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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Chiari I Malformation
Sub-Domain: Classification
CRF: Chiari List of 10
Item count: 10 (10 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C21690
Chiari I malformation headache pressure daily occurrence indicator
CMHdPrDlOcInd
Indicator related to headache pain/pressure at the back or base of your head in defining signs and symptoms for Chiari I malformation.
Headache pain/pressure at the back or base of your head, which is almost a daily occurrence?
Yes;No;
Yes;No;
Alphanumeric
Symptom list in descending order of frequency from 82 to 51% among a population of 850 patients evaluated for Chiari I malformation at The Chiari Institute from 1/1/07 to 12/20/08.
The data analysis was provided by Dr. Yosef Dlugacz and his group at the Krasnoff Quality Management Institute.
No references available
Adult;Pediatric
Supplemental
1.0
5/26/2016
LOT1
Chiari List of 10
Classification
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C21691
Chiari I malformation neck pain stiff radiate shoulder symptom indicator
CMNckPnSfRdShSympInd
The indicator related to neck pain/stiffness radiating in your shoulders in defining signs and symptoms for Chiari I malformation.
General neck pain/stiffness that may radiate to your shoulders?
Yes;No;
Yes;No;
Alphanumeric
Symptom list in descending order of frequency from 82 to 51% among a population of 850 patients evaluated for Chiari I malformation at The Chiari Institute from 1/1/07 to 12/20/08.
The data analysis was provided by Dr. Yosef Dlugacz and his group at the Krasnoff Quality Management Institute.
No references available
Adult;Pediatric
Exploratory
1.0
5/26/2016
LOT2
Chiari List of 10
Classification
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C21692
Chiari I malformation prickle tingle numb arm leg frequent occurrence symptom indicator
CMPrkTngNmbArmLgFrqOcSymInd
The indicator related to frequent prickling, tingling or numbness in your arms/legs in defining signs and symptoms for Chiari I malformation.
Frequent prickling, tingling, or numbness in your arms/legs?
Yes;No;
Yes;No;
Alphanumeric
Symptom list in descending order of frequency from 82 to 51% among a population of 850 patients evaluated for Chiari I malformation at The Chiari Institute from 1/1/07 to 12/20/08.
The data analysis was provided by Dr. Yosef Dlugacz and his group at the Krasnoff Quality Management Institute.
No references available
Adult;Pediatric
Supplemental
1.0
5/26/2016
LOT3
Chiari List of 10
Classification
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C21693
Chiari I malformation position change dizzy symptom indicator
CMPosChngDzySympInd
The indicator related to dizziness with position changes in defining signs and symptoms for Chiari I malformation.
Dizziness with position changes?
Yes;No;
Yes;No;
Alphanumeric
Symptom list in descending order of frequency from 82 to 51% among a population of 850 patients evaluated for Chiari I malformation at The Chiari Institute from 1/1/07 to 12/20/08.
The data analysis was provided by Dr. Yosef Dlugacz and his group at the Krasnoff Quality Management Institute.
No references available
Adult;Pediatric
Supplemental
1.0
5/27/2016
LOT4
Chiari List of 10
Classification
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C21694
Chiari I malformation unsteady stand walk symptom indicator
CMUnstdyStndWlkSympInd
The indicator related to feelings of unsteadiness when standing or walking in defining signs and symptoms for Chiari I malformation.
Feelings of unsteadiness when standing or walking?
Yes;No;
Yes;No;
Alphanumeric
Symptom list in descending order of frequency from 82 to 51% among a population of 850 patients evaluated for Chiari I malformation at The Chiari Institute from 1/1/07 to 12/20/08.
The data analysis was provided by Dr. Yosef Dlugacz and his group at the Krasnoff Quality Management Institute.
No references available
Adult;Pediatric
Exploratory
1.0
5/27/2016
LOT5
Chiari List of 10
Classification
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C21695
Chiari I malformation headache pressure eye ear light sensitive symptom indicator
CMHdchPrsEyeEarLghtSnsSympInd
The indicator related to any feeling of pressure in your eyes/ears or sensitivity to light in defining signs and symptoms for Chiari I malformation.
