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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Huntington's Disease
Sub-Domain: Emotional/Behavioral
CRF: Apathy Scale (AS)
Item count: 38 (19 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C17768
Apathy Scale (AS) - Form complete date
ASFormCompletedDate
Date the rater/interviewer completed the apathy scale questionnaire from Apathy Scale (AS).
Date
  
Date or Date & Time
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).
No references available
Adult
Supplemental
3.0
8/30/2013
Aliases for variable name not defined
Apathy Scale (AS)
Emotional/Behavioral
Outcomes and End Points
  
Free-Form Entry
       
C17769
Rater name
ASRaterName
Name of rater
Rater
  
Alphanumeric
No instructions available
No references available
Adult
Supplemental
3.0
8/30/2013
Aliases for variable name not defined
Apathy Scale (AS)
Emotional/Behavioral
Outcomes and End Points
 
255
Free-Form Entry
       
C09299
Apathy Scale (AS) - Apathetic interviewer scale
ASApthRatInd
The scale related to interviewer's opinion on how apathetic the subject is, as part of the Apathy Scale (AS) form.
Do you consider the patient to be apathetic? (Loss of motivation and emotional withdrawal)
0;1;2;3;
0=Not at all;1=Slightly;2=Some;3=A lot;
Numeric Values
Symptoms to be rated for the past 4 weeks
Starkstein, S.E., et al., Reliability, validity, and clinical correlates of apathy in Parkinson's disease. J Neuropsychiatry Clin Neurosci, 1992. 4(2): p. 134-9.
Adult
Supplemental
3.0
7/18/2013
Aliases for variable name not defined
Apathy Scale (AS)
Emotional/Behavioral
Outcomes and End Points
AS apathetic rating
 
Single Pre-Defined Value Selected
       
C09300
Apathy Scale (AS) - Comment text
ASApthCommTxt
Comments about the subjects apathetic rating, as part of the Apathy Scale (AS) form.
Comment
  
Alphanumeric
No instructions available
Starkstein, S.E., et al., Reliability, validity, and clinical correlates of apathy in Parkinson's disease. J Neuropsychiatry Clin Neurosci, 1992. 4(2): p. 134-9.
Adult
Supplemental
3.0
7/18/2013
Aliases for variable name not defined
Apathy Scale (AS)
Emotional/Behavioral
Outcomes and End Points
AS comments
255
Free-Form Entry
       
C09301
Apathy Scale (AS) - Learn eagerness scale
ASLernInd
The scale related to subject's eagerness to learn new things, as part of the Apathy Scale (AS) form.
Are you interested in learning new things? (Does learning new activities interest you as much as in the past? Do you have a desire to learn anything new?)
3;2;1;0;
3=Not at all;2=Slightly;1=Some;0=A lot;
Numeric Values
Symptoms to be rated for the past 4 weeks
Starkstein, S.E., et al., Reliability, validity, and clinical correlates of apathy in Parkinson's disease. J Neuropsychiatry Clin Neurosci, 1992. 4(2): p. 134-9.
Adult
Supplemental
3.0
7/18/2013
Aliases for variable name not defined
Apathy Scale (AS)
Emotional/Behavioral
Outcomes and End Points
AS Q1
 
Single Pre-Defined Value Selected
       
C09302
Apathy Scale (AS) - Interest scale
ASIntInd
The scale related to subject's interests, as part of the Apathy Scale (AS) form.
Do you have anything that interests you? (Do you have interest in your usual activities? Do activities interest you as much as in the past?)
3;2;1;0;
3=Not at all;2=Slightly;1=Some;0=A lot;
Numeric Values
Symptoms to be rated for the past 4 weeks
Starkstein, S.E., et al., Reliability, validity, and clinical correlates of apathy in Parkinson's disease. J Neuropsychiatry Clin Neurosci, 1992. 4(2): p. 134-9.
Adult
Supplemental
3.0
7/18/2013
Aliases for variable name not defined
Apathy Scale (AS)
Emotional/Behavioral
Outcomes and End Points
AS Q2
 
Single Pre-Defined Value Selected
       
C09303
Apathy Scale (AS) - Personal instruction indicator
ASPersnlInstrInd
The scale related to subject's ability to start new tasks without prodding, as part of the Apathy Scale (AS).
Does someone have to tell you what to do each day? (If someone doesn’t ask you to do things, do you just sit? Do you need prodding to get going?)
0;1;2;3;
0=Not at all;1=Slightly;2=Some;3=A lot;
Numeric Values
Symptoms to be rated for the past 4 weeks
Starkstein, S.E., et al., Reliability, validity, and clinical correlates of apathy in Parkinson's disease. J Neuropsychiatry Clin Neurosci, 1992. 4(2): p. 134-9.
Adult
Supplemental
3.0
7/18/2013
Aliases for variable name not defined
Apathy Scale (AS)
Emotional/Behavioral
Outcomes and End Points
AS Q3
 
