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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Chiari I Malformation
Sub-Domain: History of Disease/Injury Event
CRF: Chiari Symptom Onset
Item count: 33 (33 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C22302
Chiari malformation headache onset important symptom scale
ChiariHdacheOnstImptSympScale
The scale as related to headache at onset importance in Chiari malformation symptoms.
Initial Symptom: Headache
1;0;2;3;4;5;
1;Least important;2;3;4;Worst Symptom;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22307
Chiari malformation Neck pain onset important symptom scale
ChiariMlfNckPnOnstImptSymScale
The scale as related to neck pain at onset importance in Chiari malformation symptoms.
Initial Symptom: Neck pain
1;0;2;3;4;5;
1;Least important;2;3;4;Worst Symptom;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22309
Chiari malformation numbness tingling onset important symptom scale
ChiariMlfNmbTngOnstImpSymScale
The scale as related to numbness/tingling at onset importance in Chiari malformation symptoms.
Initial Symptoms: Numbness/Tingling
1;0;2;3;4;5;
1;Least important;2;3;4;Worst Symptom;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22311
Chiari malformation imbalance dizziness onset important symptom scale
ChiariMlfImbDzOnstImpSympScale
The scale as related to imbalance/dizziness at onset importance in Chiari malformation symptoms.
Initial Symptoms: Imbalance/Dizziness
1;0;2;3;4;5;
1;Least important;2;3;4;Worst Symptom;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
ChiariMlfImbDzzOnstImptSympScale
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22313
Chiari malformation visual symptoms onset important symptom scale
ChiariMlfVslSymOnstImpSymScale
The scale as related to visual symptoms at onset importance in Chiari malformation symptoms.
Initial Symptoms:Visual Symptoms
1;0;2;3;4;5;
1;Least important;2;3;4;Worst Symptom;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22315
Chiari malformation auditory symptoms onset important symptom scale
ChiariMlfAudSymOnstImpSymScale
The scale as related to auditory symptoms at onset importance in Chiari malformation symptoms.
Initial Symptoms: Auditory Symptoms
1;0;2;3;4;5;
1;Least important;2;3;4;Worst Symptom;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22317
Chiari malformation fatigue onset important symptom scale
ChiariMlfFtgOnstImpSymScale
The scale as related to fatigue at onset importance in Chiari malformation symptoms.
Initial Symptoms: Fatigue
1;0;2;3;4;5;
1;Least important;2;3;4;Worst Symptom;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22320
Chiari malformation brain fog onset important symptom scale
ChiariMlfBnFgOnstImpSymScale
The scale as related to brain fog at onset importance in Chiari malformation symptoms.
Initial Symptoms: Brain Fog
1;0;2;3;4;5;
1;Least important;2;3;4;Worst Symptom;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22323
Chiari malformation cardiac onset important symptom scale
ChiariMlfCardOnstImpSymScale
The scale as related to cardiac at onset importance in Chiari malformation symptoms.
Initial Symptoms: Cardiac
1;0;2;3;4;5;
1;Least important;2;3;4;Worst Symptom;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22324
Chiari malformation bowel bladder onset important symptom scale
ChiariMlfBwlBldOnstImpSymScale
The scale as related to bowel/bladder at onset importance in Chiari malformation symptoms.
Initial Symptoms: Bowel/Bladder
1;0;2;3;4;5;
1;Least important;2;3;4;Worst Symptom;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22328
Chiari malformation headache onset symptom severity scale
ChiariMlfHdacheOnstSymSevScale
The scale as related to headache at onset severity in Chiari malformation symptoms.
Initial Symptom Severity: Headache
0;1;2;3;4;5;6;7;8;9;10;
0;1;2;3;4;5;6;7;8;9;Worst possible pain;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22333
Chiari malformation neck pain onset symptom severity scale
ChiariMlfNckPnOnstSymSevScale
The scale as related to neck pain at onset severity in Chiari malformation symptoms.
Initial Symptom Severity: Neck pain
0;1;2;3;4;5;6;7;8;9;10;
0;1;2;3;4;5;6;7;8;9;Worst possible pain;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22334
Chiari malformation numbness tingling onset symptom severity scale
ChiariMlfNmbTngOnstSymSevScale
The scale as related to numbness/tingling at onset severity in Chiari malformation symptoms.
Initial Symptom Severity: Numbness/Tingling
0;1;2;3;4;5;6;7;8;9;10;
0;1;2;3;4;5;6;7;8;9;Worst possible pain;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22335
Chiari malformation imbalance dizziness onset symptom severity scale
ChiariMlfImbDzzOnstSymSevScale
The scale as related to imbalance/dizziness at onset severity in Chiari malformation symptoms.
Initial Symptom Severity: Imbalance/Dizziness
0;1;2;3;4;5;6;7;8;9;10;
0;1;2;3;4;5;6;7;8;9;Worst possible pain;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22337
Chiari malformation visual symptoms onset symptom severity scale
ChiariMlfVisSymOnstSymSevScale
The scale as related to visual symptoms at onset severity in Chiari malformation symptoms.
Initial Symptom Severity: Visual Symptoms
0;1;2;3;4;5;6;7;8;9;10;
0;1;2;3;4;5;6;7;8;9;Worst possible pain;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22340
Chiari malformation auditory symptoms onset symptom severity scale
ChiariMlfAudSymOnstSymSevScale
The scale as related to auditory symptoms at onset severity in Chiari malformation symptoms.
Initial Symptom Severity: Auditory Symptoms
0;1;2;3;4;5;6;7;8;9;10;
0;1;2;3;4;5;6;7;8;9;Worst possible pain;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22343
Chiari malformation fatigue onset symptom severity scale
ChiariMlfFtgOnstSymSevScale
The scale as related to fatigue at onset severity in Chiari malformation symptoms.
Initial Symptom Severity: Fatigue
0;1;2;3;4;5;6;7;8;9;10;
0;1;2;3;4;5;6;7;8;9;Worst possible pain;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22345
Chiari malformation brain fog onset symptom severity scale
ChiariMlfBFOnstSymSevScale
The scale as related to brain fog at onset severity in Chiari malformation symptoms.
Initial Symptom Severity: Brain Fog
0;1;2;3;4;5;6;7;8;9;10;
0;1;2;3;4;5;6;7;8;9;Worst possible pain;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22347
Chiari malformation cardiac onset symptom severity scale
ChiariMlfCardOnstSymSevScale
The scale as related to cardiac at onset severity in Chiari malformation symptoms.
Initial Symptom Severity: Cardiac
0;1;2;3;4;5;6;7;8;9;10;
0;1;2;3;4;5;6;7;8;9;Worst possible pain;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22351
Chiari malformation bowel bladder onset symptom severity scale
ChiariMlfBwlBldOnstSymSevScale
The scale as related to bowel/bladder at onset severity in Chiari malformation symptoms.
Initial Symptom Severity: Bowel/Bladder
0;1;2;3;4;5;6;7;8;9;10;
0;1;2;3;4;5;6;7;8;9;Worst possible pain;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C08007
Diagnosis first given date and time
DiagnosFirstGivnDateTime
Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder
Date of Diagnosis
  