Headache associated with any feeling of pressure in your eyes/ears or sensitivity to light?
Yes;No;
Yes;No;
Alphanumeric
Symptom list in descending order of frequency from 82 to 51% among a population of 850 patients evaluated for Chiari I malformation at The Chiari Institute from 1/1/07 to 12/20/08.
The data analysis was provided by Dr. Yosef Dlugacz and his group at the Krasnoff Quality Management Institute.
No references available
Adult;Pediatric
Exploratory
1.0
5/27/2016
LOT6
Chiari List of 10
Classification
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C21696
Chiari I malformation headache strain activity worsen symptom indicator
CMHdcheStnActWrsnSympInd
The indicator related to headache worsened by straining activities in defining signs and symptoms for Chiari I malformation.
Headache worsened by straining activities such as: coughing, sneezing, shouting, laughing, crying, bowel movements, sexual activity, or lifting?
Yes;No;
Yes;No;
Alphanumeric
Symptom list in descending order of frequency from 82 to 51% among a population of 850 patients evaluated for Chiari I malformation at The Chiari Institute from 1/1/07 to 12/20/08.
The data analysis was provided by Dr. Yosef Dlugacz and his group at the Krasnoff Quality Management Institute.
No references available
Adult;Pediatric
Supplemental–Highly Recommended
1.0
5/27/2016
LOT7
Chiari List of 10
Classification
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C21697
Chiari I malformation chronic fatigue short-term memory loss irritable symptom indicator
CMChrFtgShtTrmMemLssIrSympInd
The indicator related to complaints of chronic fatigue, short-term memory loss or irritability in defining signs and symptoms for Chiari I malformation.
Complaints of chronic fatigue, short-term memory loss, or irritability?
Yes;No;
Yes;No;
Alphanumeric
Symptom list in descending order of frequency from 82 to 51% among a population of 850 patients evaluated for Chiari I malformation at The Chiari Institute from 1/1/07 to 12/20/08.
The data analysis was provided by Dr. Yosef Dlugacz and his group at the Krasnoff Quality Management Institute.
No references available
Adult;Pediatric
Exploratory
1.0
5/27/2016
LOT8
Chiari List of 10
Classification
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C21698
Chiari I malformation generalize weakness stiff arm leg symptom indicator
CMGnWkStfArmLgSympInd
The indicator related to generalized weakness/stiffness of your arms and legs in defining signs and symptoms for Chiari I malformation.
Generalized weakness/stiffness of your arms and legs?
Yes;No;
Yes;No;
Alphanumeric
Symptom list in descending order of frequency from 82 to 51% among a population of 850 patients evaluated for Chiari I malformation at The Chiari Institute from 1/1/07 to 12/20/08.
The data analysis was provided by Dr. Yosef Dlugacz and his group at the Krasnoff Quality Management Institute.
No references available
Adult;Pediatric
Exploratory
1.0
5/27/2016
LOT9
Chiari List of 10
Classification
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
C21699
Chiari I malformation shortness breath blur vision ring ear urinary urgency heart palpitation symptom indicator
CMShBrBlVsRnErUrnUrgHrPlSymInd
The indicator related to complaints of shortness of breath, blurred vision, ringing in your ears, urinary ugency, or heart palpitations in defining signs and symptoms for Chiari I malformation.
Complaints of shortness of breath, blurred vision, ringing in your ears, urinary urgency, or heart palpitations?
Yes;No;
Yes;No;
Alphanumeric
Symptom list in descending order of frequency from 82 to 51% among a population of 850 patients evaluated for Chiari I malformation at The Chiari Institute from 1/1/07 to 12/20/08.
The data analysis was provided by Dr. Yosef Dlugacz and his group at the Krasnoff Quality Management Institute.
No references available
Adult;Pediatric
Exploratory
1.0
5/27/2016
LOT10
Chiari List of 10
Classification
Disease/Injury Related Events
  
Single Pre-Defined Value Selected
       
07-20-2019
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