of0
Export
 
CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Friedreich's Ataxia
Sub-Domain: Social Status
CRF: Social Status
Item count: 11 (11 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C00012
Education level USA type
EduLvlUSATyp
Highest grade or level of school participant/subject has completed or the highest degree received
Education level
Never attended/Kindergarten only;1st Grade;2nd Grade;3rd Grade;4th Grade;5th Grade;6th Grade;7th Grade;8th Grade;9th Grade;10th Grade;11th Grade;12th Grade, no diploma;High school graduate;GED or equivalent;Some college, no degree;Associate degree: occupational/technical/vocational program;Associate degree: academic program;Bachelor's degree (e.g., BA, AB, BS, BBA);Master's degree (e.g., MA, MS, MEng, MEd, MBA);Professional school degree (e.g., MD, DDS, DVM, JD);Doctoral degree (e.g., PhD, EdD);Unknown;
Never attended/Kindergarten only;1st Grade;2nd Grade;3rd Grade;4th Grade;5th Grade;6th Grade;7th Grade;8th Grade;9th Grade;10th Grade;11th Grade;12th Grade, no diploma;High school graduate;GED or equivalent;Some college, no degree;Associate degree: occupational/technical/vocational program;Associate degree: academic program;Bachelor's degree (e.g., BA, AB, BS, BBA);Master's degree (e.g., MA, MS, MEng, MEd, MBA);Professional school degree (e.g., MD, DDS, DVM, JD);Doctoral degree (e.g., PhD, EdD);Unknown;
Alphanumeric
Choose highest level attained.
National Health and Nutrition Examination Survey (NHANES); National Health Interview Survey (NHIS); PhenX Toolkit Current Educational Attainment #011001 (https://www.phenxtoolkit.org)
Adult;Pediatric
Supplemental
3.0
7/25/2013
HIGHEST_EDU_LVL_CAT
Social Status
Social Status
Participant Characteristics
Education level USA type
 
Single Pre-Defined Value Selected
     
3134878
 
C00204
Employment current status
EmplmtStatu
Status of participant/subject's current employment
Employment status
Working Now;Only temporarily laid off, sick leave, or maternity leave;Looking for work, unemployed;Retired;Disabled, permanently or temporarily;Keeping house;Student;Other, specify;Unknown;
Working Now;Only temporarily laid off, sick leave, or maternity leave;Looking for work, unemployed;Retired;Disabled, permanently or temporarily;Keeping house;Student;Other, specify;Unknown;
Alphanumeric
Choose one.
National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm)
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
Employment status
 
Single Pre-Defined Value Selected
       
C18677
Employment other text
EmplmtOTH
The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment
Other, specify
  
Alphanumeric
Choose one.
National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm)
Adult;Pediatric
Supplemental
1.0
5/27/2014
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
 
4000
Free-Form Entry
       
C10678
Employment full-time status
EmplymtFullTimeStatus
Status of participant/subject's current full-time employment
Full-time employment
Yes;No;Hours vary;Unknown;Not reported;
Yes;No;Hours vary;Unknown;Not reported;
Alphanumeric
Choose one.
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
Full-time employment status
 
Single Pre-Defined Value Selected
       
C00207
Marital or partner status
MartlPartnerStatus
Status of participant/subject's current domestic relationship, whether marital or partnered
Marital/partner status
Never married;Married;Domestic partnership;Divorced;Separated;Widowed;
Never married;Married;Domestic partnership;Divorced;Separated;Widowed;
Alphanumeric
Choose one. Response is obtained by report of the participant/subject or a reliable proxy.
Johnson NJ, Backlund E, Sorlie PD, Loveless CA. Marital status and mortality: the national longitudinal mortality study. Ann Epidemiol. 2000;10:224-238.
Adult;Pediatric
Supplemental
3.0
7/25/2013
PRSN_MARST_CAT
Social Status
Social Status
Participant Characteristics
Marital or partner status
 
Single Pre-Defined Value Selected
     
2188083
 
C00214
Living with persons count
PrsnCohabitCt
Count of other people with whom the participant/subject currently lives, cohabits, or stays
Number of people the participant/subject lives or stays with
  
Numeric Values
Answer should be recorded as a 2 digit number (i.e., one should be recorded as 01, ten should be recorded as 10). Participant/subject should NOT be included. Include everyone who is living or staying at location for more than 2 months. Include anyone else staying there who does not have another place to stay even if they are here for 2 months or less. Do not include anyone who is living somewhere else for more than 2 months, such as college student living away or someone in the Armed Forces on deployment.
American Community Survey questionnaire. U.S. Department of Commerce, U.S. Census Bureau. http://www.census.gov/acs/www/Downloads/questionnaires/2012/Quest12.pdf
Adult;Pediatric
Supplemental
3.0
7/25/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
Living with persons number
 
