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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Huntington's Disease
Sub-Domain: Epidemiology/Environmental History
CRF: History of Early Exposure to Huntington's disease
Item count: 23 (23 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C08076
Breastfed indicator
BreastfedInd
Indicator of whether the participant/subject was breastfed by his/her mother
Did your mother breastfeed you?
Yes;No;Unknown;
Yes;No;Unknown;
Alphanumeric
If No is answered, skip to Sibship/Birth Order section
No references available
Adult;Pediatric
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Breastfed indicator
 
Single Pre-Defined Value Selected
       
C08077
Full biological sibling indicator
FullBioSiblingInd
Indicator of whether the participant/subject has any full biological brothers and/or sisters. Full brothers and/or sisters are defined as those with whom a birth mother and father is shared.
Do you have any full brothers and/or sisters, that is, those with whom you share both birth mother and father?
Yes;No;Unknown;
Yes;No (Skip to Preschool Attendance);Unknown;
Alphanumeric
Please include brothers and sisters who are living or deceased, but do not include adopted, foster, half, or step brothers or sisters
No references available
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Full biological sibling indicator
 
Single Pre-Defined Value Selected
       
C08078
Full biological sisters number
FullBioSistersNum
Number of full biological sisters the participant/subject has
How many full sisters do you have?
  
Numeric Values
Answer only if previous question was answered Yes and sisters is applicable
No references available
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Full biological sisters number
 
Free-Form Entry
     
2192217
 
C08079
Full biological brothers number
FullBioBrothersNum
Number of full biological brothers the participant/subject has
How many full brothers do you have?
  
Numeric Values
Answer only if previous question was answered Yes and brothers is applicable
No references available
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Full biological brothers number
 
Free-Form Entry
       
C08080
Twin sibling indicator
TwinSiblingInd
Indicator of whether the participant/subject has a twin brother or sister
Do you have a twin brother or sister?
Yes;No;Unknown;
Yes;No;Unknown;
Alphanumeric
If No is answered, skip to question #3 - Including yourself, please identify who is the oldest of your siblings?
No references available
Adult;Pediatric
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Twin sibling indicator
 
Single Pre-Defined Value Selected
       
C08081
Twin sibling type
TwinSiblingTyp
Type of twin the participant/subject has
Are you and your twin identical or not identical?
Identical;Not identical (fraternal);Unknown;
Identical;Not identical (fraternal);Unknown;
Alphanumeric
No additional instructions
No references available
Adult;Pediatric
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Twin sibling type
 
Single Pre-Defined Value Selected
       
C08082
Sibling rank type
SiblingRankTyp
Sibling rank order to identify who is the eldest sibling and the second eldest sibling
Including yourself, please identify who is the oldest of your siblings?
Eldest;Second Eldest;
Eldest;Second Eldest;
Alphanumeric
Choose one response
No references available
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Sibling rank type
 
Single Pre-Defined Value Selected
       
C08083
Sibling name
SiblingName
Name of the sibling
Eldest Name; 2nd Eldest Name
  
Alphanumeric
Answer for both eldest and second eldest sibling
No references available
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Sibling name
255
Free-Form Entry
       
C08084
Sibling gender type
SiblingGenderTyp
Reported gender of the sibling. Gender is the socially constructed identity of sex
Sex
Male;Female;Unknown;Unspecified;
Male;Female;Unknown;Undifferentiated/Indeterminant/Intersex;
Alphanumeric
Answer for both eldest and second eldest sibling
No references available
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Sibling gender type
 
Single Pre-Defined Value Selected
     
2200604
 
C08085
Sibling alive indicator
SiblingAliveInd
Indicator of whether the participant's/subject's sibling is still living
Is this brother/sister still living?
Yes;No;Respondent;Unknown;
Yes;No;Respondent;Unknown;
Alphanumeric
Answer for both eldest and second eldest sibling
No references available
Adult;Pediatric
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Sibling alive indicator
 
Single Pre-Defined Value Selected
       
C08086
Sibling current age value
SiblingCurntAgeVal
Current age of the living sibling
If "Yes," please identify how old this brother/sister is now?
  
