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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Chiari I Malformation
Sub-Domain: Imaging Diagnostics
CRF: Chiari I Malformation Imaging
Item count: 33 (33 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C21728
Imaging cerebellar tonsil lowest position measurement
ImgCerTonLowPosMeasr
The measurement related to lowest tonsillar position relative to foramen magnum.
Lowest tonsillar position
  
Numeric Values
Define foramen magnum using midline image. Draw line from basion to opisthion. Define basion and opisthion as the confluence of cortical bone (most inferior). Ventral most point on opisthion. Measure tonsillar position perpendicular to that line. Tonsillar measurement may be taken parasagittally to assure the largest possible number is recorded. Record negative number for tonsil position above line. Based on T1 sagittal or coronal MRI.
Barkovich AJNR 7(5) 795 1986;Smith JNS 119(3) 812 2013
Adult;Pediatric
Core
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
  
Millimeters
    
C21729
Imaging cerebellar tonsil right position measurement
ImgCerTonRtPosMeasr
The measurement related to right tonsillar position relative to foramen magnum.
Position of right cerebellar tonsil
  
Numeric Values
Define foramen magnum using midline image. Draw line from basion to opisthion. Define basion and opisthion as the confluence of cortical bone (most inferior). Ventral most point on opisthion. Measure tonsillar position perpendicular to that line parasagittally through the tip of the right tonsil. Tonsillar measurement should be taken to assure the largest possible number is recorded. Record negative number for tonsil position above line. Based on T1 sagittal or coronal MRI.
Barkovich AJNR 7(5) 795 1986;Smith JNS 119(3) 812 2013
Adult;Pediatric
Core
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
  
Millimeters
    
C21730
Imaging cerebellar tonsil left position measurement
ImgCerTonLftPosMeasr
The measurement related to left tonsillar position relative to foramen magnum.
Position of left cerebellar tonsil
  
Numeric Values
Define foramen magnum using midline image. Draw line from basion to opisthion. Define basion and opisthion as the confluence of cortical bone. Ventral most point on opisthion. Measure tonsillar position perpendicular to that line parasagittally through the tip of the left tonsil. Tonsillar measurement should be taken to assure the largest possible number is recorded. Record negative number for tonsil position above line. Based on T1 sagittal or coronal MRI.
Barkovich AJNR 7(5) 795 1986;Smith JNS 119(3) 812 2013
Adult;Pediatric
Core
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
  
Millimeters
    
C21731
Imaging cerebellar tonsil shape type
ImgCerTonShaTyp
The type as related to the relative tonsil shape reported.
Shape of cerebellar tonsils
Rounded;Pegged;Intermediate;
Rounded;Pegged;Intermediate;
Alphanumeric
Choose the relative shape of the cerebellar tonsils as rounded, pegged or intermediate between the two; see diagram for guidance
No references available
Adult;Pediatric
Exploratory
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Single Pre-Defined Value Selected
       
C21732
Imaging syrinx present indicator
ImgSyrPreInd
The indicator related to presence of syrinx within the spinal cord measuring greater than 3 mm in axial plane T1 imaging
Syrinx Present
Yes;No;
Yes;No;
Alphanumeric
Choose Yes/No: 'Yes' if fluid signal (CSF) is present within the spinal cord measuring greater than 3 mm in axial plane imaging
No references available
Adult;Pediatric
Supplemental–Highly Recommended
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Single Pre-Defined Value Selected
       
C21733
Imaging syrinx length spinal segment count
ImgSyrLenSpiSegCou
The number of spinal segments for length of syrinx as measure on sagittal MRI scan
Length of hydrosyringomyelia
  
Numeric Values
Length of syrinx as measured on sagittal MRI scan; reported in number of spinal segments (1 to 29). e.g. – a syrinx extending from C2 to T5 will measure 11 segments. Record 11.
[The minimal value of this field when fluid is present in the spinal cord (i.e. #5 is yes) is set to “1.” A “segment” is defined as equal to or greater than the half the height of the corpus of the adjoining vertebral bodies at the mid-sagittal plane. Example: hydrosyringomyelia extending from just caudal to the mid-point of the C3 vertebral body to just rostral to the mid-point of the C5 vertebral body would be assigned a value of “2.”]
No references available
Adult;Pediatric
Supplemental
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
1
29
     
