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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Chiari I Malformation
Sub-Domain: Assessing Comorbidities
CRF: Co-Morbidities
Item count: 86 (86 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C22399
Spina bifida diagnosis indicator
SpinaBifDiagnosInd
The indicator related to diagnosis of spina bifida
Prior clinical diagnosis of spina bifida
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Core
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22400
Spina bifida occulta diagnosis indicator
SpinaBifOccDiagnosInd
The indicator related to spina bifida in which there is a defect in the bony spinal canal without protrusion of the cord or meninges.
Spina bifida occulta
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Supplemental
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22401
Spina bifida myelomeningocele diagnosis indicator
SpinaBifMyeloDiagnosInd
The indicator related to myelomeningocele which is when before birth, the baby's backbone, spinal cord and the structure they float in (spinal canal) do not form or close normally.
Myelomeningocele
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22402
Hereditary disorder connective tissue diagnosis indicator
HDCTDiagnosInd
The indicator related to personal or family history of double jointedness or excessive joint flexibility or dislocations, also known as Hereditary Disorder of Connective Tissue (HDCT).
Personal or family history of double jointedness or excessive joint flexibility or dislocations.
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Core
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22403
Cutaneous stigmata occult tethered spinal cord hair tuff indicator
CutStigOccThethSCHairTuffInd
The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for hair tuff.
Hair tuff
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Core
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22404
Cutaneous stigmata occult tethered spinal cord dimple indicator
CutStigOcctethSCDimpInd
The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for skin dimple.
Dimple
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Core
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22405
Cutaneous stigmata occult tethered spinal cord capillary hemengioma indicator
CutStigOccTethSCCapHemeInd
The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for capillary hemengioma.
Capillary hemangioma
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Core
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22406
Cutaneous stigmata occult tethered spinal cord lipoma indicator
CutStigOccTethSCLipInd
The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for lipoma .
Lipomas
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Core
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22407
Cutaneous stigmata occult thread spinal cord appendage indicator
CutStigOccTethSCAppInd
The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for appendage .
Appendages
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Core
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22408
Cutaneous stigmata occult tethered spinal cord meningocele manque indicator
CutStigOccTethSCMenManInd
The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for meningocele manque .
Meningocele manque
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Core
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22409
Skin abnormality stretch mark indicator
SkinAbnormlyStrMarkInd
The indicator related to evaluation of the presence of skin abnormality of stretch marks consistent with connective tissue disorders
Stretch marks
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Core
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22410
Skin abnormality hyperextensiblilty indicator
SkinAbnormlyHyperInd
The indicator related to evaluation of the presence of skin abnormality of hyperextensiblilty consistent with connective tissue disorders
Hyperextensible
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Core
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22411
Skin abnormality peizogenic papule indicator
SkinAbnrmlyPeizPapInd
The indicator related to evaluation of the presence of skin abnormality of peizogenic papule consistent with connective tissue disorders
Peizogenic papules
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22412
Arachnodactyly presence indicator
ArachPresInd
The indicator for arachnodactyly ("spider fingers") or achromachia is a condition in which the fingers and toes are abnormally long and slender, in comparison to the palm of the hand and arch of the foot.
Arachnodactyly
Yes;No;Equivocal;
Yes;No;Equivocal;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22413
Pneumothorax hernia organ prolapse indicator
PnuemoHernOrgProInd
The indicator related to any clinical history of pneumothorax, hernias, or organ prolapse.
Pneumothorax, Hernia, or organ prolapse
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22414
Osteoporosis osteopenia diagnosis indicator
OsteoDiagnosInd
The indicator relating to the diagnosis of osteoporosis and/or osteopenia based on DEXA measurement.
Osteoporosis, osteopenia
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22415
Chiari malformation family history indicator
CMFmlyHistInd
The indicator relating to any family history of Chiari Malformation I, syringomelia, or any related disorders.
Family History of Chiari I malformation, syringomyelia, or related disorder
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Core
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C00001
Gestational age value
GestatnlAgeVal
Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject.
Gestational age at birth
  
Numeric Values
No instructions available
No references available
Adult;Pediatric
Exploratory
3.0
7/25/2013
GESTA_NAT_AGE
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
Gestational age value
 
Free-Form Entry
0
52
week
  
3192017
 
C22416
Birth delivery normal indicator
BirthDelivNormInd
The indicator related to birth presentation at delivery being normal.
Birth presentation: Normal
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22417
Birth delivery breech indicator
BirthDelivBreeInd
The indicator related to birth presentation at delivery being a breech birth.
Birth presentation: Breech
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22418
Birth delivery forceps use indicator
BirthDelivForUseInd
The indicator related to birth presentation at delivery requiring the use of forceps.
Birth presentation: Forceps
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22419
Birth delivery Caesarian section indicator
BirthDelivCSectionInd
The indicator related to birth presentation at delivery being a Caesarian section.
Birth presentation: Caesarian Section
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22420
Gestation singleton indicator
GestSingleInd
The indicator related to a single gestation.
Singleton
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22421
Gestation twin indicator
GestTwinId
The indicator related to a twin gestation.
Twin
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22422
Gestation breech indicator
GestBreeInd
The indicator related to a breech gestation
Breech
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C22423
Gestation triplet indicator
GestTripInd
The indicator related to a triplet gestation.
Triplet
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
6/10/2016
Aliases for variable name not defined
Co-Morbidities
Assessing Comorbidities
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
07-15-2019
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