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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: General (For all diseases)
Sub-Domain: NIH Resources
CRF: Neuro-QOL Adult Bank - Fatigue
Item count: 19 (19 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C20544
Quality of Life in Neurological Disorders (Neuro-Qol) - Exhaustion fatigue assessment past week scale
NeuroQolExhaustedScale
The scale representing how often the participant felt exhausted in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
In the past 7 days I felt exhausted…
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Please respond to each question or statement by marking one box per row.
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions. Qual Life Res 2006; A14: 1353. http://www.neuroqol.org/Pages/default.aspx
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Fatigue
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20546
Quality of Life in Neurological Disorders (Neuro-Qol) - No energy fatigue asssessment past week scale
NeuroQolNoEnergyScale
The scale representing how often the participant felt no energy in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
In the past 7 days I felt that I had no energy…
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Please respond to each question or statement by marking one box per row.
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions. Qual Life Res 2006; A14: 1353. http://www.neuroqol.org/Pages/default.aspx
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Fatigue
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20547
Quality of Life in Neurological Disorders (Neuro-Qol) - Fatigue assessment past week scale
NeuroQolFatigueScale
The scale representing how often the participant felt fatigued in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
In the past 7 days I felt fatigued…
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Please respond to each question or statement by marking one box per row.
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions. Qual Life Res 2006; A14: 1353. http://www.neuroqol.org/Pages/default.aspx
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Fatigue
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20548
Quality of Life in Neurological Disorders (Neuro-Qol) - No household chore fatigue assessment past week scale
NeuroQolTiredChoresScale
The scale representing how often the participant felt too tired to do household chores in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
In the past 7 days I was too tired to do my household chores…
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Please respond to each question or statement by marking one box per row.
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions. Qual Life Res 2006; A14: 1353. http://www.neuroqol.org/Pages/default.aspx
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Fatigue
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20549
Quality of Life in Neurological Disorders (Neuro-Qol) - Not leave house fatigue assessment past week scale
NeuroQolTiredLeavehouseScale
The scale representing how often the participant felt too tired to leave the house in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
In the past 7 days I was too tired to leave the house…
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Please respond to each question or statement by marking one box per row.
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions. Qual Life Res 2006; A14: 1353. http://www.neuroqol.org/Pages/default.aspx
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Fatigue
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20550
Quality of Life in Neurological Disorders (Neuro-Qol) - Frustration tired for action fatigue assessment past week scale
NeuroQolFrustTiredThingsScale
The scale representing how often the participant felt frustrated by being too tired to do the things they wanted to do in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
In the past 7 days I was frustrated by being too tired to do the things I wanted to do…
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Please respond to each question or statement by marking one box per row.
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions. Qual Life Res 2006; A14: 1353. http://www.neuroqol.org/Pages/default.aspx
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Fatigue
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20552
Quality of Life in Neurological Disorders (Neuro-Qol) - Tiredness fatigue asssessment past week scale
NeuroQolTiredScale
The scale representing how often the participant felt tired in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
In the past 7 days I felt tired…
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Please respond to each question or statement by marking one box per row.
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions. Qual Life Res 2006; A14: 1353. http://www.neuroqol.org/Pages/default.aspx
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Fatigue
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20554
Quality of Life in Neurological Disorders (Neuro-Qol) - Limit social activity fatigue assessment past week scale
NeuroQolLimitSocialTiredScale
The scale representing how often the participant had to limit social activity because of being tired in the past 7 days, as part of the Quality of Life in Neurological Disorders(Neuro-Qol).
In the past 7 days I had to limit my social activity because I was tired…
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Please respond to each question or statement by marking one box per row.
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions. Qual Life Res 2006; A14: 1353. http://www.neuroqol.org/Pages/default.aspx
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Fatigue
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20557
Quality of Life in Neurological Disorders (Neuro-Qol) - Usual activity assistance need fatigue assessment past week scale
NeuroQolUsualActFatigueScale
The scale representing how often the participant needed help doing usual activities because of fatigue in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
In the past 7 days I needed help doing my usual activities because of my fatigue…
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Please respond to each question or statement by marking one box per row.
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions. Qual Life Res 2006; A14: 1353. http://www.neuroqol.org/Pages/default.aspx
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Fatigue
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20560
Quality of Life in Neurological Disorders (Neuro-Qol) - Sleep need during day past week scale
NeuroQolNeedSleepDayScale
The scale representing how often the participant needed to sleep during the day in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
In the past 7 days I needed to sleep during the day…
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Please respond to each question or statement by marking one box per row.