Single Pre-Defined Value Selected
       
C09304
Apathy Scale (AS) - Condition concern scale
ASConcCondInd
The scale related to subject's concern for ones own condition, as part of the Apathy Scale (AS) form.
Are you concerned about your condition? (Do you think anything is wrong with you? Does your condition worry you?)
3;2;1;0;
3=Not at all;2=Slightly;1=Some;0=A lot;
Numeric Values
Symptoms to be rated for the past 4 weeks
Starkstein, S.E., et al., Reliability, validity, and clinical correlates of apathy in Parkinson's disease. J Neuropsychiatry Clin Neurosci, 1992. 4(2): p. 134-9.
Adult
Supplemental
3.0
7/18/2013
Aliases for variable name not defined
Apathy Scale (AS)
Emotional/Behavioral
Outcomes and End Points
AS Q4
 
Single Pre-Defined Value Selected
       
C09305
Apathy Scale (AS) - Indifference scale
ASIndfInd
The scale related to subject's indifference to things, as part of the Apathy Scale (AS) form.
Are you indifferent to things? (Do you lack pleasure in anything? Does doing something leave you feeling, so what?)
0;1;2;3;
0=Not at all;1=Slightly;2=Some;3=A lot;
Numeric Values
Symptoms to be rated for the past 4 weeks
Starkstein, S.E., et al., Reliability, validity, and clinical correlates of apathy in Parkinson's disease. J Neuropsychiatry Clin Neurosci, 1992. 4(2): p. 134-9.
Adult
Supplemental
3.0
7/18/2013
Aliases for variable name not defined
Apathy Scale (AS)
Emotional/Behavioral
Outcomes and End Points
AS Q5
 
Single Pre-Defined Value Selected
       
C09306
Apathy Scale (AS) - Effort scale
ASEffrtInd
The scale related to subject's desire to put effort into things, as part of the Apathy Scale (AS) form.
Do you put much effort into things? (Do you have the energy to do things like your did in the past? Do you feel the desire to put a lot of effort into your work?)
3;2;1;0;
3=Not at all;2=Slightly;1=Some;0=A lot;
Numeric Values
Symptoms to be rated for the past 4 weeks
Starkstein, S.E., et al., Reliability, validity, and clinical correlates of apathy in Parkinson's disease. J Neuropsychiatry Clin Neurosci, 1992. 4(2): p. 134-9.
Adult
Supplemental
3.0
7/18/2013
Aliases for variable name not defined
Apathy Scale (AS)
Emotional/Behavioral
Outcomes and End Points
AS Q6
 
Single Pre-Defined Value Selected
       
C09307
Apathy Scale (AS) - Seek work scale
ASSekWrkInd
The scale related to subject's desire to partake in projects, as part of the Apathy Scale (AS) form.
Are you always looking for something to do? (Do you feel like doing projects? Do you have the desire to start a new project?)
3;2;1;0;
3=Not at all;2=Slightly;1=Some;0=A lot;
Numeric Values
Symptoms to be rated for the past 4 weeks
Starkstein, S.E., et al., Reliability, validity, and clinical correlates of apathy in Parkinson's disease. J Neuropsychiatry Clin Neurosci, 1992. 4(2): p. 134-9.
Adult
Supplemental
3.0
7/18/2013
Aliases for variable name not defined
Apathy Scale (AS)
Emotional/Behavioral
Outcomes and End Points
AS Q7
 
Single Pre-Defined Value Selected
       
C09308
Apathy Scale (AS) - Goal scale
ASGolsInd
The scale related to whether or not the subject has goals and plans for the future, as part of the Apathy Scale (AS) form.
Do you have plans and goals for the future? (Do you think and plan for the future? Is achieving your goals an important factor in your life?)
3;2;1;0;
3=Not at all;2=Slightly;1=Some;0=A lot;
Numeric Values
Symptoms to be rated for the past 4 weeks
Starkstein, S.E., et al., Reliability, validity, and clinical correlates of apathy in Parkinson's disease. J Neuropsychiatry Clin Neurosci, 1992. 4(2): p. 134-9.
Adult
Supplemental
3.0
7/18/2013
Aliases for variable name not defined
Apathy Scale (AS)
Emotional/Behavioral
Outcomes and End Points
AS Q8
 
Single Pre-Defined Value Selected
       
C09309
Apathy Scale (AS) - Motivation scale
ASMotvInd
The scale related to the subject's self motivation, as part of the Apathy Scale (SC) form.
Do you have motivation? (Do you feel inspired to accomplish tasks? Does the desire to accomplish something give you energy?)
3;2;1;0;
3=Not at all;2=Slightly;1=Some;0=A lot;
Numeric Values
Symptoms to be rated for the past 4 weeks
Starkstein, S.E., et al., Reliability, validity, and clinical correlates of apathy in Parkinson's disease. J Neuropsychiatry Clin Neurosci, 1992. 4(2): p. 134-9.
Adult
Supplemental
3.0
7/18/2013
Aliases for variable name not defined
Apathy Scale (AS)
Emotional/Behavioral
Outcomes and End Points
AS Q9
 
