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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: General (For all diseases)
Sub-Domain: NIH Resources
CRF: Neuro-QOL Adult Bank - Sleep Disturbance
Item count: 16 (8 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C21288
Quality of Life - Force awake morning past week scale
QoLForceAwakeMorningScl
The scale representing how often the participant had to force himself/herself to get up in the morning in the past 7 days, as part of Neuro-QOL Sleep Disturbance.
In the past 7 days I had to force myself to get up in the morning.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Sleep Disturbance
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Sleep Disturbance
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20822
Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime trouble thought assessment past week scale
PROMISTrblStpThghtBedtimeScale
The scale which represents how often the participant had trouble stopping his/her thoughts at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
In the past 7 days I had trouble stopping my thoughts at bedtime.
1;2;3;4;5;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Sleep Disturbance
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Disturbance Sleep139
Adult;Pediatric
Supplemental
1.0
5/21/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Sleep Disturbance
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20852
Patient-Reported Outcome Measurement Information System (PROMIS) - trouble stay awake during day past week scale
PROMISTrblStayAwakeInDayScale
The scale which represents how often the participant had trouble staying awake during the day in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
In the past 7 days I was sleepy during the daytime.
1;2;3;4;5;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Sleep Disturbance
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Related Impairment Sleep44
Adult;Pediatric
Supplemental
1.0
5/21/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Sleep Disturbance
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C21289
Quality of Life - Bad dream sleep trouble past week scale
QoLBadDreamSleepTroubleScl
The scale representing how often the participant had trouble sleeping because of dreams in the past 7 days, as part of Neuro-QOL Sleep Disturbance.
In the past 7 days I had trouble sleeping because of bad dreams.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Sleep Disturbance
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Sleep Disturbance
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C20816
Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep difficulty assessment past week scale
PROMISDifficultFallAsleepScale
The scale which represents how often the participant had difficulty falling asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
In the past 7 days I had difficulty falling asleep.
1;2;3;4;5;
Not at all;A little bit;Somewhat;Quite a bit;Very much;
Numeric Values
Part of Neuro-QOL Adult Bank - Sleep Disturbance
"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Disturbance Sleep125
Adult;Pediatric
Supplemental
1.0
5/21/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Sleep Disturbance
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C21290
Quality of Life - Awake pain past week scale
QoLAwakePainScl
The scale representing how often pain woke the participant up in the last 7 days, as part of Neuro-QOL Sleep Disturbance.
In the past 7 days pain woke me up.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Sleep Disturbance
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Sleep Disturbance
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C21291
Quality of Life - Cancel friend activity bad sleep past week scale
QoLCancelFriendActvtBadSlpScl
The scale representing how often the participant avoided or cancelled activities with their friends because they were tired from having a bad night's sleep in the past 7 days, as part of Neuro-QOL Sleep Disturbance.
In the past 7 days I avoided or cancelled activities with my friends because I was tired from having a bad night's sleep.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Sleep Disturbance
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Sleep Disturbance
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
C21292
Quality of Life - Middle night physical tension past week scale
QoLMddleNightPhysiclTensionScl
The scale representing how often the participant felt physically tense during the middle of the night or early morning hours in the past 7 days, as part of Neuro-QOL Sleep Disturbance.
In the past 7 days I felt physically tense during the middle of the night or early morning hours.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Sleep Disturbance
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Sleep Disturbance
NIH Resources
NIH Resources
  
Single Pre-Defined Value Selected
       
12-17-2018
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