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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Chiari I Malformation
Sub-Domain: General Health History
CRF: CMI - Hereditary Disorders of Connective Tissue Screening (2)
Item count: 10 (10 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C21761
Chiari malformation screening hypermobility family indicator
ChiMalScrHypFmlyInd
The indicator related to family members having joint hypermobility syndrome which is a condition that features joints that easily move beyond the normal range. Expected for that particular joint in a screening diagnosis for Chiari malformation.
Do you considered yourself or any immediate family members to be double jointed (hypermobile)?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/2/2016
Aliases for variable name not defined
CMI - Hereditary Disorders of Connective Tissue Screening (2)
General Health History
Participant History and Family History
  
Single Pre-Defined Value Selected
       
C21764
Chiari malformation screening ocular lens problem indicator
ChiMalScrOcuLenProbInd
The indicator related to optic or ocular lens problems.
Have you had any optic (or ocular) lens problems?
Yes;No;
Yes;No;
Alphanumeric
Excluding astigmatism.
No references available
Adult;Pediatric
Supplemental
1.0
6/2/2016
Aliases for variable name not defined
CMI - Hereditary Disorders of Connective Tissue Screening (2)
General Health History
Participant History and Family History
  
Single Pre-Defined Value Selected
       
C21765
Chiari malformation screening dental development poor enamel temporomandibular joint problem indicator
ChiMAlScrDenEnaTemJoiProbInd
The indicator related to having any developmental problems with teeth, poor dental enamel or temporomandibular joint disorder in a screening diagnosis for Chiari malformation.
Have you had any developmental problems with your teeth, poor dental enamel, or temporomandibular joint (TMJ) disorder?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/2/2016
Aliases for variable name not defined
CMI - Hereditary Disorders of Connective Tissue Screening (2)
General Health History
Participant History and Family History
  
Single Pre-Defined Value Selected
       
C21766
Chiari malformation screening echocardiogram mitral valve prolapse aortic aneurysm diagnosis indicator
ChiMalScrEchMVPAorAneDiagInd
The indicator related to ever having a echocardiogram reveal mitral valve prolapse (MVP) or aortic aneurysm (or enlargement) in a screening diagnosis for Chiari malformation.
Has an echocardiogram ever revealed mitral valve prolapse (MVP) or aortic aneurysm (or enlargement)?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/2/2016
Aliases for variable name not defined
CMI - Hereditary Disorders of Connective Tissue Screening (2)
General Health History
Participant History and Family History
  
Single Pre-Defined Value Selected
       
C21767
Chiari malformation screening orthopedic joint hip dislocation unusual pain screen indicator
ChiMalScrOrtJoiHipDisPaiScrInd
The indicator related to any kind of hip or any other joint dislocation, unusual joint pain, or susceptibility to joint injury in a screening for Chiari malformation.
Have you had any kind of hip or any other joint dislocation, unusual joint pain, or susceptibility to joint injury?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/2/2016
Aliases for variable name not defined
CMI - Hereditary Disorders of Connective Tissue Screening (2)
General Health History
Participant History and Family History
  
Single Pre-Defined Value Selected
       
C21769
Chiari malformation screening orthopedic flat feet scoliosis chest deformity screen indicator
ChiMalScrOrtFlaFeeScoCheDefInd
The indicator related to having flat feet, scoliosis (spinal curvature), or a chest deformity in a screening for Chiari malformation.
Have you ever had flat feet, scoliosis (spinal curvature), or a chest deformity?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/2/2016
Aliases for variable name not defined
CMI - Hereditary Disorders of Connective Tissue Screening (2)
General Health History
Participant History and Family History
  
Single Pre-Defined Value Selected
       
C21770
Chiari malformation screening gastrointestinal gastric reflux irritable bowel syndrome malabsorption diagnosis indicator
ChiMalScrGasRefIBSMalDiagInd
The indicator related to diagnosis of gastric reflux, irritable bowel syndrome, or malabsorption in a screening for Chiari malformation.
Have you ever been diagnosed with gastric reflux, irritable bowel syndrome, or malabsorption?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/2/2016
Aliases for variable name not defined
CMI - Hereditary Disorders of Connective Tissue Screening (2)
General Health History
Participant History and Family History
  
Single Pre-Defined Value Selected
       
C21771
Chiari malformation screening wound prolong heal separation indicator
ChiMalScrWouPeoHeaSepInd
The indicator related to experiencing prolonged wound healing or separation in a screening for Chiari malformation.
Have you experienced prolonged wound healing or separation?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/2/2016
Aliases for variable name not defined
CMI - Hereditary Disorders of Connective Tissue Screening (2)
General Health History
Participant History and Family History
  
Single Pre-Defined Value Selected
       
C21773
Chiari malformation screening chronic edema varicose vein fatty skin tumor diagnosis indicator
ChiMalScrChrEdeVarFatTumDiaInd
The indicator related to fatty skin tumors or bumps, bluish hands or feet, varicose veins, or chronic edema (swelling) in a screening diagnosis for Chiari malformation.
Have you noted fatty skin tumors or bumps, bluish hands or feet, varicose veins, or chronic edema (swelling)?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/2/2016
Aliases for variable name not defined
CMI - Hereditary Disorders of Connective Tissue Screening (2)
General Health History
Participant History and Family History
  
Single Pre-Defined Value Selected
       
C21774
Chiari malformation screening bruise stretch mark skin hernia prolapse scar formation indicator
ChiMAlScrBruStrHerProScaForInd
The indicator related to easy bruising, stretch marks, stretchy skin, hernias, prolapses, or unusual scar formation in a screening for Chiari malformation.
Have you experienced easy bruising, stretch marks, stretchy skin, hernias, prolapses, or unusual scar formation?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/2/2016
Aliases for variable name not defined
CMI - Hereditary Disorders of Connective Tissue Screening (2)
General Health History
Participant History and Family History
  
Single Pre-Defined Value Selected
       
07-20-2019
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