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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Epilepsy
Sub-Domain: Surgeries and Other Procedures
CRF: Surgery and Pathology
Item count: 116 (116 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C14303
Surgery anterior temporal lobectomy amygdala resection estimated percentage value
SurgATLAmygdalaResEstPtgVal
The estimated percentage of tissue resected from the total volume of tissue in the amygdala during an anterior temporal lobectomy (ATL) surgical procedure.
Amygdala
  
Numeric Values
Estimate of resection (percent of total)
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgery ATL amygdala area estimated value
 
Free-Form Entry
0
100
percent
    
C14297
Surgery diagnostic electrode type
SurgDiagnosElectrodeTyp
The type of diagnostic electrode implanted during surgery
Electrodes
Depth;Subdural;Epidural;Foramen ovale;Other;
Depth;Subdural;Epidural;Foramen ovale;Other;
Alphanumeric
Choose all that apply
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgery diagnostic electrode type
 
Multiple Pre-Defined Values Selected
       
C14304
Surgery anterior temporal lobectomy hippocampus resection estimated length value
SurgATLHippocampResEstLgthVal
The estimated length of tissue (in cm) resected from the hippocampus in the brain during an anterior temporal lobectomy (ATL) surgical procedure.
Hippocampus
  
Numeric Values
Estimate of resection (cm)
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgery ATL hippocampus length estimated value
 
Free-Form Entry
0
99
centimeter
    
C05106
Surgical or therapeutic procedure start date and time
SurgTherapuProcStartDateTime
Date (and time, if applicable and known) on which the surgical or therapeutic procedure started
Date of Surgery
  
Date or Date & Time
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).
No references available
Adult;Pediatric
Supplemental
3.0
7/25/2013
Refer to SCI CDE Annotated Form
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgical or therapeutic procedure start date and time
 
Free-Form Entry
       
C14308
Surgery anterior temporal lobectomy plus largest depth of resection estimated value
SurgATLPLgDepthExtentResEstVal
The largest estimated depth (in cm) of resection into adjacent brain structures that occurred during an extended anterior temporal lobectomy (ATL+) surgical procedure
Largest dimension: Depth
  
Numeric Values
Estimate of size of resection beyond ATL (cm)
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgery ATL+ depth estimated largest dimension value
 
Free-Form Entry
0
99
centimeter
    
C14309
Surgery anterior temporal lobectomy plus resected tissue estimated volume value
SurgATLPResectTissEstVolVal
The estimated volume (in cm^3) of tissue resected from adjacent brain structures during an extended anterior temporal lobectomy (ATL+) surgical procedure
Volume of resected tissue
  
Numeric Values
Estimate of size of resection beyond ATL (cubic centimeters)
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgery ATL+ resected tissue estimated volume value
 
Free-Form Entry
  
cubic centimeter
    
C18765
Surgical or therapeutic procedure other text
SurgTherapProcedurOTH
The free-text field related to 'Surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject
Other, specify
  
Alphanumeric
Choose all that apply
International Classification of Diseases, Ninth Revision, Clinical Modification (ICD-9-CM): http://www.cdc.gov/nchs/icd/icd9cm.htm
Adult;Pediatric
Supplemental
1.0
5/27/2014
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
 
4000
Free-Form Entry
       
C14305
Surgery anterior temporal lobectomy plus adjacent resection indicator
SurgATLPAdjResectInd
The indicator for whether the resection extended to adjacent brain structures beyond the boundaries defined for an anterior temporal lobectomy (ATL) surgical procedure.
Adjacent resection
Yes;No;
Yes;No;
Alphanumeric
Choose only one
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgery ATL+ adjacent resection indicator
 
Single Pre-Defined Value Selected
       
C05108
Surgical or therapeutic procedure type
SurgTherapProcedurTyp
Type of surgical or therapeutic procedure received by the participant/subject
Procedure
Diagnostic;Anterior temporal lobectomy (ATL);Anterior temporal lobectomy plus (ATL+);Amygdalohippocampectomy;Lesionectomy;Lesionectomy plus (Lesionectomy +);Extratemporal resection (Topectomy);Multi-lobar resection;Hemispherectomy;Vagus nerve stimulation (VNS) surgery;Corpus callosotomy;Multiple subpial transaction;Radiosurgery;Therapeutic brain stimulation;Other surgery, specify;
Diagnostic surgery;Anterior temporal lobectomy (ATL);Anterior temporal lobectomy plus (ATL+);Amygdalohippocampectomy;Lesionectomy;Lesionectomy plus (Lesionectomy +);Extratemporal resection (Topectomy);Multi-lobar resection;Hemispherectomy;Vagus nerve stimulation (VNS) surgery;Corpus callosotomy;Multiple subpial transaction;Radiosurgery;Therapeutic brain stimulation;Other surgery, specify;
Alphanumeric
Choose all that apply
International Classification of Diseases, Ninth Revision, Clinical Modification (ICD-9-CM): http://www.cdc.gov/nchs/icd/icd9cm.htm
Adult;Pediatric
Supplemental
3.0
7/25/2013
Refer to SCI CDE Annotated Form
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgical or therapeutic procedure type
 