Numeric Values
If Yes is answered for previous question, answer for both eldest and second eldest sibling.
No references available
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Sibling current age value
 
Free-Form Entry
  
year
    
C08087
Sibling death age value
SiblingDeathAgeVal
Age of sibling when he/she died
If "No," please identify how old this brother/sister was when s/he died?
  
Numeric Values
If No is answered for previous question, answer for both eldest and second eldest sibling.
No references available
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Sibling death age value
 
Free-Form Entry
       
C08088
Age value unit of measure
AgeValUoM
Unit of measure used to initially record the age value
If "No," please identify how old this brother/sister was when s/he died?
Days;Weeks;Months;years;
Days;Weeks;Months;years;
Alphanumeric
Answer only if oldest brother/sister is dead and age at death was recorded. Choose one unit.
No references available
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Age value unit of measure
 
Single Pre-Defined Value Selected
       
C08104
Day care attendance indicator
DayCareAttendanceInd
Indicator of whether the participant/subject attended day care outside of the home as a child.
As a child, did you attend day care outside of your home?
Yes;No;
Yes;No (Skip to Question 2);
Alphanumeric
If No is answered, skip to question #2 - As a child, did you attend preschool?
No references available
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Day care attendance indicator
 
Single Pre-Defined Value Selected
       
C08105
Day care start date
DayCareStrtDate
Date participant/subject first started day care outside of home
If "Yes," in what year did the child begin and end the first (next) attendance?
  
Date or Date & Time
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).
ISO 8601 - http://www.iso.org/iso/iso_catalogue.htm
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Day care start date and time
 
Free-Form Entry
       
C08106
Day care end date
DayCareEndDate
Date participant/subject ended day care outside of home
If "Yes," in what year did the child begin and end the first (next) attendance?
  
Date or Date & Time
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).
ISO 8601 - http://www.iso.org/iso/iso_catalogue.htm
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Day care end date and time
 
Free-Form Entry
       
C08107
Day care hours per week value
DayCareHoursPerWkVal
Approximate hours per week the participant/subject attended day care as a child
About how many hours per week does child attend?
  
Numeric Values
Answer in hours
No references available
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Day care hours per week value
 
Free-Form Entry
  
hour
    
C08108
Preschool attendance indicator
PreschoolAttendanceInd
Indicator of whether the participant/subject attended preschool as a child
As a child, did you attend preschool?
Yes;No;
Yes;No;
Alphanumeric
If No is answered, End Questionnaire
No references available
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Preschool attendance indicator
 
Single Pre-Defined Value Selected
       
C08109
Preschool start date
PreschlStrtDate
Date participant/subject first started preschool
If "Yes," in what year did the child begin and end the first (next) attendance?
  
Date or Date & Time
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).
ISO 8601 - http://www.iso.org/iso/iso_catalogue.htm
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Preschool start date and time
 
Free-Form Entry
       
C08110
Preschool end date
PreschlEndDate
Date participant/subject ended preschool
If "Yes," in what year did the child begin and end the first (next) attendance?
  
Date or Date & Time
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).
ISO 8601 - http://www.iso.org/iso/iso_catalogue.htm
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Preschool end date and time
 
Free-Form Entry
       
C08111
Preschool hours per week value
PreschoolHoursPerWkVal
Approximate hours per week the participant/subject attended preschool as a child
About how many hours per week does child attend?
  
Numeric Values
Answer in hours
No references available
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Preschool hours per week value
 
Free-Form Entry
  
hour
    
C08112
Birth weight category
BirthWgtCat
Categorization of the participant's/subject's birth weight
What best describes your weight at birth?
Underweight;Average weight;Overweight;Unknown;
Underweight;Average weight;Overweight;Unknown;
Alphanumeric
No additional instructions
No references available
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Birth weight category
 
Single Pre-Defined Value Selected
       
C08113
Born prematurely indicator
BornPrematurInd
Indicator of whether the participant/subject was informed by a physician or parent/guardian that he/she was born prematurely
Were you told by a doctor or one of your parents that you were born premature?
Yes;No;Unknown;
Yes;No;Unknown;
Alphanumeric
No additional instructions
No references available
Adult
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
History of Early Exposure to Huntington's disease
Epidemiology/Environmental History
Participant History and Family History
Born prematurely indicator
 
Single Pre-Defined Value Selected
       
12-17-2017
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