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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Chiari I Malformation
Sub-Domain: Therapies
CRF: Chiari I Malformation Treatment
Item count: 36 (36 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C22432
Chiari malformation conservative management indicator
CMConsrvtvMgmtInd
The indicator related to conservative management with no surgical treatment offered.
Conservative Management Only
  
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/10/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22434
Chiari malformation conservative management duration
ChiariMlfConsManagDur
Duration of conservative management from time of initial imaging diagnosis.
Conservative Management- Duration
  
Numeric Values
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/10/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Free-Form Entry
0
 
months
    
C22437
Suboccipital craniectomy size superior inferior measurement
SubocCranSzeSupInfMeas
The measurement related to the size of the suboccipital craniectomy superiorly or inferiorly.
Chiari Decompression- Suboccipital Craniectomy: Superior-inferior
<2 cm;2.1-3 cm;3.1-5 cm;>5.1 cm;
<2 cm;2.1-3 cm;3.1-5 cm;>5.1 cm;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/10/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22460
Suboccipital craniectomy size left right measurement range
SuboccptlCrnectmySzLftRtMsrRng
The range of measurement related to the size of the suboccipital craniectomy left or right.
Chiari Decompression- Suboccipital Craniectomy: Left-Right
<2 cm;2.1-3 cm;3.1-5 cm;>5.1 cm;
<2 cm;2.1-3 cm;3.1-5 cm;>5.1 cm;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/10/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22461
Cervical laminectomy anatomic site
CervLamAnatomSite
The anatomic site or location related to the cervical laminectomy.
Chiari Decompression- Cervical Laminectomy
C1;C2;C3;C4;C5;
C1;C2;C3;C4;C5;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/10/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Multiple Pre-Defined Values Selected
       
C22462
Cervical laminotomy indicator
CervLamInd
The indicator related to cervical laminotomy performed.
Chiari Decompression- C1 Laminotomy
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/10/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22463
Imaging intra-operative type
ImgIntraOpTyp
The type of intra-operative imaging utilized (if any).
Chiari Decompression- Intra-Operative Imaging
None;Ultrasound-standard (B-scan real time);Ultrasound-color Doppler;Intraoperative MRI;
None;Ultrasound-standard (B-scan real time);Ultrasound-color Doppler;Intraoperative MRI;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/10/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22464
Surgical procedure dural technique type
SurgProcDuralTechniqueTyp
The type of dural technique (surgical approach to the dura) used.
Chiari Decompression- Dural technique
Extradural only (no dural opening, may include resection of atlanto-occipital membrane);Dural splitting/scoring (=incision of outer layer of dura);Dural opening only (dura stays open at end of surgery);Dural augmentation with duraplasty;Primary durrarraphy without duraplasty;
Extradural only (no dural opening, may include resection of atlanto-occipital membrane);Dural splitting/scoring (=incision of outer layer of dura);Dural opening only (dura stays open at end of surgery);Dural augmentation with duraplasty;Primary durrarraphy without duraplasty;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/10/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22468
Surgical procedure arachnoid manuever type
SurgProcArManTyp
The type of surgical procedure performed on arachnoid.
Chiari Decompression- Operative Arachnoid Maneuver
Arachnoid sparing (left intact);Arachnoid opening;Arachnoid opening plus lysis of adhesions;Arachnoid resection or retraction;
Arachnoid sparing (left intact);Arachnoid opening;Arachnoid opening plus lysis of adhesions;Arachnoid resection or retraction;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/10/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22482
Surgical procedure tonsillar reduction type
SurgProcTonsRedType
The type of tonsillar reduction utilized.
Chiari Decompression- Tonsillar Reduction
None;Tonsillar cauterization;Tonsillar resection;
None;Tonsillar cauterization;Tonsillar resection;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/13/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22483
Chiari decompression verification decompression obex choroid plexus fourth ventricle indicator
ChiariDecmpVrDcmpOCdPlFhVenInd
The indicator related to the verification of decompression within the obex or the choroid plexus of the 4th ventricle.
Chiari Decompression- Parameters for Verification of Decompression (Visualizing Obex/Choroid plesus of 4th ventricle)
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/13/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22484
Chiari decompression verification decompression lateral cervicomedullary junction cranial spinal nerve rootlet indicator
ChiariDpVrDpLtCvJnCrSpNvRtInd
The indicator related to the verification of decompression within the lateral cervicomedullary junction/cranial or spinal nerve rootlets .
Chiari Decompression- Parameters for Verification of Decompression (Visualize lateral aspect of cervicomedullary junction/cranial or spinal nerve)
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/13/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22485
Chiari decompression intradural adjunct fourth ventricle stent indicator
ChiariDcmpIntAdjtFthVentStInd
The indicator related to the addition of a fourth ventricle stent.
Chiari Decompression-Adding a 4th ventricular stent
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/13/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22486
Surgical procedure arachnoid veil finding type
SrgProcArchVlFindTyp
The type of finding in context of the arachnoid veil.
Chiari Decompression- Intra-operative finding of arachnoid veil
Found, left closed;Found, dissected open;Not found;
Found, left closed;Found, dissected open;Not found;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/13/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22487
Obex plug indicator
ObxPlgInd
The indicator related to the plugging of the obex.
Chiari Decompression- Plugging of obex
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/13/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22488
Dural closure technique type
DrlClsreTechTyp
The type of dural closure technique utilized (if any).
Chiari Decompression- Dural Closure
No Closure (dura left open);Primary closure, without Duraplasty (aka Durarraphy);Dural augmentation with autologous graft (fascia or pericranium);Dural augmentation with allograft (cadaveric graft);Dural augmentation with biological membrane (e.g. bovine, porcine, Alloderm);Dural augmentation with combined graft (e.g. pericranium-GoreTex);Dural augmentation with synthetic graft (e.g. GoreTex);
No Closure (dura left open);Primary closure, without Duraplasty (aka Durarraphy);Dural augmentation with autologous graft (fascia or pericranium);Dural augmentation with allograft (cadaveric graft);Dural augmentation with biological membrane (e.g. bovine, porcine, Alloderm);Dural augmentation with combined graft (e.g. pericranium-GoreTex);Dural augmentation with synthetic graft (e.g. GoreTex);
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/13/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22489
Dural additional closure agent type
DurlAddClsreAgntTyp
The type of dural closure supplements used (if any).
Chiari Decompression- Dural Closure Supplements
None (no supplement);Fibrin Glue (e.g. Tisseal);Hydrogel (e.g. Duraseal);Gel foam;
None (no supplement);Fibrin Glue (e.g. Tisseal);Hydrogel (e.g. Duraseal);Gel foam;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/13/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22490
Valsalva challenge perform indicator
VlsChllPerfomInd
The indicator related to whether a valsalva challenge was performed in order to assess the integrity of the closure.
Chiari Decompression-Valsalva challenge
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/13/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22491
Cranioplasty cerebelloplasty performed type
CrnCerPerformTyp
The type of cranioplasty/cerebelloplasty (if any) performed.
Chiari Decompression- Cranioplasty/Cerebelloplasty
None;Autologous material;Mesh (e.g. titanium);Bone cement (e.g. methylmethacrylate);
None;Autologous material;Mesh (e.g. titanium);Bone cement (e.g. methylmethacrylate);
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/13/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22492
Blood estimate loss measurement
BldEstLssMeas
The measurement related to the estimated amount of blood loss.
Chiari Decompression- Estimated Blood Loss
  