Multiple Pre-Defined Values Selected
       
C14298
Surgery diagnostic anatomic site
SurgDiagnosAntmicSite
The anatomic location within the body of the participant/subject where surgery was performed as part of disease diagnosis
Location
Hippocampus;Frontal;Temporal;Parietal;Occipital;Other;
Hippocampus;Frontal;Temporal;Parietal;Occipital;Other;
Alphanumeric
Choose all that apply
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgery diagnostic anatomic site
 
Multiple Pre-Defined Values Selected
       
C21668
ICD-10-CM code
SurgTherapuProcICD10CMCode
Code from the International Classification of Diseases, Ninth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure
   
Alphanumeric
Choose all that apply. In previous trials and studies, information on surgical procedures has typically been documented in free text format, thus often precluding any meaningful analysis. We therefore propose the use of ICD-10 coding.
International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM): http://www.cdc.gov/nchs/icd/icd10cm.htm#icd2016
Adult;Pediatric
Supplemental
1.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
  
Multiple Pre-Defined Values Selected
       
C21669
Surgical or therapeutic procedure ICD-10-CM other text
SurgTherapuProcICD10CMOTH
The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure
   
Alphanumeric
Choose all that apply. In previous trials and studies, information on surgical procedures has typically been documented in free text format, thus often precluding any meaningful analysis. We therefore propose the use of ICD-10 coding.
International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM): http://www.cdc.gov/nchs/icd/icd10cm.htm#icd2016
Adult;Pediatric
Supplemental
1.0
5/27/2014
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
 
4000
Free-Form Entry
       
C14306
Surgery anterior temporal lobectomy plus largest anterior-posterior extent of resection estimated value
SurgATLPLgAPExtentResEstVal
The longest estimated length (in cm) of resection into adjacent anterior-posterior (AP) brain structures that occurred during an extended anterior temporal lobectomy (ATL+) surgical procedure
Largest dimension: AP
  
Numeric Values
Choose components for estimate of size of resection beyond ATL (cm)
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgery ATL+ AP estimated largest dimension value
 
Free-Form Entry
0
99
centimeter
    
C14307
Surgery anterior temporal lobectomy plus largest lateral extent of resection estimated value
SurgATLPLgLatExtentResEstVal
The longest estimated length (in cm) of resection into adjacent lateral (LAT) brain structures that occurred during an extended anterior temporal lobectomy (ATL+) surgical procedure
Largest dimension: LAT
  
Numeric Values
Estimate of size of resection beyond ATL (cm)
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgery ATL+ LAT estimated largest dimension value
 
Free-Form Entry
0
99
centimeter
    
C14299
Surgery anterior temporal lobectomy superior temporal gyrus resection estimated length value
SurgATLSupTmpGyrResEstLgthVal
The estimated length of tissue (in cm) resected from the superior temporal gyrus of the brain during an anterior temporal lobectomy (ATL) surgical procedure.
Superior temporal gyrus
  
Numeric Values
Estimate of resection (cm)
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgery ATL super temporal gyrus area estimated value
 
Free-Form Entry
0
99
centimeter
    
C17643
Surgical or therapeutic procedure text
SurgTherapuProcedTxt
The text describing the surgical or therapeutic procedure received by the participant/subject
Other Surgical Procedure
  
Alphanumeric
enter details
International Classification of Diseases, Ninth Revision, Clinical Modification (ICD-9-CM): http://www.cdc.gov/nchs/icd/icd9cm.htm
Adult;Pediatric
Supplemental
3.0
7/15/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
 
255
Free-Form Entry
       
C14310
Surgery anterior temporal lobectomy plus extended resection anatomic site
SurgATLPExtResectAntmicSite
The anatomic location(s) where tissue resection extended into adjacent brain structures beyond the boundaries defined for an anterior temporal lobectomy (ATL) surgical procedure.
Location of resection beyond ATL
Lateral temporal;Occipital;Parietal;Orbitofrontal;Dorsolateral frontal;Medial frontal;Central cortex;
Lateral temporal;Occipital;Parietal;Orbitofrontal;Dorsolateral frontal;Medial frontal;Central cortex;
Alphanumeric
Record the location of resection beyond ATL
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgery ATL+ resection beyond ATL anatomic site
 
