of0
 
CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Huntington's Disease
Sub-Domain: Demographics
CRF: Demographics
Item count: 8 (8 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C00035
Gender type
GenderTyp
Self-reported gender of the participant/subject. Gender is the socially constructed identity of sex. Gender is equated with phenotypic sex. Gender may differ from the sex of an individual determined genetically.
Gender
Female;Male;Unknown;Unspecified;Not reported;
Female;Male;Unknown;Undifferentiated/Indeterminant/Intersex;Not reported;
Alphanumeric
Choose one
The NIH Guidelines on Inclusion of Women and Minorities as Subjects in Clinical Research: The Office of Management and Budget Directive No. 15 (http://grants.nih.gov/grants/funding/women_min/guidelines_update.htm)
Adult;Pediatric
Core
3.0
8/28/2013
caBIG: PRSN_GENDER_TXT_TP; SCI CDEs: GENDER
Demographics
Demographics
Participant Characteristics
Gender type
 
Single Pre-Defined Value Selected
     
2200604
 
C00007
Birth date
BirthDate
Date (and time, if applicable and known) the participant/subject was born
Date of Birth
  
Date or Date & Time
Record the date of birth to the level of precision known (e.g., month/day/year, year, month/year, etc). The preferred format for recording date is mm/dd/yyyy. 99/99/9999 can be used to indicate an unknown date.
No references available
Adult;Pediatric
Core
3.0
7/25/2013
caBIG: PER_BIR_DT; SCI CDEs: BIRTHDT
Demographics
Demographics
Participant Characteristics
Birth date
 
Free-Form Entry
     
793
 
C00020
Ethnicity USA category
EthnUSACat
Category of ethnicity the participant/subject most closely identifies with
Ethnicity
  
Alphanumeric
Choose only one with which the participant/ subject most closely identifies.
The NIH Guidelines on Inclusion of Women and Minorities as Subjects in Clinical Research: The Office of Management and Budget Directive No. 15 defines the minimum standard of basic racial and ethnic categories. (http://grants.nih.gov/grants/funding/women_min/guidelines_update.htm)
Adult;Pediatric
Core
3.0
8/28/2013
ETHN_GRP_CAT_TXT
Demographics
Demographics
Participant Characteristics
Ethnicity USA category
 
Single Pre-Defined Value Selected
     
2192217
 
C00031
Race expanded category
RaceCat
Category of race(s) or region(s) the participant/subject most closely identifies with
Race
American Indian or Alaska Native;Black African;African-North;Black African American;Asian-East;Asian-West;Caucasian;Hawaiian;Other;Unknown;
A person having origins in any of the original peoples of North and South America (including Central America) , and who maintains tribal affiliation or community attachment.;Black African (for OMB purposes, this value is considered to be part of Black or African-American);African-North;Black African American (for OMB purposes, this value is considered to be part of Black or African-American);Asian-East;Asian-West;Caucasian;Hawaiian (for OMB purposes, this value is considered to be part of Native Hawaiian or Other Pacific Islander);Other;Unknown;
Alphanumeric
Choose all those with which the participant/ subject identifies
No references available
Adult;Pediatric
Core
3.0
7/22/2013
Aliases for variable name not defined
Demographics
Demographics
Participant Characteristics
Race expanded category
 
Multiple Pre-Defined Values Selected
       
C11138
Country of origin paternal ISO code
CntryOfOriginPaternalISOCode
The ISO 3166-1 alpha-2 code for the participant's father's country of origin.
Father’s country of birth
  
Alphanumeric
See ISO 3166-1 alpha-2 codes (http://www.iso.org/iso/iso_3166_code_lists)
See ISO 3166-1 alpha-2 codes (http://www.iso.org/iso/iso_3166_code_lists)
Adult;Pediatric
Supplemental
3.0
7/25/2013
Aliases for variable name not defined
Demographics
Demographics
Participant Characteristics
Country of origin paternal ISO 3166-1 alpha-2 code
255
Free-Form Entry
       
C11136
Country of origin paternal name
CntryOfOriginPaternalName
Father's country or countries of origin
Father’s country of birth
  
Alphanumeric
List one or more countries based on the father's self-report. Country data should be coded using the ISO 3166-1 alpha-2 codes prior to aggregation or sharing.
No references available
Adult;Pediatric
Supplemental
3.0
7/25/2013
Aliases for variable name not defined
Demographics
Demographics
Participant Characteristics
Country of origin paternal name
255
Free-Form Entry
       
C11139
Country of origin maternal ISO code
CntryOfOriginMaternalISOCode
The ISO 3166-1 alpha-2 code for the participant's mother's country of origin.
Mother’s country of birth
  
Alphanumeric
See ISO 3166-1 alpha-2 codes (http://www.iso.org/iso/iso_3166_code_lists)
See ISO 3166-1 alpha-2 codes (http://www.iso.org/iso/iso_3166_code_lists)
Adult;Pediatric
Supplemental
3.0
7/25/2013
Aliases for variable name not defined
Demographics
Demographics
Participant Characteristics
Country of origin maternal ISO 3166-1 alpha-2 code
255
Free-Form Entry
       
C10675
Country of origin maternal name
CntryofOriginMaternalName
Mother's country or countries of origin
Mother’s country of birth
  
Alphanumeric
List one or more countries based on the mother's self-report. Country data should be coded using the ISO 3166-1 alpha-2 codes prior to aggregation or sharing.
No references available
Adult;Pediatric
Supplemental
3.0
7/25/2013
Aliases for variable name not defined
Demographics
Demographics
Participant Characteristics
Country of origin maternal name
255
Free-Form Entry
       
02-24-2017
Page 1 of 1