Date or Date & Time
No instructions available
No references available
Adult;Pediatric
Supplemental
3.0
7/24/2013
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
Diagnosis first given date and time
 
Free-Form Entry
       
C22354
Imaging diagnostic method type
ImgDiagMethodType
The type of imaging method utilized for diagnosis.
Initial Diagnostic Test
MRI;CT;
MRI;CT;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22356
Imaging diagnostic method type other text
ImgDiagMethodTypeOthTxt
The free text field related to the imaging method utilized for diagnosis.
Other,specify
  
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
 
255
Free-Form Entry
       
C22357
Chiari malformation identify speciality diagnosis type
ChiariMlfIdSpDiagType
The type of specialty of the individual responsible for diagnosis.
Diagnosing Service (medical specialty)
Neurosurgeon;Neurologist;Primary Care Physician;Self;
Neurosurgeon;Neurologist;Primary Care Physician;Self;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C22358
Chiari malformation identify specialty diagnosis type text
ChiariMlfIdSpDiagTypTxt
The free text field related to identifying the specialty of the individual responsible for diagnosis.
Other, specify
  
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/9/2016
Aliases for variable name not defined
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
 
255
Free-Form Entry
       
C00007
Birth date
BirthDate
Date (and time, if applicable and known) the participant/subject was born
Date of Birth
  
Date or Date & Time
No instructions available
No references available
Adult;Pediatric
Supplemental
3.0
7/25/2013
caBIG: PER_BIR_DT; SCI CDEs: BIRTHDT
Chiari Symptom Onset
History of Disease/Injury Event
Disease/Injury Related Events
Birth date
 
Free-Form Entry
     
793
 
07-22-2019
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