Multiple Pre-Defined Values Selected
       
C14311
Surgery amygdalohippocampectomy parahippocampal estimated length value
SurgAmygdalohPHCEstLgthVal
The estimated length of tissue (in cm) resected from the parahippocampal gyrus of the brain during an amygdalohippocampectomy surgical procedure.
Parahippocampal gyrus
  
Numeric Values
Estimate of resection (cm)
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgery amygdalohippocampectomy parahippocampal estimated length value
 
Free-Form Entry
0
99
centimeter
    
C14300
Surgery anterior temporal lobectomy middle temporal gyrus resection estimated length value
SurgATLMidTmpGyrResEstLgthVal
The estimated length of tissue (in cm) resected from the middle temporal gyrus of the brain during an anterior temporal lobectomy (ATL) surgical procedure.
Middle temporal gyrus
  
Numeric Values
Estimate of resection (cm)
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgery ATL middle temporal gyrus area estimated value
 
Free-Form Entry
0
99
centimeter
    
C14301
Surgery anterior temporal lobectomy inferior temporal gyrus resection estimated length value
SurgATLInfTmpGyrResEstLgthVal
The estimated length of tissue (in cm) resected from the inferior temporal gyrus of the brain during an anterior temporal lobectomy (ATL) surgical procedure.
Inferior temporal gyrus
  
Numeric Values
Estimate of resection (cm)
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgery ATL inferior temporal gyrus area estimated value
 
Free-Form Entry
0
99
centimeter
    
C14312
Surgery amygdalohippocampectomy amygdala estimated percentage value
SurgAmygdalohAmyEstPtgVal
The estimated percentage of tissue resected from the total volume of tissue in the amygdala during an amygdalohippocampectomy surgical procedure.
Amygdala
  
Numeric Values
Estimate of resection for amygdalohippocampectomy (percent of total)
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgery amygdalohippocampectomy amygdala estimated percentage value
 
Free-Form Entry
0
100
percent
    
C14313
Surgery amygdalohippocampectomy hippocampus estimated length value
SurgAmygdalohHCEstLgthVal
The estimated length of tissue (in cm) resected from the hippocampus in the brain during an amygdalohippocampectomy surgical procedure.
Hippocampus
  
Numeric Values
Estimate of resection (cm)
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgery amygdalohippocampectomy hippocampus estimated length value
 
Free-Form Entry
0
99
centimeter
    
C14302
Surgery anterior temporal lobectomy parahippocampal gyrus resection estimated length value
SurgATLPHCGyrResEstLgthVal
The estimated length of tissue (in cm) resected from the parahippocampal gyrus of the brain during an anterior temporal lobectomy (ATL) surgical procedure.
Parahippocampal gyrus
  
Numeric Values
Estimate of resection (cm)
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgery ATL parahippocampal gyrus area estimated value
 
Free-Form Entry
0
99
centimeter
    
C14314
Surgery amygdalohippocampectomy approach anatomic site
SurgAmygdalohAppAntmicSite
The relative pathway taken by the surgeon to gain access to the hippocampus described in terms of other surrounding brain structures
Approach to hippocampus
Sylvian Fissure;Superior temporal gyrus/sulcus;Middle temporal gyrus/sulcus;Sub-temporal;Other;
Sylvian Fissure;Superior temporal gyrus/sulcus;Middle temporal gyrus/sulcus;Sub-temporal;Other;
Alphanumeric
Choose only one
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgery amygdalohippocampectomy approach type
 
Single Pre-Defined Value Selected
       
C14315
Surgery lesionectomy suspected lesion type
SurgLesnectSusLesnTyp
The type of suspected anatomical abnormality in part of the brain stated as the reason to perform a lesionectomy surgical procedure
Type of suspected lesion
Neoplasm;Dysplasia;Cavernous malformation;Arteriovenous malformation;Hemorrhage;Stroke;Infection;Gliosis, cause unknown;Unknown;Other, specify;
Neoplasm;Dysplasia;Cavernous malformation;Arteriovenous malformation;Hemorrhage;Stroke;Infection;Gliosis, cause unknown;Unknown;Other, specify;
Alphanumeric
Choose all that apply
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
Surgery lesionectomy suspected lesion type
 
Multiple Pre-Defined Values Selected
       
C18915
Surgery lesionectomy suspected lesion other text
SurgLesnectSusLesnOTH
The free-text field related to 'Surgery lesionectomy suspected lesion type' specifying other text. The type of suspected anatomical abnormality in part of the brain stated as the reason to perform a lesionectomy surgical procedure
Other, specify
  
Alphanumeric
Choose all that apply
No references available
Adult;Pediatric
Supplemental
3.0
8/28/2013
Aliases for variable name not defined
Surgery and Pathology
Surgeries and Other Procedures
Treatment/Intervention Data
 
4000
Free-Form Entry
       
02-24-2017
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