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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Friedreich's Ataxia
Sub-Domain: Ataxia and Performance Measures
CRF: Bladder Control Scale (BLCS)
Item count: 5 (5 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C11513
Bladder Control Scale (BLCS) - lost control bladder 4 week scale
BLCSLostCont4WkScale
The scale related to lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)
During the past 4 weeks, how often have you lost control of your bladder or had an accident?
0;1;2;3;4;
not at all;Once;Two to four times;More than weekly but not daily;Daily;
Numeric Values
Refer to instructions on form.
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997.Bladder Control Scale (BLCS). National Multiple Sclerosis Society
Adult
Exploratory
3.0
7/11/2013
Aliases for variable name not defined
Bladder Control Scale (BLCS)
Ataxia and Performance Measures
Outcomes and End Points
BLCS Q1
 
Single Pre-Defined Value Selected
       
C11514
Bladder Control Scale (BLCS) - almost lost control bladder 4 week scale
BLCSAlmostLostCont4WkScale
The scale related to almost lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)
During the past 4 weeks, how often have you almost lost control of your bladder or had an accident?
0;1;2;3;4;
not at all;Once;Two to four times;More than weekly but not daily;Daily;
Numeric Values
Refer to instructions on form.
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997.Bladder Control Scale (BLCS). National Multiple Sclerosis Society
Adult
Exploratory
3.0
7/11/2013
Aliases for variable name not defined
Bladder Control Scale (BLCS)
Ataxia and Performance Measures
Outcomes and End Points
BLCS Q2
 
Single Pre-Defined Value Selected
       
C11515
Bladder Control Scale (BLCS) - altered activities because bladder problems 4 week scale
BLCSAltActBladderProb4WkScale
The scale related to altered activities because of bladder problems 4 week scale as part of the Bladder Control Scale (BLCS)
During the past 4 weeks, how often have you altered your activities because of bladder problems?
0;1;2;3;4;
not at all;Once;Two to four times;More than weekly but not daily;Daily;
Numeric Values
Refer to instructions on form.
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997.Bladder Control Scale (BLCS). National Multiple Sclerosis Society
Adult
Exploratory
3.0
7/11/2013
Aliases for variable name not defined
Bladder Control Scale (BLCS)
Ataxia and Performance Measures
Outcomes and End Points
BLCS Q3
 
Single Pre-Defined Value Selected
       
C11516
Bladder Control Scale (BLCS) - restricted lifestyle 4 week severity
BLCSResLfeStylBladderProb4WkSv
The scale related to restricted overall lifestyle because of bladder problems as part of the Bladder Control Scale (BLCS)
During the past 4 weeks, how much have bladder problems restricted your overall lifestyle?
0;1;2;3;4;5;6;7;8;9;10;
not at all;1;2;3;4;5;6;7;8;9;Severely;
Numeric Values
Record only one number, with 0 = not at all, and 10 = severely.
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997.Bladder Control Scale (BLCS). National Multiple Sclerosis Society
Adult
Exploratory
3.0
7/11/2013
Aliases for variable name not defined
Bladder Control Scale (BLCS)
Ataxia and Performance Measures
Outcomes and End Points
BLCS Q4
 
Single Pre-Defined Value Selected
       
C11517
Bladder Control Scale (BLCS) - scores sum value
BLCSSumScores
Sum of scores from questions 1 through 4 (0-22) as part of the Bladder Control Scale (BLCS)
   
Numeric Values
Sum of Q1-Q4.
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997.Bladder Control Scale (BLCS). National Multiple Sclerosis Society
Adult
Exploratory
3.0
7/11/2013
Aliases for variable name not defined
Bladder Control Scale (BLCS)
Ataxia and Performance Measures
Outcomes and End Points
BLCS Total
 
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07-22-2019
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