C21734
Imaging syrinx highest level spinal segment number
ImgSyrLenSpiSegNum
The number as related to the highest level of syrinx, reported in terms of most superior spinal segment along syrinx
Highest level of syrinx
  
Alphanumeric
Identify location of single segment most superior e.g., C2. Reported in number of spinal segments.
No references available
Adult;Pediatric
Supplemental
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
       
C21735
Imaging syrinx lowest level spinal segment number
ImgSyrLowLvlSpiSegNum
The number as related to the lowest level of syrinx, reported in terms of most inferior spinal segment along syrinx
Lowest level of syrinx
  
Alphanumeric
Identify location of single segment most inferior e.g., T5. Reported in number of spinal segments
No references available
Adult;Pediatric
Supplemental
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
       
C21736
Imaging syrinx width measurement
ImgSyrWidMeasr
Greatest transverse diameter of hydrosyringomyelia on T2-WI as measured on MRI in the axial plane (in mm).
Maximum transverse diameter of hydrosyringomyelia
  
Numeric Values
Greatest transverse diameter of hydrosyringomyelia on T1-WI as measured on MRI in the axial plane (in mm).
No references available
Adult;Pediatric
Supplemental
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
  
Millimeters
    
C58515
Greatest transverse spinal cord diameter measurement
GrtestTransvSpinlCordDiamMeasr
Greatest transverse diameter of spinal cord on T2-WI as measured on MRI in the axial plane (in mm).
Greatest transverse diameter of the spinal cord
  
Numeric Values
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
5/8/2018
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
  
millimeter
    
C58516
Greatest transverse thecal sac diameter measurement
GrtestTransvThecalSacDiamMeasr
Greatest transverse diameter of thecal sac on T2-WI as measured on MRI in the axial plane (in mm).
Greatest transverse diameter of the thecal sac
  
Numeric Values
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
5/8/2018
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
  
millimeter
    
C21737
Imaging posterior cranial fossa soft tissue clivo-axial angle (CXA) measurement
ImgPosCraFosSofTissCXAMeasr
The measurement as related to soft tissue clivo-axial angle (CXA).
Soft Tissue Clivo-axial Angle (CXA)
  
Numeric Values
Draw a line from the spheno-occipital synchondrosis (or mid-point of the clivus if not visible in the adult subject) to the posterior most point on the ventral dura posterior to the odontoid process (inferior half of the clivus). Draw another line from the posterior inferior aspect of C2 to the posterior-most point on the ventral dura. The angle between these lines is the soft tissue CXA. (Best measured on T2 sagittal midline MRI)
No references available
Adult;Pediatric
Exploratory
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
0
360
Degrees
    
C21738
Imaging posterior cranial fossa bone clivo-axial angle (CXA) measurement
ImgPosCraFosBonCXAMeasr
The measurement as related to bone clivo-axial angle (CXA).
Bone Clivo-axial Angle (CXA)
  
Numeric Values
Draw a line from the sphenooccipital synchondrosis to the basion (inferior half of the clivus). Draw another line from the posterior inferior aspect of C2 to the posterior-most point on the odontoid process. The angle between these lines is the bony CXA. (best measured on CT)
No references available
Adult;Pediatric
Exploratory
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
0
360
Degrees
    
C21739
Imaging posterior cranial fossa pB-C2 measurement
ImgPosCraFospBC2Measr
The measurement as related to distance from dura to the line drawn from the basion to the posterior inferior edge of the C2 vertebra
pB-C2
  
Numeric Values
Draw a line from the basion to the posterior inferior most point of C2. Measure the perpendicular distance from the posterior most point on the ventral dura posterior to the odontoid process to the first line (perpendicular).
Grabb and Oakes
Adult;Pediatric
Supplemental
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
  
Millimeters
    
C21740
Imaging posterior cranial fossa basion axial interval measurement
ImgPosCraFosBAIntrvlMeasr
The measurement as related to distance from tip of basion to posterior axial line
Basion Axial Interval (BAI, Harris Measurement)
  
Numeric Values
Draw a linge from the psoteriror inferior most point on C2 to the most posterior point of the odontoid process. Extend this lin in a rpstral direction. Measure the perpendicular distance from the basion to the line. (Best measured on bony imaging such as CT)
No references available
Adult;Pediatric
Exploratory
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
  
