values
The period of time in question is during or after menopause for a period of at least 6 months. Do not include any months/years during the above period when participant/subject may have temporarily stopped taking hormone replacement therapy.
Epi Info: http://wwwn.cdc.gov/epiinfo/index.htm RFQ-U CRFs, Version 1.0 developed by the Epidemiology Working Group of the collaborative centers for PD.
Adult
Supplemental
3.0
7/14/2013
RP4c
Risk Factor Questionnaire (RFQ) - Female Health History
Epidemiology/Environmental History
Participant History and Family History
RFQ - Female Health History Q4c
 
Free-Form Entry
  
year
    
05-26-2017
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