Numeric Values
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/13/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Free-Form Entry
0
 
cc
    
C22493
Chiari decompression hospital stay post surgical procedure duration
ChiariDcpHsStPstSurgProcDur
The duration of the individual's hospital stay post operation.
Chiari Decompression- Length of Hospital Stay Post-Operatively
  
Numeric Values
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/13/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Free-Form Entry
0
 
days
    
C22494
Ventral decompression type
VentDecmpTyp
The type of ventral decompression utilitized (if any).
Ventral Decompression
Not performed;Open Transoral approach;Endoscopic transnasal approach;
Not performed;Open Transoral approach;Endoscopic transnasal approach;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/13/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22495
Surgical procedure syrinx performed type
SurgProcSyrnxPerformTyp
The type of direct surgical treatment of syrinx (if any).
Operative Syrinx Treatment
Not performed;Syrinx drainage (e.g. needle aspiration);Syrinx fenestration;Syrinx shunt- syringosubarachnoid shunt;Syrinx shunt- syringopleural shunt;Syrinx shunt- syringoperitoneal shunt;
Not performed;Syrinx drainage (e.g. needle aspiration);Syrinx fenestration;Syrinx shunt- syringosubarachnoid shunt;Syrinx shunt- syringopleural shunt;Syrinx shunt- syringoperitoneal shunt;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/13/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22496
Surgical procedure wound revision requirement indicator
SurgProcWndRvReqInd
The indicator related to whether surgical wound revision was required.
Complication, Early- Requirement for Surgical Wound Revision
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/13/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22497
Suboptimal response revision requirement indicator
SubRspnsRevReqInd
The indicator related to whether a suboptimal response to decompression required revision.
Complication, Early- Requirement for Revision Chiari Decompression
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/13/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
C22498
Cranioplasty cerebelloplasty performed six month type
CranCerePerformSixMoTyp
The type of cranioplasty/ cerebelloplasty performed post Chiari decompression at the 6 month point.
Complication, Early- Requirement for Cranioplasty/Cerebelloplasty
None;Autologous material;Mesh (e.g. titanium);Bone cement (e.g. methylmethacrylate);
None;Autologous material;Mesh (e.g. titanium);Bone cement (e.g. methylmethacrylate);
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/13/2016
Aliases for variable name not defined
Chiari I Malformation Treatment
Therapies
Treatment/Intervention Data
  
Single Pre-Defined Value Selected
       
07-15-2019
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