Millimeters
    
C21742
Imaging posterior cranial fossa basion axial interval flexion measurement
ImgPosCraFosBAIntrvlFleMeasr
The measurement as related to distance from tip of basion to posterior axial line while in flexion
BAI in flexion
  
Numeric Values
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
  
Millimeters
    
C21741
Imaging posterior cranial fossa basion axial interval extension measurement
ImgPosCraFosBAIntrvlExtMeasr
The measurement as related to distance from tip of basion to posterior axial line while in extension
BAI in extension
  
Numeric Values
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
  
Millimeters
    
C21743
Imaging posterior cranial fossa basion dens interval measurement
ImgPosCraFosBDIntrvlMeasr
The measurement as related to distance from basion to tip of odontoid
Basion-Dens Interval (BDI)
  
Numeric Values
Distance from basion to tip of odontoid (best measured on bony imaging such as CT)
No references available
Adult;Pediatric
Exploratory
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
  
Millimeters
    
C21745
Imaging posterior cranial basion dens axial interval flexion measurement
ImgPosCraFosBDIntrvlFleMeasr
The measurement as related to distance from basion to tip of odontoid in flexion
BDI in flexion
  
Numeric Values
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
  
Millimeters
    
C21744
Imaging posterior cranial fossa basion dens interval extension measurement
ImgPosCraFosBDIntrvlExtMeasr
The measurement as related to distance from basion to tip of odontoid in extension
BDI in extension
  
Numeric Values
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
  
Millimeters
    
C21746
Imaging posterior cranial fossa clivus length measurement
ImgPosCraFosCliLenMeasr
The measurement as related to distance from dorsum sella to basion on midsagittal MRI
Clivus Length
  
Numeric Values
Distance from dorsum sella to basion on midsagittal image.
Alperin et al Neurosurg 75(5) 515 2014
Adult;Pediatric
Supplemental
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
  
Millimeters
    
C21747
Imaging posterior cranial fossa supraoccipital length measurement
ImgPosCraFosCliSupLenMeasr
The measurement as related to distance from opisthion to internal occipital protuberance on midsagittal MRI
Supraoccipital Length
  
Numeric Values
Distance from opisthion to the most anterior aspect of the internal occipital protuberance on midsagittal image.
Alperin et al Neurosurg 75(5) 515 2014
Adult;Pediatric
Supplemental
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
  
Millimeters
    
C21748
Imaging posterior cranial fossa foramen magnum diameter measurement
ImgPosCraFosForMagDiaMeasr
The measurement as related to distance from basion to opisthion
Foramen Magnum diameter
  
Numeric Values
Distance from basion to opisthion.
No references available
Adult;Pediatric
Supplemental
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
  
Millimeters
    
C21749
Imaging posterior cranial fossa superior posterior fossa length measurement
ImgPosCraFosSupPosFosLenMeasr
The measurement as related to distance from dorsum sella to internal occipital protuberance
Superior Posterior fossa length
  
Numeric Values
Distance from dorsum sella to internal occipital protuberance.
No references available
Adult;Pediatric
Supplemental
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
  
Millimeters
    
C21750
Imaging posterior cranial fossa tentorial angle measurement
ImgPosCraTenAngMeasr
The measurement as related to the angle between line drawn along the tentorium with line drawn from the internal occipital protuberance to the opisthion; Alternative measurement: angle between line drawn paralell to clivus and line drawn paralell to tentorium, independent of orientation of occipital bone
Tentorial angle
  
Numeric Values
Decide which measurement, favor to the clival measurement.
0-360°; Angle between line drawn along the tentorium with line drawn from the internal occipital protuberance to the opisthion.
No references available
Adult;Pediatric
Supplemental
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Free-Form Entry
0
360
Degrees
    
C21751
Imaging spine anomaly congenital fusion cervical vertebrae present indicator
ImgSpiAnoConFusCerVerPreInd
The indicator related to the congenital fusion of cervical vertebrate on the imaging spinal anomalies.
Congenital Fusion of cervical vertebrae
Yes;No;
Yes;No;
Alphanumeric
Choose Yes / No
No references available
Adult;Pediatric
Exploratory
1.0
6/1/2016
Aliases for variable name not defined
Chiari I Malformation Imaging
Imaging Diagnostics
Assessments and Examinations
  
Single Pre-Defined Value Selected
       
07-15-2019
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