Single Pre-Defined Value Selected
       
C09310
Apathy Scale (AS) - Energy scale
ASEnrgyInd
The scale related to the subject's energy levels, as part of the Apathy Scale (AS) form.
Do you have the energy to do your daily activities? (Do you rarely feel too tired to do daily chores? Do you have the energy to take care of yourself?)
3;2;1;0;
3=Not at all;2=Slightly;1=Some;0=A lot;
Numeric Values
Symptoms to be rated for the past 4 weeks
Starkstein, S.E., et al., Reliability, validity, and clinical correlates of apathy in Parkinson's disease. J Neuropsychiatry Clin Neurosci, 1992. 4(2): p. 134-9.
Adult
Supplemental
3.0
7/18/2013
Aliases for variable name not defined
Apathy Scale (AS)
Emotional/Behavioral
Outcomes and End Points
AS Q10
 
Single Pre-Defined Value Selected
       
C09311
Apathy Scale (AS) - Unconcern scale
ASUnconcInd
The scale related to how concerned with the ongoings of life the subject is, as part of the Apathy Scale (AS) form.
Are you unconcerned with many things? (Do you feel like you don’t care about things? Have you stopped caring about what happens?)
0;1;2;3;
0=Not at all;1=Slightly;2=Some;3=A lot;
Numeric Values
Symptoms to be rated for the past 4 weeks
Starkstein, S.E., et al., Reliability, validity, and clinical correlates of apathy in Parkinson's disease. J Neuropsychiatry Clin Neurosci, 1992. 4(2): p. 134-9.
Adult
Supplemental
3.0
7/18/2013
Aliases for variable name not defined
Apathy Scale (AS)
Emotional/Behavioral
Outcomes and End Points
AS Q11
 
Single Pre-Defined Value Selected
       
C09312
Apathy Scale (AS) - Start task ability no prompt scale
ASSrtTaskAbltyNoPromptInd
The scale related to subject's ability to start tasks without prompting, as part of the Apathy Scale (AS) form.
Do you need a push to get started on things? (Do you need someone to bug you before you can do things? Does someone else have to help you to begin tasks?)
0;1;2;3;
0=Not at all;1=Slightly;2=Some;3=A lot;
Numeric Values
Symptoms to be rated for the past 4 weeks
Starkstein, S.E., et al., Reliability, validity, and clinical correlates of apathy in Parkinson's disease. J Neuropsychiatry Clin Neurosci, 1992. 4(2): p. 134-9.
Adult
Supplemental
3.0
7/18/2013
Aliases for variable name not defined
Apathy Scale (AS)
Emotional/Behavioral
Outcomes and End Points
AS Q12
 
Single Pre-Defined Value Selected
       
C09313
Apathy Scale (AS) - Neutral mood scale
ASNeutMoodInd
The scale related to subject's self reflection on their own mood and attitude towards the life that surrounds them, as part of the Apathy Scale (AS) form.
Are you neither happy nor sad, just in-between, no matter what happens? (Do you feel your emotions are gone? Do you feel “blah” about everything that happens?)
0;1;2;3;
0=Not at all;1=Slightly;2=Some;3=A lot;
Numeric Values
Symptoms to be rated for the past 4 weeks
Starkstein, S.E., et al., Reliability, validity, and clinical correlates of apathy in Parkinson's disease. J Neuropsychiatry Clin Neurosci, 1992. 4(2): p. 134-9.
Adult
Supplemental
3.0
7/18/2013
Aliases for variable name not defined
Apathy Scale (AS)
Emotional/Behavioral
Outcomes and End Points
AS Q13
 
Single Pre-Defined Value Selected
       
C09314
Apathy Scale (AS) - Apathetic scale
ASApthInd
The scale related to subject's self reflection on personal apathetic state, as part of the Apathy Scale (AS) form.
Would you consider yourself apathetic? (Have you lost your interest and motivation? Compared to the past, are you more apathetic now?)
0;1;2;3;
0=Not at all;1=Slightly;2=Some;3=A lot;
Numeric Values
Symptoms to be rated for the past 4 weeks
Starkstein, S.E., et al., Reliability, validity, and clinical correlates of apathy in Parkinson's disease. J Neuropsychiatry Clin Neurosci, 1992. 4(2): p. 134-9.
Adult
Supplemental
3.0
7/18/2013
Aliases for variable name not defined
Apathy Scale (AS)
Emotional/Behavioral
Outcomes and End Points
AS Q14
 
Single Pre-Defined Value Selected
       
C09315
Apathy Scale (AS) - total score
ASTotalScore
Total Score on the apathy scale, as part of the Apathy Scale (AS) form.
Total Score
  
Numeric Values
Sum of Q1 - Q14
Starkstein, S.E., et al., Reliability, validity, and clinical correlates of apathy in Parkinson's disease. J Neuropsychiatry Clin Neurosci, 1992. 4(2): p. 134-9.
Adult
Supplemental
3.0
7/18/2013
Aliases for variable name not defined
Apathy Scale (AS)
Emotional/Behavioral
Outcomes and End Points
AS total score
 
Free-Form Entry
       
09-25-2017
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