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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Facioscapulohumeral Muscular Dystrophy
Sub-Domain: Social Status
CRF: Social Status
Item count: 9 (9 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C00015
Education year count
EduYrCt
Number of years of education completed (age 5 and beyond)
Years of Education (0–30)
  
Numeric Values
Number of years of education completed (age 5 and beyond)
No references available
Adult;Pediatric
Supplemental
3.0
7/22/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
Education level USA type
 
Free-Form Entry
0
30
year
  
3134878
 
C00202
Education school participation status
EduSchoolParticipStatus
Status of participant/subject's current attendance at school
School status
Going to school;On vacation from school (between grades);Neither;Unknown;
Going to school;On vacation from school (between grades);Neither;Unknown;
Alphanumeric
Choose one.
National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm)
Adult;Pediatric
Supplemental
3.0
7/25/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
Education school participation status
 
Single Pre-Defined Value Selected
       
C00204
Employment current status
EmplmtStatu
Status of participant/subject's current employment
Employment status
Working Now;Only temporarily laid off, sick leave, or maternity leave;Looking for work, unemployed;Retired;Disabled, permanently or temporarily;Keeping house;Student;Other, specify;Unknown;
Working Now;Only temporarily laid off, sick leave, or maternity leave;Looking for work, unemployed;Retired;Disabled, permanently or temporarily;Keeping house;Student;Other, specify;Unknown;
Alphanumeric
Choose one
National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm)
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
Employment status
 
Single Pre-Defined Value Selected
       
C18677
Employment other text
EmplmtOTH
The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment
Other, specify
  
Alphanumeric
No instructions available
National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm)
Adult;Pediatric
Supplemental
1.0
5/27/2014
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
 
4000
Free-Form Entry
       
C10678
Employment full-time status
EmplymtFullTimeStatus
Status of participant/subject's current full-time employment
Full time employment status
Yes;No;Hours vary;Unknown;
Yes;No;Hours vary;Unknown;
Alphanumeric
Works 35 hours or more per week
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
Full-time employment status
 
Single Pre-Defined Value Selected
       
C12819
Disability benefit indicator
DisabltyBenefitInd
Indicator of whether participant/subject receives disability benefit payments
Disability benefits
Yes;No;Unknown;
Yes;No;Unknown;
Alphanumeric
Choose one
No references available
Adult;Pediatric
Supplemental
3.0
7/24/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
Disability benefits indicator
 
Single Pre-Defined Value Selected
       
C00207
Marital or partner status
MartlPartnerStatus
Status of participant/subject's current domestic relationship, whether marital or partnered
Marital/partner status
Never married;Married;Domestic partnership;Divorced;Separated;Widowed;
Never married;Married;Domestic partnership;Divorced;Separated;Widowed;
Alphanumeric
Choose one
Johnson NJ, Backlund E, Sorlie PD, Loveless CA. Marital status and mortality: the national longitudinal mortality study. Ann Epidemiol. 2000;10:224-238.
Adult;Pediatric
Supplemental
3.0
7/25/2013
PRSN_MARST_CAT
Social Status
Social Status
Participant Characteristics
Marital or partner status
 
Single Pre-Defined Value Selected
     
2188083
 
C19503
Caregiver primary indicator
CaregvrPrimryInd
Indicator of whether participant/subject has a primary caregiver
Primary caregiver for the participant/ subject
Yes;No;Unknown;
Yes;No;Unknown;
Alphanumeric
Choose one.
No references available
Adult;Pediatric
Supplemental
1.0
6/24/2014
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
  
Single Pre-Defined Value Selected
       
C19287
Income basic needs status
IncomeBasicNeedsStatus
The status of how the household currently manages to meet basic needs as defined by food, shelter and clothing.
How do you get along with your current household income?
Very well;Rather well;Adequately (neither well nor poorly);Rather poorly;Very poorly;Refused to answer;Unknown;
Very well;Rather well;Adequately (neither well nor poorly);Rather poorly;Very poorly;Refused to answer;Unknown;
Alphanumeric
Choose one. The status of how the household currently manages to meet basic needs as defined by food, shelter and clothing.
No references available
Adult;Pediatric
Supplemental
1.0
6/6/2014
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
  
Single Pre-Defined Value Selected
       
07-20-2019
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