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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Friedreich's Ataxia
Sub-Domain: Ataxia and Performance Measures
CRF: Bowel Control Scale (BWCS)
Item count: 6 (6 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C11518
Bowel Control Scale (BWCS) - constipation 4 week scale
BWCSConstip4WkScale
Scale assessing constipation in the past 4 weeks, as part of the Bowel Control Scale (BWCS).
During the past 4 weeks, how often have you been constipated?
0;1;2;3;4;
not at all;Once;Two to four times;More than weekly but not daily;Daily;
Numeric Values
Record the appropriate response based on your bowel function during the past 4 weeks.
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997. Bowel Control Scale (BWCS). National Multiple Sclerosis Society
Adult
Exploratory
3.0
7/11/2013
Aliases for variable name not defined
Bowel Control Scale (BWCS)
Ataxia and Performance Measures
Outcomes and End Points
BWCS Q1
 
Single Pre-Defined Value Selected
       
C11519
Bowel Control Scale (BWCS) - bowel control loss 4 week scale
BWCSBowelContLoss4WkScale
Scale assessing how often the participant/subject lost control of bowels or had an accident in the past 4 weeks as part of the Bowel Control Scale (BWCS).
During the past 4 weeks, how often have you lost control of your bowels or had an accident?
0;1;2;3;4;
not at all;Once;Two to four times;More than weekly but not daily;Daily;
Numeric Values
Record the appropriate response based on your bowel function during the past 4 weeks.
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997. Bowel Control Scale (BWCS). National Multiple Sclerosis Society
Adult
Exploratory
3.0
7/11/2013
Aliases for variable name not defined
Bowel Control Scale (BWCS)
Ataxia and Performance Measures
Outcomes and End Points
BWCS Q2
 
Single Pre-Defined Value Selected
       
C11520
Bowel Control Scale (BWCS) - bowel control almost lost 4 week scale
BWCSBowelContAlmLost4WkScale
Scale assessing how often the participant/subject almost lost control of his bowels or almost had an accident in the past four weeks as part of the Bowel Control Scale (BWCS).
During the past 4 weeks, how often have you almost lost control of your bowels or almost had an accident?
0;1;2;3;4;
not at all;Once;Two to four times;More than weekly but not daily;Daily;
Numeric Values
Record the appropriate response based on your bowel function during the past 4 weeks.
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997. Bowel Control Scale (BWCS). National Multiple Sclerosis Society
Adult
Exploratory
3.0
7/11/2013
Aliases for variable name not defined
Bowel Control Scale (BWCS)
Ataxia and Performance Measures
Outcomes and End Points
BWCS Q3
 
Single Pre-Defined Value Selected
       
C11521
Bowel Control Scale (BWCS) - bowel control problems altered activities 4 week scale
BWCSBowelContProbAltAct4WkScal
Scale assessing how often the participant/subject altered activities because of bowel control problems in the past 4 weeks as part of the Bowel Control Scale (BWCS).
During the past 4 weeks, how often have you altered your activities because of bowel control problems?
0;1;2;3;4;
not at all;Once;Two to four times;More than weekly but not daily;Daily;
Numeric Values
Record the appropriate response based on your bowel function during the past 4 weeks.
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997. Bowel Control Scale (BWCS). National Multiple Sclerosis Society
Adult
Exploratory
3.0
7/11/2013
Aliases for variable name not defined
Bowel Control Scale (BWCS)
Ataxia and Performance Measures
Outcomes and End Points
BWCS Q4
 
Single Pre-Defined Value Selected
       
C11522
Bowel Control Scale (BWCS) - bowel problems restrict lifestyle 4 week scale
BWCSBowelProbRestrLife4WkScale
Scale measuring how often bowel control problems restricted overall lifestyle in the past 4 week as part of the Bowel Control Scale (BWCS).
During the past 4 weeks, how much have bowel problems restricted your overall lifestyle?
0;1;2;3;4;5;6;7;8;9;10;
not at all;;;;;;;;;;Severely;
Numeric Values
Please circle one number
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997. Bowel Control Scale (BWCS). National Multiple Sclerosis Society
Adult
Exploratory
3.0
7/11/2013
Aliases for variable name not defined
Bowel Control Scale (BWCS)
Ataxia and Performance Measures
Outcomes and End Points
BWCS Q5
 
Single Pre-Defined Value Selected
       
C11523
Bowel Control Scale (BWCS) - sum score value
BWCSSumScoreVal
Sum of the score for questions in the Bowel Control Scale (BWCS).
   
Numeric Values
No instructions available
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997.

Bowel Control Scale (BWCS). National Multiple Sclerosis Society
Adult
Exploratory
3.0
7/11/2013
Aliases for variable name not defined
Bowel Control Scale (BWCS)
Ataxia and Performance Measures
Outcomes and End Points
BWCS Total
 
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