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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Friedreich's Ataxia
Sub-Domain: General Health History
CRF: Pediatric Developmental History
Item count: 12 (12 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C17493
Attention deficit disorder attention deficit hyperactivity disorder indicator
AttentionDeficitADHDInd
Indicator as to whether the participant/subject has or had attention deficit disorder (ADD) or attention deficit hyperactivity disorder (ADHD)
Does/did the participant/subject have attention deficit disorder (ADD) or attention deficit hyperactivity disorder (ADHD)?
Yes;No;Unknown;
Yes;No;Unknown;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
3.0
7/15/2013
Aliases for variable name not defined
Pediatric Developmental History
General Health History
Participant History and Family History
  
Single Pre-Defined Value Selected
       
C17494
Delay language cognitive milestone indicator
DelayLangCogMilestoneInd
Indicator as to whether the participant/subject has or had delayed acquisition of language or cognitive milestones, as diagnosed by a pediatrician or neurologist
Does/did the participant/subject have delayed acquisition of language/cognitive milestones, diagnosed by a pediatrician or neurologist?
Yes;No;Unknown;
Yes;No;Unknown;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
3.0
7/15/2013
Aliases for variable name not defined
Pediatric Developmental History
General Health History
Participant History and Family History
  
Single Pre-Defined Value Selected
       
C17495
Delay motor milestone indicator
DelayMotorMilestoneInd
Indicator as to whether the participant/subject has or had delayed motor milestones, as diagnosed by a pediatrician or neurologist
Does/did the participant/subject have delayed acquisition of motor milestones, diagnosed by a pediatrician or neurologist?
Yes;No;Unknown;
Yes;No;Unknown;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
3.0
7/15/2013
Aliases for variable name not defined
Pediatric Developmental History
General Health History
Participant History and Family History
  
Single Pre-Defined Value Selected
       
C17496
Delay social function indicator
DelaySocialFunctionInd
Indicator as to whether the participant/subject has or had delayed social function
Does/did the participant/subject have social delay?
Yes;No;Unknown;
Yes;No;Unknown;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
3.0
7/15/2013
Aliases for variable name not defined
Pediatric Developmental History
General Health History
Participant History and Family History
  
Single Pre-Defined Value Selected
       
C17498
Hand preference before 12 month age indicator
HandPrefBefore12MoAgeInd
Indicator as to whether the participant/subject had a hand preference before 12 months of age
Does/did the participant/subject have a hand preference before 12 months of age?
Yes;No;Unknown;
Yes;No;Unknown;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
3.0
7/15/2013
Aliases for variable name not defined
Pediatric Developmental History
General Health History
Participant History and Family History
  
Single Pre-Defined Value Selected
       
C17497
Gait abnormal when began walking indicator
GaitAbnrmlWhenBeganWalkInd
Indicator as to whether the participant/subject had a gait abnormality at the time they began walking, as noted by parents or a physician
Does/did the participant/subject have abnormality of the gait noted by parents or physician at the time the child began walking?
Yes;No;Unknown;
Yes;No;Unknown;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
3.0
7/15/2013
Aliases for variable name not defined
Pediatric Developmental History
General Health History
Participant History and Family History
  
Single Pre-Defined Value Selected
       
C17499
Special education indicator
SpecialEduInd
Indicator as to whether the participant/subject has or had special education
Does/did the participant/subject have special education?
Yes;No;Unknown;
Yes;No;Unknown;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
3.0
7/15/2013
Aliases for variable name not defined
Pediatric Developmental History
General Health History
Participant History and Family History
  
Single Pre-Defined Value Selected
       
C11086
School placement type
SchoolPlacementTyp
The description of the type of education the participant/subject receives with details of being with or without assistance.
School placement
Full-time regular education without aide;Full-time regular education with one to one aide;Regular education with pull-out for certain areas;Special education w/minimal inclusion (e.g., lunch);Full time special education with no inclusion;Special (MR/DD) school;Home-schooled;Not in school;Other, specify;
Full-time regular education without aide;Full-time regular education with one to one aide;Regular education with pull-out for certain areas;Special education w/minimal inclusion (e.g., lunch);Full time special education with no inclusion;Special (MR/DD) school;Home-schooled;Not in school;Other, specify;
Alphanumeric
No instructions available
No references available
Pediatric
Exploratory
3.0
7/11/2013
Aliases for variable name not defined
Pediatric Developmental History
General Health History
Participant History and Family History
School placement type
 
Single Pre-Defined Value Selected
       
C18821
School placement other text
SchoolPlacementOTH
The free-text field related to 'School placement type' specifying other text. The description of the type of education the participant/subject receives with details of being with or without assistance.
Other, specify
  
Alphanumeric
No instructions available
No references available
Pediatric
Exploratory
3.0
7/11/2013
Aliases for variable name not defined
Pediatric Developmental History
General Health History
Participant History and Family History
 
4000
Free-Form Entry
       
C17500
Specialized therapy service indicator
SpecializedTherapyServiceInd
Indicator as to whether the participant/subject receives or received specialized therapies and services
Does/did the participant/subject receive any specialized therapies and services?
Yes;No;Unknown;
Yes;No;Unknown;
Alphanumeric
If 'No' or 'Unknown,' skip question 11b
No references available
Adult;Pediatric
Exploratory
3.0
7/15/2013
Aliases for variable name not defined
Pediatric Developmental History
General Health History
Participant History and Family History
  
Single Pre-Defined Value Selected
       
C05130
Therapy or rehabilitation type
TherpyRehabTyp
Type of therapy or rehabilitation services received by the participant/subject
If "Yes," indicate the type(s) of specialized therapies and services the participant/subject receives or received
Speech therapy;Occupational therapy;Physical therapy;Sensory integration therapy;Social skills training;Adaptive physical education;Behavior support plan;Crisis management plan;Other, specify;
Speech therapy;Occupational therapy;Physical therapy;Sensory integration therapy;Social skills training;Adaptive physical education;Behavior support plan;Crisis management plan;Other, specify;
Alphanumeric
Choose all that the participant/ subject receives
No references available
Adult;Pediatric
Exploratory
3.0
7/20/2013
Aliases for variable name not defined
Pediatric Developmental History
General Health History
Participant History and Family History
Therapy or rehabilitation type
 
Multiple Pre-Defined Values Selected
       
C18768
Therapy or rehabilitation other text
TherpyRehabOTH
The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject
Other, specify
  
Alphanumeric
Choose all that the participant/ subject receives
No references available
Adult;Pediatric
Exploratory
1.0
5/27/2014
Aliases for variable name not defined
Pediatric Developmental History
General Health History
Participant History and Family History
 
4000
Free-Form Entry
       
07-15-2019
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