Free-Form Entry
0
99
     
C00215
Living with person relationship type
LivPrsnRltnshpTyp
Type(s) of relationship(s) that obtain between the participant/subject and all people with whom she or he currently lives, cohabits, or stays
Persons living with
Husband or wife;Biological son or daughter;Adopted son or daughter;Stepson or stepdaughter;Brother or sister;Father or mother;Stepfather or stepmother;Grandchild;Grandparent;Parent-in-law;Son-in-law or daughter-in-law;Other relative;Roomer or boarder;Housemate or roommate;Unmarried partner;Foster child;Other nonrelative;Military unit member;N/A - Homeless;N/A - Alone;Personal care attendant;Other patient/ resident in care facility;Unknown;
Husband or wife;Biological son or daughter;Adopted son or daughter;Stepson or stepdaughter;Brother or sister;Father or mother;Stepfather or stepmother;Grandchild;Grandparent;Parent-in-law;Son-in-law or daughter-in-law;Other relative;Roomer or boarder;Housemate or roommate;Unmarried partner;Foster child;Other nonrelative;Military unit member;N/A - Homeless;N/A - Alone;Personal care attendant;Other patient/ resident in care facility;Unknown;
Alphanumeric
Skip this data element if the participant/ subject lives alone. If he/she lives with one or more people, choose all that apply.
American Community Survey questionnaire. U.S. Department of Commerce, U.S. Census Bureau, http://www.census.gov/acs/www/Downloads/questionnaires/2012/Quest12.pdf Four additional permissible values were added on for FA.
Adult;Pediatric
Supplemental
3.0
7/25/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
Living with person relationship type
 
Multiple Pre-Defined Values Selected
       
C10679
Paid assistance per day hours number
PdAsstPerDayHrsCt
How many hours in a typical 24-hour day do you have someone with you [paid assistance] to provide physical assistance for personal care activities such as eating, bathing, dressing, toileting and mobility?
How many hours in a typical 24-hour day do you have someone with you (paid assistance) to provide physical assistance for personal care activities such as eating, bathing, dressing, toileting and mobility?
  
Numeric Values
Record the number of hours of paid assistance the participant/subject receives in a 24-hour day.
No references available
Adult;Pediatric
Supplemental
3.0
7/11/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
Paid assistance per day hours number
 
Free-Form Entry
       
C10680
Unpaid assistance per day hours number
UnpdAsstPerDayHrsCt
How many hours in a typical 24-hour day do you have someone with you [unpaid assistance] to provide physical assistance for personal care activities such as eating, bathing, dressing, toileting and mobility?
How many hours in a typical 24-hour day do you have someone with you (unpaid assistance) to provide physical assistance for personal care activities such as eating, bathing, dressing, toileting and mobility?
  
Numeric Values
Record the number of hours of unpaid assistance (family, others) the participant/subject receives in a 24-hour day.
No references available
Adult;Pediatric
Supplemental
3.0
7/11/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
Unpaid assistance per day hours number
 
Free-Form Entry
       
C10681
In-home assistance for remembering, decision making, or judgment duration
InhmAsstRememDecisMakDura
Amount of time per day the subject/participant requires the help of an assistant for decision making/remembering
How much time is someone with you in your home to assist you with activities that require remembering, decision making, or judgment?
Someone else is always with me to observe or supervise;Someone else is always around, but they only check on me now and then;Sometimes I am left alone for an hour or two;Sometimes I am left alone for most of the day;I have been left alone all day and all night, but someone checks in on me;I am left alone without anyone checking on me.;
Someone else is always with me to observe or supervise;Someone else is always around, but they only check on me now and then;Sometimes I am left alone for an hour or two;Sometimes I am left alone for most of the day;I have been left alone all day and all night, but someone checks in on me;I am left alone without anyone checking on me.;
Alphanumeric
Choose only one.
No references available
Adult;Pediatric
Supplemental
3.0
7/11/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
In-home assistance for remembering, decision making, or judgment duration
 
Single Pre-Defined Value Selected
       
C00206
Family income supported persons count
FamilyIncmeSupprtPersCt
Count of all people, including the participant/subject, who are supported by the household gross annual income reported
Family size
  
Numeric Values
including yourself, number of people supported by family income
American Community Survey questionnaire. U.S. Department of Commerce, U.S. Census Bureau. http://www.census.gov/acs/www/Downloads/questionnaires/2012/Quest12.pdf
Adult;Pediatric
Supplemental
3.0
7/25/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
Family income supported persons number
 
Free-Form Entry
1
99
     
07-21-2019
Page 1 of 1