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions. Qual Life Res 2006; A14: 1353. http://www.neuroqol.org/Pages/default.aspx
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Fatigue
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20563
Quality of Life in Neurological Disorders (Neuro-Qol) - Difficulty begin task fatigue assessment past week scale
NeuroQolTroubleStartScale
The scale representing how often the participant had trouble starting things because they were too tired in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
In the past 7 days I had trouble starting things because I was too tired…
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Please respond to each question or statement by marking one box per row.
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions. Qual Life Res 2006; A14: 1353. http://www.neuroqol.org/Pages/default.aspx
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Fatigue
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20566
Quality of Life in Neurological Disorders (Neuro-Qol) - Difficulty finish task fatigue assessment past week scale
NeuroQolTroubleFinishScale
The scale representing how often the participant had trouble finishing things because they were too tired in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
In the past 7 days I had trouble finishing things because I was too tired…
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Please respond to each question or statement by marking one box per row.
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions. Qual Life Res 2006; A14: 1353. http://www.neuroqol.org/Pages/default.aspx
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Fatigue
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20569
Quality of Life in Neurological Disorders (Neuro-Qol) - No short walk fatigue assessment past week scale
NeuroQolTiredShortWalkScale
The scale representing how often the participant was too tired to take a short walk in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
In the past 7 days I was too tired to take a short walk…
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Please respond to each question or statement by marking one box per row.
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions. Qual Life Res 2006; A14: 1353. http://www.neuroqol.org/Pages/default.aspx
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Fatigue
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20571
Quality of Life in Neurological Disorders (Neuro-Qol) - Poor appetite fatigue assessment past week scale
NeuroQolTiredEatScale
The scale representing how often the participant was too tired to eat in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
In the past 7 days I was too tired to eat…
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Please respond to each question or statement by marking one box per row.
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions. Qual Life Res 2006; A14: 1353. http://www.neuroqol.org/Pages/default.aspx
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Fatigue
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20572
Quality of Life in Neurological Disorders (Neuro-Qol) - Rest during day fatigue assessment past week scale
NeuroQolNeedRestDayScale
The scale representing how often the participant was so tired that they needed rest during the day in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
In the past 7 days I was so tired that I needed to rest during the day…
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Please respond to each question or statement by marking one box per row.
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions. Qual Life Res 2006; A14: 1353. http://www.neuroqol.org/Pages/default.aspx
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Fatigue
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20573
Quality of Life in Neurological Disorders (Neuro-Qol) - Overall weakness fatigue assessement past week scale
NeuroQolWeakAllOverScale
The scale representing how often the participant felt weak all over in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
In the past 7 days I felt weak all over…
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Please respond to each question or statement by marking one box per row.
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions. Qual Life Res 2006; A14: 1353. http://www.neuroqol.org/Pages/default.aspx
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Fatigue
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20575
Quality of Life in Neurological Disorders (Neuro-Qol) - Usual activity help requirement fatigue assessment past week scale
NeuroQolUsualActWeakScale
The scale representing how often the participant needed help during usual activities because of weakness in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
In the past 7 days I needed help doing my usual activities because of my weakness…
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Please respond to each question or statement by marking one box per row.
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions. Qual Life Res 2006; A14: 1353. http://www.neuroqol.org/Pages/default.aspx
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Fatigue
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20577
Quality of Life in Neurological Disorders (Neuro-Qol) - Limit social activity physical weakness fatigue asssessment past week scale
NeuroQolLimitSocialWeakScale
The scale representing how often the participant had to limit social activity because of being physically weak in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
In the past 7 days I had to limit my social activity because I was physically weak…
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Please respond to each question or statement by marking one box per row.
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions. Qual Life Res 2006; A14: 1353. http://www.neuroqol.org/Pages/default.aspx
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Fatigue
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20579
Quality of Life in Neurological Disorders (Neuro-Qol) - Force self action physical weakness fatigue assessment past week scale
NeuroQolForceWakeUpWeakScale
The scale representing how often the participant had to force self to get up and do things because they were physically too weak in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
In the past 7 days I had to force myself to get up and do things because I was physically too weak…
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Please respond to each question or statement by marking one box per row.
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions. Qual Life Res 2006; A14: 1353. http://www.neuroqol.org/Pages/default.aspx
Adult;Pediatric
Supplemental
1.0
5/20/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Fatigue
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
12-17-2018
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